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CINDERELLA1201 Posts: 1
8/12/19 1:50 P

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New here. I am trying to get the FDA to pay attention to a problem with the TSH test.
Since approximately 2016, several ppl have told me they were taken off synthroid dt a tsh level.
My tests keep coming back undetectable., but I am symptomatic. I have been in the lab over 30 years.
Something is wrong with assay for monitoring medication chanes.
fda.gov/medwatch if you have experienced this also.
We all know the thyroid doesn't get better. Something is dead wrong.. I do not take biotin anymore, so that is not the problem . They won't listen to a single voice.

LITTLEBABIES18's Photo LITTLEBABIES18 Posts: 672
7/5/19 8:10 P

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Hi I am new here. I have hyperactive thyroid. I have been on one med and now eating g healthier and exercising regularly. I just want to connect to people with the same condition as I have.

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MARYJOANNA's Photo MARYJOANNA Posts: 13,086
6/28/19 7:23 A

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The weight does come off but it takes twice as long as other people.



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SKATMAN's Photo SKATMAN Posts: 195
6/28/19 4:59 A

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Thank You this is so helpful tome.

My Vision Statement:
To get off of my medications; Cholesterol statin, Hypothyroid levothyroxine,after effects from statin is hitting my quads and sharp pain in knees, to finish a marathon and too get at my healthy weight at 146lbs, so I can look better and do more things; to be able to work more active jobs, run a marathon, wear better clothes- more of a variety and feel better. To have more energy and get rid of my sleep apnea. I am feeling more energetic and sleeping better.


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10/31/18 10:46 A

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Hormones for menopause and hypothyroid are completely different. Strictly speaking thyroid medication will not effect menopausal hormone imbalance (though there may be some shared symptoms).

It sounds like your doc might be suggesting hormone replacement for menopause. But again, this is different than hormone replacement for thyroid.

Hope this helps!

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10/31/18 10:41 A

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Hello!

I find the "Paleo" approach to eating to be a good starting point with many dealing with weight, inflammatory, auto-immune, cardiovascular and blood sugar issues.

Any of the books on the subject by Robb Wold or Dr. Loren Cordain are good for general paleo info. A more comprehensive book with focus on autoimmune conditions is by Sarah Ballentyne; The Paleo Approach:Reverse Autoimmune disease and heal your body.

FYI other compounding problems often associated with wt issues in addition to Hashimotos include adrenal dysfunction, estrogen dominance and intestinal dysbiosis (just to name a few!) Sorry to overwhelm but this is true. Google for a holistic or functional medicine doc in your area who has working experience with these issues.

Hope this help!

KEELYME Posts: 1,235
10/8/18 2:43 P

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Magnesium citrate can also be helpful. Look up "adrenal fatigue" and "hypothyroid" for the connection.



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10/8/18 2:54 A

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The goal of natural remedies or alternative medicine is to fix the root cause of the thyroid problem. Thyroid problems sometimes start as the result of poor diet, stress, or missing nutrients in your body. Changing your diet and taking an herbal supplement are two ways you can help your thyroid condition. These options may have fewer side effects than taking thyroid medicine. Also, using an herbal supplement for treatment of a low or underactive thyroid may be helpful for people who aren’t responding well to medicines.

Consider the following five natural remedies as additions or alternatives to your treatment plan.

Sugar-Free Diet
Sugar and processed foods can lead to increased inflammation in the body. Inflammation can slow down the conversion of T4 to triiodothyronine, or T3, another thyroid hormone. This can make your symptoms and thyroid disease worsen.

Also, sugar only boosts your energy level in the short term, eliminating it from your diet may help regulate your energy levels. Additionally, removing sugar from your diet may help your skin and stress levels. It’s not easy to adopt a sugar-free diet, but the benefit to your thyroid health may be worth it.

Vitamin B
Taking certain vitamin supplements can have an impact on your thyroid health. Low thyroid hormones can affect your body’s vitamin B-12 levels. Taking a vitamin B-12 supplement may help you repair some of the damage your hypothyroidism caused.

Vitamin B-12 can help with the tiredness caused by thyroid disease. Thyroid disease also impacts your vitamin B-1 levels. You can add more B vitamins to your diet with the following foods:

peas
asparagus
sesame seeds
tuna
cheese
milk
eggs
Vitamin B-12 is generally safe for most healthy individuals at recommended levels. The vitamin should be used with caution if you have any of the following conditions:

heart disorder
high blood pressure
history of cancer
skin disorders
discolored urine
stomach issues
anemia, due to abnormal potassium levels
blood clotting disorders
increased uric acid or gout
It’s important to talk with your doctor about how much vitamin B-12 may be right for you.

Probiotics
The NIH studied the link between hypothyroidism and small intestine problems. These problems included an overgrowth of bacteria, such as yeast. Probiotic supplements contain live bacteria that can help keep your stomach and intestines healthy. Besides supplement forms, fermented food and drink, such as kefir, kombucha, raw cheese, and yogurt contain useful probiotics.

However, the Food and Drug Administration has not approved the use of probiotics for the prevention or treatment of any condition. Talk with your doctor to see if these supplements might help you.

Gluten-Free Diet
Adopting a gluten-free diet is more than a fad for many people with hypothyroidism. According to the National Foundation for Celiac Awareness, a significant number of people with thyroid disease also have celiac disease, which is a digestive disorder in which people cannot handle consuming gluten.

While research doesn’t currently support a gluten-free diet for the treatment of thyroid disease, many people with Hashimoto’s thyroiditis and hypothyroidism do feel better after cutting wheat and other gluten containing foods from their diet.

But there are some drawbacks to going gluten free. For one, the cost of buying gluten-free foods is often much higher than foods containing wheat. And some prepackaged, gluten-free foods aren’t healthy. That’s because these foods often have a higher fat content and less fiber than wheat containing products.

There are some herbal meds also available online which is very effective. Good and cheap are also available on www.mygenericpharmacy.com

FARFALLA72 Posts: 75
10/6/18 2:30 A

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Hi,

Not sure if I've been here before. But a bit about myself. I was diagnosed with Hashimoto when I was 15. I didn't have to take medication until after my son was born when I was 25. I am now 46. I successfully lost weight using medication and WeightWatchers in 2004. But since 2008 I have been struggling with my weight. Oh well. It doesn't help that I've developed vitiligo since then. The internet is very confusing. They say, eat this, don't eat that. Eat the autoimmune diet. Hmm, what is the autoimmune diet? My endo says I can eat whatever I want, just in moderation. My PCP says, exercise more. Umm. No. So now I'm sitting here not knowing what to eat and not wanting to exercise. I am the heaviest I've ever been. Well, that's me. A constant struggle. I still don't know what to eat.



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KEELYME Posts: 1,235
9/20/18 1:02 P

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I was diagnosed as hypothyroid about 13 years ago. It does not appear to affect my ability to lose weight, or to maintain a healthy weight. It does however make me more tired than I probably should be, which can make it harder to stay on top of meal planning and exercise.



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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,338
9/4/18 6:53 P

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Needed---some advice or info.
Earlier this year, after seeing my gyno, she wanted me to return in a few weeks to discuss going on hormones.
Now, are the hormones used for menopause symptoms the same as the hormones given for hypothyroidism???
Levothyroxine or synthroid???
or is it something totally different???
anyone???

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8/11/18 7:33 A

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The Facts
The thyroid is a small gland located below the Adam's apple in your neck. It releases hormones, thyroxine (T4) and triiodothyronine (T3), which increase the amount of oxygen your body uses and stimulate your cells to produce new proteins. By controlling the release of these hormones, the thyroid determines the metabolic rate of most of your body's organs.

The thyroid gland is regulated by thyroid-stimulating hormone (TSH), which is made by the pituitary gland in the brain. Normally, when thyroid hormone levels in the body are high, they will "switch off" the production of TSH, which in turn stops the thyroid from making more T4 and T3.

Problems occur when the thyroid gland becomes either underactive (hypothyroidism) or overactive (hyperthyroidism). Thyroid problems are more common in women than men. Cancer may also develop in the thyroid gland.

Causes
Thyroid diseases sometimes result from inappropriate TSH levels, or may be caused by problems in the thyroid gland itself.

The most common cause of hypothyroidism is Hashimoto's thyroiditis, an autoimmune condition where the body makes antibodies that destroy parts of the thyroid gland. Surgical removal and certain medications (e.g., amiodarone, lithium) can also cause hypothyroidism.

Other causes of hypothyroidism include pituitary problems, hypothalamus problems, and iodine deficiency (rare in North America, but affects nearly 2 billion people worldwide). Some babies are born with hypothyroidism - this is called congenital hypothyroidism.

There are different causes of hyperthyroidism. Graves' disease is the most common cause of hyperthyroidism. This condition occurs when the immune system produces an antibody that stimulates the entire thyroid gland; this leads to overactivity and higher levels of thyroid hormones.

Another form of hyperthyroidism is called toxic nodular goiter or toxic thyroid adenoma. Adenomas, abnormal nodules of tissue in the thyroid, constantly produce thyroid hormones even when they are not needed.

Secondary hyperthyroidism is caused when the pituitary gland makes too much TSH, leading to constant stimulation of the thyroid gland. A pituitary tumour may cause TSH levels to rise. More rarely, the pituitary gland becomes insensitive to thyroid hormones, no longer responding to high levels.

Another possible cause of hyperthyroidism is a condition called thyroiditis. This condition occurs when the thyroid gland becomes inflamed. Depending on the type of thyroiditis, this may lead to temporary hyperthyroidism that might be followed by hypothyroidism.

There are four types of thyroid cancers: papillary, follicular, anaplastic, and medullary cancer. These are associated with radiation treatment to the head, neck, or chest. Radiation treatment for benign (non-cancerous) conditions is no longer carried out in these areas, but was more common in the past. In other cases, a genetic mutation might be associated with thyroid cancer, either alone or in conjunction with other types of cancers (e.g., multiple endocrine neoplasia, BRAF gene mutations). Less commonly, other cancers might metastasize to the thyroid (e.g., lymphoma, breast cancer).

Treatment and Prevention
The usual treatment for hypothyroidism is thyroid hormone replacement therapy. With this treatment, synthetic thyroid hormone (e.g., levothyroxine*) is taken by mouth to replace the missing thyroid hormone. Treatment is usually life-long.

Most people who take thyroid replacement therapy do not experience side effects. However, if too much thyroid hormone is taken, symptoms can include shakiness, heart palpitations, and difficulty sleeping. Women who are pregnant may require an increase in their thyroid replacement by up to 50%. It takes about 4 to 6 weeks for the effect of an initial dose or change in dose to be reflected in laboratory tests.

Hyperthyroidism can be treated with iodine (including radioactive iodine), anti-thyroid medications or surgery.

Radioactive iodine can destroy parts of the thyroid gland. This may be enough to get hyperthyroidism under control. In at least 80% of cases, one dose of radioactive iodine is able to cure hyperthyroidism. However, if too much of the thyroid is destroyed, the result is hypothyroidism. Radioactive iodine is used at low enough levels so that no damage is caused to the rest of the body. It isn't given to pregnant women because it may destroy the thyroid gland of the developing fetus.

Larger doses of regular iodine, which does not destroy the thyroid gland, help block the release of thyroid hormones. It is used for the emergency treatment of thyroid storm, and to reduce the excess production of thyroid hormones before surgery.

Anti-thyroid medications (e.g., propylthiouracil* or methimazole) can bring hyperthyroidism under control within 6 weeks to 3 months. These medications cause a decrease in the production of new thyroid hormones by the thyroid gland. Larger doses will work more quickly, but may cause side effects including skin rashes, nausea, loss of taste sensation, liver cell injury, and, rarely, a decrease of blood cell production in the bone marrow.

Surgical removal of the thyroid gland, called thyroidectomy, is sometimes necessary. It may be required if there are cancerous nodules; if a non-cancerous nodule is causing problems breathing or swallowing; if the person cannot take radioactive iodine or antithyroid medications, or if these do not work; or if a nodule that contains fluid continues to cause problems. Removing the thyroid gland leads to hypothyroidism, which must then be treated with thyroid hormone therapy for the rest of a person's life.

Sometimes your doctor may recommend other medications to help control symptoms of hyperthyroidism, such as shakiness, increased heart rate, anxiety, and nervousness. However, these won't cure thyroid dysfunction.

Treatment for thyroid cancers often involves some combination of thyroidectomy (surgical removal of the thyroid gland), radioactive iodine, radiation therapy (less common), anticancer medications, and hormone suppression.

Get more details at www.mygenericpharmacy.com

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6/29/18 8:13 A

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Thyroid cancer is far more common among adult women than men or youth. About 2/3 of cases occur in people under age 55. There are different kinds of thyroid cancer, depending upon the specific cell type within the thyroid that has become cancerous. Most cases of thyroid cancer have a good prognosis and high survival rates, especially when diagnosed in its early stages.

To get more details about treatment and meds logon to www.mygenericpharmacy.com

MCFITZ2's Photo MCFITZ2 Posts: 21,388
6/29/18 4:56 A

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yes diagnosed in 1970's. Strongly feel there is a part of the puzzle of this disease that has not been found.

Edited by: MCFITZ2 at: 6/29/2018 (05:08)
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ANGELDIAMOND122's Photo ANGELDIAMOND122 SparkPoints: (28,803)
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6/22/18 7:25 A

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Yes indeed. I'm 41. I had a goiter all my life then when my 3rd (out of 5) child was born 12 yrs ago this month my thyroid decided to say screw it. I had the most p.o.s. primary Dr at the time who ran blood work twice a month for my thyroid between June 06 to Dec 06 and he told me my thyroid level was too low but then he'd say Oh it can't be that, you must have sleep apnea...So he sent me for a sleep study and found out I have the most mild sleep apnea that I don't even need a machine for...Then he'd run blood work again and again he'd say my thyroid levels are too low, then again he'd say Oh but it can't be that, it must be mono...so he sent me for blood work for mono and that came back negative...Well you get the picture of the games he was playing...Till December when I got fed up with it and being so sick I was in bed 18-20 hrs a day while trying to take care of a baby who had colic (colic for the first 6 months, then ear infections from 6 month to 1 yrs...That first year was hell). So I called his office and the hospital he worked out of and filed complaints so then I forced his hand to give me a referral to the endocrinologist...because he refused to give me a referral so I had no choice but to file complaints with the office he worked at...as well as the hospital he worked out of ...and I called the state medical board and filed a complaint against him there too...Then I got my referral to the endocrinologist out of him and I got ALL of my blood work and test results and took them to my first appointment with the endocrinologist in January 2007 where the endocrinologist looked over everything and told me on the spot that I have Hashimoto Thyroiditis autoimmune disorder that has caused me to develop Hypothyroidism and I've been on Levothyroxine ever since.

Edited by: ANGELDIAMOND122 at: 6/22/2018 (07:26)
Started @ 170 lbs (7/2017- When I joined Planet Fitness)
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6/21/18 1:31 P

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Hi, I’m 55. Just been diagnosed with Hypothyroid two days back. I’ve been put on meds and supplements for underlying issues. Looking to educate myself and get to feeling better with changed behavior.



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6/20/18 4:15 P

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So, I am new here. Looking for others with similar circumstances - possibly found them? I have been diagnosed with Hashimoto Thyroiditis and Hypothyroidism for 27 years now and have had a good run with synthroid until just about a year ago. I was extremely fit, energetic, happy, etc. now in the past year (actually the past 4 months) I have put on 26lbs! TIRED, hair falling out, miserable. I don't even have energy to exercise even though my job is ACTIVE all day - and I mean active - which I know can give more energy. Frustrated, got my bloodwork done and now TSH is .07! Other levels are "normal" and this is after 6 months of Levothyroxine at 112mg and Liothyronine at 10 mg per day. Asked for something different than the same stuff as maybe my body needed a change after all these years?... so I received Naturethroid - seemed to work and lost 6 lbs in 22 days. Thrilled, but 22 days worth was all I could get, apparently no one is supplying it anymore? So back to the dr. I go again. (weeks of meds are missing in my system at this point) and now up more weight in a matter of weeks. I received Armour Thyroid 90mg presc. Started it a week ago but not feeling any better yet and just yesterday I was diagnosed with walking pneumonia. I did a 5 day fast back in Feb. and am wondering if this was counter-productive as even that did not help me lose any weight. Battling against energy to exercise and possibly go on a nutrient dense only diet, I'm not sure where to turn now. Should I add in more T3 to what I'm taking with Armour? I have a previous prescrip for 60 days left at 5mg per pill. I remain hopeful that something has to give with this body of mine. 47 years old - I ain't got time for this! Hoping someone can give some advice. Please and thank you.

MARYJOANNA's Photo MARYJOANNA Posts: 13,086
6/12/18 5:37 A

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Looking for new discoveries about hypothyroidism.



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SPUNOUTMOM's Photo SPUNOUTMOM Posts: 1,548
6/11/18 8:46 P

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Wow! That is more information than I have ever received from my doctor. I wasn't placed on medications and he didn't take the time to explain why. I just went in for a test on my birthday and the results were that my levels were in normal range. He didn't seem surprised by the results but I was. Thank you for this helpful information.



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6/11/18 4:41 A

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Diagnosis
Because hypothyroidism is more prevalent in older women, some doctors recommend that older women be screened for the disorder during routine annual physical examinations. Some doctors also recommend that pregnant women or women thinking about becoming pregnant be tested for hypothyroidism.

Blood tests
Diagnosis of hypothyroidism is based on your symptoms and the results of blood tests that measure the level of TSH and sometimes the level of the thyroid hormone thyroxine. A low level of thyroxine and high level of TSH indicate an underactive thyroid. That's because your pituitary produces more TSH in an effort to stimulate your thyroid gland into producing more thyroid hormone.

Treatment
Standard treatment for hypothyroidism involves daily use of the synthetic thyroid hormone levothyroxine (Levothroid, Synthroid, others). This oral medication restores adequate hormone levels, reversing the signs and symptoms of hypothyroidism.

One to two weeks after starting treatment, you'll notice that you're feeling less fatigued. The medication also gradually lowers cholesterol levels elevated by the disease and may reverse any weight gain. Treatment with levothyroxine is usually lifelong, but because the dosage you need may change, your doctor is likely to check your TSH level every year.

Determining proper dosage may take time
To determine the right dosage of levothyroxine initially, your doctor generally checks your level of TSH after two to three months. Excessive amounts of the hormone can cause side effects, such as:

Increased appetite
Insomnia
Heart palpitations
Shakiness
If you have coronary artery disease or severe hypothyroidism, your doctor may start treatment with a smaller amount of medication and gradually increase the dosage. Progressive hormone replacement allows your heart to adjust to the increase in metabolism.

Proper absorption of levothyroxine
Certain medications, supplements and even some foods may affect your ability to absorb levothyroxine. Talk to your doctor if you eat large amounts of soy products or a high-fiber diet or you take other medications, such as:

Iron supplements or multivitamins that contain iron
Cholestyramine
Aluminum hydroxide, which is found in some antacids
Calcium supplements
If you have subclinical hypothyroidism, discuss treatment with your doctor. For a relatively mild increase in TSH, you probably won't benefit from thyroid hormone therapy, and treatment could even be harmful. On the other hand, for a higher TSH level, thyroid hormones may improve your cholesterol level, the pumping ability of your heart and your energy level.

Also visit www.mygenericpharmacy.com for suggestion.

SUNNYD76's Photo SUNNYD76 Posts: 1,625
4/2/18 9:46 A

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Hi! I was diagnosed with hypothyroidism a year after having my daughter. (Although the doctor said my thyroid levels were all over the place in prior years and she was surprised no one picked up on it before.) Both my parents have it as well...so genetics were not on my side. Pregnancy seemed to be the last straw for my thyroid...it just couldn't recover.

I am currently on .75mcg of levothyroxine. However, I am starting to feel exhausted again and gaining weight so I think I need to get back and in and get my bloodwork redone. I just had it done in the summer but was just barely in the normal range the last time. That said, my daughter and husband have been waking me up at night regularly for the last 3 weeks...so I will see how I feel when I get a good night sleep for a solid week as well as eating well!

Can I ask you, as a woman, what level of TSH do your doctors aim for? I have heard that for women it should be less than 3 but my doctor just goes with whatever "range" the blood tests show as normal.

Edited by: SUNNYD76 at: 4/2/2018 (09:47)
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2/21/18 8:34 P

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A Naturopathic doctor (sorry, misspelled the first time) is a "functional" medical doctor. they take in the WHOLE body and treat it, not just the symptoms. You can usually find one in your area by just googling it. No, I am not selling these products I mentioned; Yes I am promoting them personally because they have worked for me and could possibly alleviate others symptoms on this board.

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2/21/18 3:57 P

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What is a Natropathetic Doc? Are you getting paid to promote those products?

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Ive been battling with Hashimotos (autoimmune) Hypothyroid. dealing with all the symptoms that you all have - tired, hairless, weight gain, brain fog. Been taking Naturethyroid for years. all of a sudden after a VERY bad case of the flu, I became almost unable to function at ALL. had to quit my job - brain fog was so severe. Fatigue was horrible (I'd sleep for 12 hours and then only be up for 4 hours and then had to lay back down and take a nap). My GP just looked at me like a deer in headlights - couldn't help. Anyway to make a long story short, found out through Natropathic doc and I have sever case of Reactivated Epstein barr Virus (stage 4). Found out that MOST thyroid problems are caused by this - Epstein Barr is attacking your thyroid. that is why it isn't working. Both Hypo and Hyper - explained more by Anthony William book "the Thyroid healer". Sugar, gluten, and DAIRY FEED EBV. Also the virus LOVES eggs. if you cut all of this out of your diet and then drink 4-5 Green juices (like Dr. Axe Energy greens), you will start to feel better with in days...yes, I said...days, not weeks not months....days. You have to re-alkaline your bodies. I was suffering for 25 years with hypothyroid and then 4 years with stage 4 EBV. Now, the fog is starting to lift and I have lost 4 lbs. you should really try it. what do you have to lose?

JEFFGIRL's Photo JEFFGIRL Posts: 12,441
1/19/18 8:43 P

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I have had this since my 20’s and rake medication daily.

ETHELMERZ's Photo ETHELMERZ Posts: 27,149
1/19/18 4:09 P

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I'm 71, but have had this for years, quit taking med after my husband died 2 years ago, and just thought my depression and tiredness was from grief, but had a blood test and no, it's very low thyroid. Been reading up on it, seems to be the main basis of a lot of my fatigue. So starting again on the med, and will have another blood test in 4 weeks to see if the med is enough. Will work on weight loss, again, and exercise, etc. Yes, all the women in my family had this, my mother lived to be 102.

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12/19/17 11:03 A

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Working out makes me feel better. I'm still tired, but I feel better. I read Mel Robbins and follow her 5-4-3-2-1 method to count backwards and get myself out of bed. Hope it helps you too!

But, working out six days a week and counting calories on SP hasn't moved the scale....sigh. That's why we're in this club. emoticon


Edited by: DAUGIE73 at: 12/19/2017 (11:05)

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OPENDOOR80 Posts: 2
12/16/17 1:45 A

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Hi. I am dealing with a lot of symptoms that seem to point to hypothyroidism. I am so tired and have no energy to do anything, my muscles feel weak, I have become even more intolerant of the cold (unless I am having a hot flash), I am having muscle cramps and aches, I am constipated to the point of having an impacted bowel, my always on time period is a week late every month, and my memory and concentration are s%#t. Oh, and obviously I am having significant insomnia, as I am posting on a board at almost 1am. My doctor just ran blood tests and my TSH is at .52. She is off for a month, so there will be no follow up for awhile. Could I possibly be hypothyroid with a TSH that low? I feel like I am grasping at straws at this point trying to figure out where these symptoms are coming from.

Edited by: OPENDOOR80 at: 12/16/2017 (01:46)
TURQUROISE's Photo TURQUROISE Posts: 1,546
10/9/17 10:03 A

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Hi. I have Hypothyroid forever, truly it runs in my family. I have Aunts and Uncles who have many different types of thyroid problems. I just had my meds reduced. I have a hard time losing weight, fatigue, and other problems from thyroid for years that I have learned to cope. My Mom has different problems with thyroid, she is 96yrs and has stayed the about same weight 150lbs. you can email me if you have a question

Edited by: TURQUROISE at: 10/9/2017 (10:04)

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ANGELDD37's Photo ANGELDD37 Posts: 4
9/1/17 7:49 P

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Thank you everyone. I am so glad I found you. I have hypothyroid also. I am thirty lb. overweight. That's not the worst of it. I also have fibromyalgia, chronic fatigue syndrome, and arthritis in my upper back so bad I am on morphine. If I do not find someway to lose weight and be able to shop and eat healthy food. I will die soon or get a disease and die. Sorry to be so morbid. If anyone knows of other boards for the other conditions, I would truly be blessed. I am on a roller coaster. I get pain relief for a week or two, then I am bedridden for up to 6 weeks. They are getting to the point that b/c of the nations drug problem, they are trying to get non-cancer pain patient off these meds. I am in such severe pain, that I would be out of here if I were not more affraid of going to Hell. Thanks for listening.

SPUNOUTMOM's Photo SPUNOUTMOM Posts: 1,548
8/24/17 6:29 P

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Part of this club. Diagnosed when doctor was checking for other things. Totally unexpected.



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8/20/17 10:21 P

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Hello! I can't imagine that I'm going to bring much to the convo's that have been happening, but I was diagnosed with Hypo/Hash's just 3 months ago, 36yo. Started on Synthroid 100mcg and I don't notice much of a change although my numbers have improved considerably. I wish I wasn't so tired all the time, and this weight gain thing is really bummin' me out, and the brittle thinning hair / dry skin is the pits. I have my first appt with an Endo in October so I'm hoping for more answers when I meet with him but this whole diagnosis has really got me down. I have zero energy to do anything but I constantly daydream about working out and looking better. Any advice or words of encouragement welcomed. TYIA :-)


Edited by: LUKKYIRISHGAL at: 8/22/2017 (17:15)

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7/9/17 2:24 P

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Yes, and the dose of thyroid medicine has crept up over the years.



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SHYNONME Posts: 232
7/4/17 10:29 A

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Good morning. I was diagnosed with Graves Disease at the age of 32. One month later it was full blown Hypothyroidism. It is hard to lose weight. I lose then gain it back again.

JEFFGIRL's Photo JEFFGIRL Posts: 12,441
6/2/17 9:41 P

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Yes. On medication for over 30 years.

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5/30/17 6:49 P

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yep, and now heart issues that may be related to that or to the chemo I had for cancer 17 years ago.

Becoming the healthiest me that I can be.
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BEAUTYFULL84's Photo BEAUTYFULL84 Posts: 47
5/29/17 2:11 A

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I was diagnosed with Hashimoto's hypothyroidism 2 years ago. I have gained 35 lbs. since then and it seems almost impossible to lose any of it. I am on Levothyroxine but it doesn't seem to help any of my symtoms at all. I am convinced that there has to be a better solution than just taking a pill every day for the rest of my life but my doctor doesn't seem very educated on the subject. I'm starting the paleo diet at the beginning of June to see if it helps...it's supposed to be good for people with autoimmune disorders.

Edited by: BEAUTYFULL84 at: 5/29/2017 (02:20)

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MARYJOANNA's Photo MARYJOANNA Posts: 13,086
5/24/17 4:14 P

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I am hypothyroid prone and take Levothyroxin. I get a blood test every 6 months. I have difficulty losing weight and blame It on my condition.



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BELINDERB1's Photo BELINDERB1 SparkPoints: (2,854)
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5/24/17 12:51 P

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I have only been diagnosed as being hypothyroid for about four weeks now. So I have not been on medication that long, but have been struggling with weight loss for several years. I am trying to decide on a weight loss plan. I have tried low carb, weight watchers and calorie counting without much success. I also walk and work out. Nothing is helping. What plans have you had success on?



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4/7/17 12:06 A

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I was diagnosed 10 years ago and my doctor kept bumping up my dosage of Levothyroxine because I would get into the normal range and then 6 months later be out of it. Finally at 300 micrograms he said he wanted me to see a specialist. She put me on Synthroid (Brand, not generic) and 9 months later, I'm down to 275 micrograms and have a lot more energy and generally feel better. Of course my insurance won't pay for the name brand, so I am dropping a ton of cash. It's worth it, but damn it's expensive.

Lauren
Sri Lanka

If you have formed the habit of checking on every new diet that comes along, you will find that, mercifully, they all blur together, leaving you with only one definite piece of information: french-fried potatoes are out. ~~Jean Kerr

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SPOKANE52's Photo SPOKANE52 Posts: 38
4/6/17 11:11 A

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20 years diagnosed. My hig struggle is constipation. Sorry! But its the truth. Am seeing endocrinologist end of month and want to find out my BMR, exactly what in the heck IS my calorie range supposed to be? It seems like I gain weight if I go over 1500 on any regular basis. It's a struggle! So glad I found this group. emoticon

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3/23/17 12:53 P

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I have been taking the same med for years and finally I have been able to lose some weight through diet and exercise. It comes off very slow but with consistency it is going down! We got this!

Michelle
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SOSIREGIME's Photo SOSIREGIME Posts: 141
3/22/17 1:32 P

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I have been taking levothyroxine for about 6 months. Yesterday, at the dr., I weighed more than i ever have. It is so frustrating. Some days, like today, I just wonder why I bother. Then I read that others have the same issues - sleepiness, sleeplessness, weight gain. It certainly does help to hear that you are not alone. SARAHESMITH22, I also have trouble concentrating, especially at work. I'm not maintaining my weight - I'm gaining! It truly freaks me out. However, I am trying to make some big (for me) dietary changes; going lower carb, generally limiting calories. I have to believe there is a way to make the weight go down again. We can do this! Best of luck to you in your fight! We are strong! emoticon emoticon emoticon



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1/31/17 4:39 P

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I have very sensitive allergic skin and the Made from Earth Pure Aloe Treatment is in my opinion excellent it is not greasy and soothes the skin initially taking away the itch, a little goes a long way and worth paying a bit extra for a cream that works. This is also steroid free so you can use on the face and on a daily basis.

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1/20/17 1:42 P

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hi everyone, I'm going on 66 and have been taking synthroid for over 15 yrs.



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100LBLIGHTER's Photo 100LBLIGHTER Posts: 7,828
1/19/17 8:49 P

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I have been on Thyroid meds for 15 years plus. I was on synthroid or Levothyroxine till I stopped sleeping... test showed that I was in normal range. I accidentally took an extra pill about12 hours apart which caused me to an anxiety attack which lasted weeks... lost 30 pounds in a short time. Finally a Doctor put me on Armour Thyroid with anxiety meds. In two months I was able to go off the anxiety meds and started sleeping. Most Doctors will not do Armour Thyroid....but it sure saved me.


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1/19/17 11:08 A

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I was diagnosed around 10 years ago, and I take Levothyroxine. I've still managed to lose substantial weight a few times in the last 10 years -- most recently, I've lost 20 pounds over the last three months or so. I've gained all the weight back every time, but mostly because I fell off the wagon/stopped exercising/made poor food choices/overate. As long as thyroid hormones are well-managed, it shouldn't be a roadblock as far as losing weight goes.

LEANCHICK123 Posts: 1
1/19/17 10:43 A

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Can you tell me what medication you switched to from Armour? And do you drink decaf coffee?

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11/11/16 12:45 A

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among many....

Michelle
California
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"I can do all things through Christ who strengthens me"



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TERRI289's Photo TERRI289 Posts: 24,944
11/11/16 12:41 A

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Yes, just another pill

Exercise to be fit, not skinny.Eat to nourish your body.and Always Ignore the doubter, haters, and unhealthy examples that were feeding you. YOu are worth more than you realize." From the Fitness Facebook page..

There is always reason to Dance!!
--From my birthday gift from a cherished friend



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11/8/16 9:30 P

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I have been a member for quite awhile now


I did my best today, tomorrow I will do even better.


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LEOLINDA04 Posts: 2
11/8/16 5:17 P

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Hi just found out I need synthyroid always had trouble with my weight but it sounds like it will continue to be an issue.

SCDENT's Photo SCDENT Posts: 103
10/24/16 4:33 P

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I'm 54 years young and was diagnosed with hyperthyroidism after having my son 19 years ago. I underwent radioactive iodine treatment of kill off my thyroid and have been taking levothyroxine for hypothyroidism every since. It's been under control for most part, but every now and then I have moments I feel out of it. Inot the passed I've found it hard to stay encourage when losing weight, but being a part of Sparks has made it a little easy.

BEACHTIME9's Photo BEACHTIME9 Posts: 2,923
10/24/16 11:20 A

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Hey there, I have Hashimotos/Hypothyroid. I have found that limiting breads has really helped with my weight. My doctor put me on a no grain, no dairy, no nuts plan along with switching to coconut milk which is hard to find in the store. I did stick to that diet for 8 weeks last fall and I did lose about 12 pounds. But, I was also tracking and staying at 1200 calories and working out regularly. Tough, but my doctor was sure pleased!! I was also!! I do eat nuts, some dairy, but limit my grains to almost none and have dropped a few more pounds. I would love to be 20# down (total) since I've seen her last year. I need to make an appointment since it's been almost a year.



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8/16/16 11:41 A

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Hi I am new here. 2006 my thyroid gland was removed after 10 yrs w/ Graves Disease untreated/undiagnosed; I have run the gamut of Synthroid & levo,found Armour Thyroid 1 grain (60mg) works best for me. My MD poo pooed me for months until yesterday he gave me a script for NP Thyroid 30 mg-so this means I will have to take 2 not 1 as he prescribed, to get the same amount of 60 mg of Armour. I was sending to Canada for Armour because no one would prescribe it.Meanwhile my weight has gone to 175 now down from 190 when the gland was removed; I used to weigh 135; This is very disturbing that I will never be thin again. I'd like to know if I should take 2 of the 30mg's of NP otherwise if I take only 30 I'll be tired & will gain again; I eat hardly nothing; no coffee, meat, no milk, breads eggs. no fats ever;.I starve almost but never lose. Dr. says exercise-it is too hot and I have spine issues osteo and cannot exercise; I can walk but not in the heat, I hate it. This is hard to live with. I have fibro also kidney issues. I had a goitre, toxic diffuse & pre-cancer; I had to wait 1 month before being put on thyroid med, then it was just synthroid, which doesn't convert to T-3. I can't make the dr. understand I need T-3, it is frustrating. I went to Armour on my own. I still have the Abnormal blood test from 1996 my dr. back then ignored. 10 years later the gland was removed, & I was very sick...I just would like to know if anyone has used NP Thyroid? And it makes sense I'd take 2 to get 60 mg because that is my dose now of Armour which I ordered from Canada. Thank you much:)

Edited by: NOGLANDLADY66 at: 8/16/2016 (11:43)
JEFFGIRL's Photo JEFFGIRL Posts: 12,441
8/11/16 4:00 P

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Have had this and taken medication for 20+ years. It is just a fact of my life.

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6/12/16 4:33 P

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I am 55, surgically thrown into Menopause years ago, and have battled Hypothyroidism for 5+ years. Doc said I also need to eat more fish, take fish supplement, and B & D vitamins. I take 150mcg of Synthroid daily (I must have one messed up thyroid!) I also do not like to eat fish.. shrimp, lobster, crab...yes. Not fish. But I have found that if I steam tilapia with LOADS of Cajun seasoning.. it's not bad at all. In fact some days I crave it just for the seasoning. So I steam my fish with broccoli and cauliflower. One 'good for me' meal! I lay a bit of weight blame on my condition... but in my case: I'm to blame for 3/4 of it. Drink way too much soda pop and don't eat regular meals IF I eat a meal at all. I find I tend to go a day or more at times before I realize I haven't ate. So any sugar I put in goes straight to fat storage. And I've been inactive for a few years. I just got a fitbit; now I just need it to zap me with a current if I don't get a move on. I need to go to 'camp' to learn how to implement and stay on a routine!

Edited by: JBEKKAZ at: 6/12/2016 (16:44)

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5/23/16 2:25 P

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Yes, have been hypothyroid for 18 yrs..... some days are a challenge, other days like today are super wonderful. Loads of energy. emoticon

Eastern Time Zone

IT'S A MARATHON, NOT A SPRINT!!!!!




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RABBITS123 Posts: 104
5/20/16 5:50 P

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Just found your post , you said the test said you were positive for cancer , so you had it out , but it was not cancer ? So how can they make that kind of mistake ? My story - 3 yrs ago my blood work was a little of TSH , had an ultrasound of thyroid,found 3 nodules , went for test where you swallow something , go back next day and they take pics, said mine was still warm ? Dr checked blood work 6 months later and it was good , fast forward April 25 2016 - went for MRI of back ,found 3 cm cyst on thyroid, told dr can't come in was having knee surgery that week, it's been 3 weeks and I feel like I have a constant lump on the left side of my throat, I am afraid to go to dr because they will want to do FNB and I'm afraid they will want to do surgery, my health ins has a 2,600.00 deductible and is only good through the end of September, I was going to try and wait till October when my new policy would start so I would have the whole year, your thoughts

LCHAMBERLAND Posts: 1
5/20/16 7:36 A

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Hi, going gluten free wasn't a myth for me. I experienced immediate results. After IgG testing and discovering so many foods that I'm sensitive to I'm basically vegeterian and don't eat any gluten and when I do I experience severe bloating and am exhausted. I was diagnosed with Hashimotos 2 years ago. My antibodies were 760 and I've gotten them down to 246. I went gluten free about a year later and all my bloating disappeared. I'm on 45 mg Armour and after removing foods that I'm sensitive too I've dropped 15 lbs and feeling about 80%. Still working on healing my adrenals and working with my extremely slow digestion but I'm feeling hopeful.

Edited by: LCHAMBERLAND at: 5/20/2016 (07:40)
SARAHESMITH22 SparkPoints: (227)
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3/16/16 12:56 P

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18 years old diagnosed with hypothyroidism about 6 months ago. Have little to no motivation to do anything and sleep through my alarms on the regular. Even with 10+ set within 30 mins. I'm struggling to maintain my weight even while eating right and exercising. Also have a very hard time focusing and completing a task at once. Such a struggle anyone with the same problems?

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3/10/16 1:43 A

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I was diagnosed with hypothyroid about a year ago. My doctor put me on levothyroxine and it made me feel even worse, so I stopped taking it and started looking into natural remedies. I started taking a natural thyroid support supplement and cut wheat out of my diet and I feel a million times better! I do intend to ask my doctor for a different medication, but in the mean time this is working for me.

GOODLIL991's Photo GOODLIL991 Posts: 1,605
3/9/16 11:59 P

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Yes, on new meds feeling better



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3/8/16 8:25 P

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Hi there. I'm not sure if I belong on this thread. I had thyroid cancer 5 years ago and had to have my entire thyroid removed. I am cancer free, yay. But I do struggle with weight since the surgery. I am on Synthroid, of course and my weight goes up and down. I doctor says I need to get control of my metabolism.



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3/8/16 5:22 P

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I am 42 and was suffering so badly with tiredness as well as other problems. I finally went to the doctors in September and blood tests were ordered, I was called back to see my gp regarding my results, he told me my thyroid wasn't working, when I asked what do you mean 'isn't working', he replied 'at all'. I had previously had months off with depression that antidepressants did nothing for no matter how much he increased my dosage and now I know why. I have been on 100mg levothyroxine, I have cut my working hours down from full time to 4 hours a day, I have an 11 year old with behavioural issues and a lively 5 year old. I am still struggling everyday to get up, can't stay awake in the evenings, sleep pattern is rubbish so always feeling shattered and lifeless. I know I am still not right but my levels are 'normal'. Any advice please I can't cope with feeling so tired all the time, it is such a different tired from normal tired, feels like I haven't slept in weeks all the time, that can't be right.



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RUBYREDSTAR19's Photo RUBYREDSTAR19 Posts: 8,762
2/3/16 8:41 A

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I'm with you. Just diagnosed at 33 but it took YEARS of trying to figure out what was happening. I had so many tests and they actually still shake their head in confusion. I'm just on the edge, and sometimes I can maintain it, sometimes I can't. I have celiacs which messes with it also sometimes. But doctors can't verify that a trace of gluten will mess it up. I can personally tell you it does, but their tests can't verify it. It's a struggle everyday, but at least I know what it is so when my weight gain comes on quickly I know what to blame :0



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JO88BAKO's Photo JO88BAKO SparkPoints: (319,671)
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2/1/16 8:22 P

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Yup

Nancy from Iowa and
North Carolina

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Proud member of Onyx Outlaws BLC15, BLC 16, BLC 17
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MRSB921's Photo MRSB921 Posts: 82
1/31/16 12:22 A

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subclinical hypothyroidism here...

Sleeved and loving it! 11.17.14

Are you trying to lose weight with hypothyroidism? www.sparkpeople.com/resource/nutriti
on_articles.asp?id=635


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JO88BAKO's Photo JO88BAKO SparkPoints: (319,671)
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12/29/15 8:49 P

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Yup

Nancy from Iowa and
North Carolina

God
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Proud member of Onyx Outlaws BLC15, BLC 16, BLC 17
Proud co-captain of Onyx Outlaws BLC 18, BLC 19
BLC 20, BLC 21, BLC 22
, BLC23 BLC 24




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ACH216's Photo ACH216 SparkPoints: (6,057)
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12/29/15 7:10 P

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I was diagnosed with Graves (hyper) when I was 18. When I was 21 I was radiated to remove my thyroid, so now I am hypo. I have been battling my weight for almost 14 years =( I lose weight, but then I make dumb decisions and I gain it all back. Drives me nuts, but I know that it is me that is doing it.

I take two different doses of synthroid. Lucky lucky me!



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CATHERINEPACE Posts: 623
12/28/15 10:38 P

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I have hypo and I have been put on a 1500 calorie diet. I am 54 yrs young and I have lost 10 pounds so far. It's not easy but I am doing it.

MISSESD1's Photo MISSESD1 Posts: 263
12/28/15 7:06 A

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I am 54yrs old and was diagnosed with Hypothyroidism about 15 yrs ago. I have steadily gained weight. I have been going to the gym for 2yrs now and I lose a little and then gain it back again. I really need to get my head around the eating thing. I know to lose weight you should eat fish, however, all fish tastes fishy to me so I don't like it. My doctor says it's because I do not process the iodine in the fish like others without my diagnosis does. Am trying SparkPeople again, need to really change my eating habits and start sticking to the tracking of my food intake. Here's to working on a new healthy habit. emoticon



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PLANTPOWERGIRL's Photo PLANTPOWERGIRL Posts: 14,251
11/4/15 2:35 P

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Also, the gluten thing is a myth. My friend went gluten free when I went vegan. She's still very sick and I'm back to normal...I eat high carbs and gluten all the time :)

Vegan because all lives matter :)


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