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Blogs by Members of Ehlers-Danlos (EDS) and Hypermobility Syndrome

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  • Moving house... Again

    3/31/2018 7:18:29 AM, by NANLTHOMPSON

    Helen and I found a house. Right next door to where she had been living. It's smaller but it has the very needed third bedroom. We moved her ov... Read more

  • Morning ponderings

    3/16/2018 3:48:46 AM, by NANLTHOMPSON

    I like having a bit of me time first thing in the morning before the younger boys have to wake up. This morning I spent it in the bath playing a ... Read more

  • I'm coming off the happy pills

    3/14/2018 6:45:23 AM, by NANLTHOMPSON

    I have been taking anti depressant medication since 2005, since experiencing post natal depression and PTSD after the birth of my youngest son at... Read more

  • Getting Back On Track

    7/8/2017 7:22:52 PM, by TAMMYD45

    Okay, it is time I start to take my health seriously. Yes I may need a powerchair, but there is still things I can do. And who knows, I may be ab... Read more

  • Sorrow and weight gain

    7/2/2017 1:50:52 PM, by GREENEYESKIGIRL

    I am four pounds heavier today. And it's ok. Two weeks ago Monday, my 90 year old mother passed away. Our tenuous relationship could have do... Read more

  • New adventure

    5/10/2017 12:01:01 PM, by GREENEYESKIGIRL

    I'm shy. I don't go new places alone where I have to interact with people. Through the years, there have been lots of groups I'd like to join. ... Read more

  • Things I've learned so far

    3/3/2017 2:58:20 PM, by GREENEYESKIGIRL

    I joined a few years ago and didn't make much progress. So I thought I'd come here today and share some things I've learned....though very few. ... Read more

  • Finally Will Be Back Online Tomorrow

    11/8/2016 12:31:24 AM, by TAMMYD45

    Oh my everyone. I am so sorry for the long delay in posting. Anywho, I am on tonight to let you know that I will have full internet tomo... Read more

  • Step away from the coffee cake!

    7/21/2016 1:18:26 PM, by RUNNERGIRLUSA78

    Today's work meeting was essentially the same as every other monthly staff meeting. My boss bringing in tons of sugary sweets for the staff inclu... Read more

  • "Have a blessed day"

    7/2/2016 3:29:52 AM, by ANDILH

    Today I was shopping at Target, picked up meds at the pharmacy and was checking out when the cashier told me to have a blessed day. I responded ... Read more

  • A solution in search of a problem?

    6/3/2016 12:11:11 AM, by ANDILH

    Recently the county commission in the county where I live has decided that if you want to use the plastic bags that grocery stores currently prov... Read more

  • Until you've walked the mile

    5/18/2016 9:00:45 PM, by ANDILH

    Recently a mother was convicted of manslaughter for killing her severely disabled daughter upon the news that the mother could die any day. She ... Read more

  • Back on SP... So Now What?

    5/5/2016 11:10:59 PM, by AMBERWAS117KGS

    For most people, it would be setting up meal plans and jumping straight into goals. I jumped straight into SP last time.... but I had already sta... Read more

  • Frustrations and Fights

    4/18/2016 2:25:52 PM, by ANDILH

    Every day I wake up in pain. Every single day. It's a fight to get out of bed. Some days I can't get out of bed until I take something to help... Read more

  • Challenge blog

    3/20/2016 4:19:12 PM, by KRYSDOWNEY

    Doing a month challenge on here. Today is blog about what I've been doing. I've been tracking calories on my phone with the app MyfitnessPal. I'm... Read more

  • Ow

    3/10/2016 9:16:47 PM, by SCREAMINGTA

    So, today I had a tooth yanked out. it wass gross, messy, painful etc, and now i have a huge hole ibn my mouth. this... is not a good thing... Read more

  • ugh

    2/24/2016 4:30:53 AM, by SCREAMINGTA

    It is cold and my uterus hates me so I am officially declaring today a rest day. Back to the saddle tomorrow... Read more

  • Sleep eludes

    2/20/2016 3:28:19 AM, by SCREAMINGTA

    It is 8.30 am for me and I am wide awake. This is bad because I am supposed to be at work for a 12 hour shift at 8 pm today. I find it if neede... Read more

  • nights, nights and more nights...

    2/12/2016 11:17:11 PM, by SCREAMINGTA

    I am going to be spending the next 10 weeks working nights. Next weekend, I will miss a gig I really wish I could go to because I get to work the... Read more

  • Ow

    2/11/2016 6:39:51 PM, by SCREAMINGTA

    Today I caught my hair in a resistance band. Do not recommend. Feels like I gave myself an involuntary undercut!... Read more

  • I hate my back

    2/10/2016 5:49:01 AM, by SCREAMINGTA

    My back has been exceptionally sore today so I don't think I can manage any fitness on top of the things I have to do in the house. Right now bre... Read more

  • The final 45.

    2/9/2016 2:56:51 AM, by SNOWTGRR

    Well I'm down to 185 pounds. I feel better, happier and just can't wait to get to my 140. Then I'll have some more plastic surgery. This time ... Read more

  • Sometimes self destruction can't be stopped

    1/31/2016 1:54:29 AM, by ANDILH

    I don't think there is anything harder than watching someone you love destroy themselves for any reason. I'm not self destructing. But someone ... Read more

  • Curiosity isn't always bad

    1/20/2016 9:39:15 PM, by ANDILH

    Last year I was diagnosed with a fairly rare connective tissue disorder that can affect many different parts of the body. Since then I have disc... Read more

  • Not the jump start I wanted

    1/11/2016 9:32:41 AM, by ANDILH

    So I've been working hard on getting things back together. I'd stopped my more intense workouts because of pain and let my eating habits slide. ... Read more

  • Long Time No See :)

    12/29/2015 5:26:15 PM, by TAMMYD45

    Stopping in to post to my blog and some of my teams. Part of the reason that I was absent is that I was without unlimited internet and was depend... Read more

  • All things end eventually

    10/28/2015 10:32:18 PM, by ANDILH

    I have never been all that close to my brother. Because of our family circumstances I had to take on a caregiving/boss type role very early. He... Read more

  • Almost 2 weeks in...

    8/15/2015 9:47:06 PM, by JAYNESADDICTION

    My first 2 weeks are almost over. I am really proud of how I have been doing. Today was my nephews going away cookout for his leaving for college... Read more

  • Day 9...

    8/12/2015 3:23:18 PM, by JAYNESADDICTION

    This is day 9 of my lifestyle change. I feel like it's going well. I still haven't told anyone that I'm doing it. I'm just going to keep it to... Read more

  • 1st week weigh in...

    8/10/2015 10:32:19 AM, by JAYNESADDICTION

    I feel off plan this weekend but tried not to fall off too hard. LOL. I had to work on Saturday morning and ended up working longer than I h... Read more

  • It's going well...

    8/7/2015 12:22:45 PM, by JAYNESADDICTION

    So far so good. I haven't cheated at all. I'm pretty proud of myself. I'm not actually telling my friends or family that I am back on my Nutri... Read more

  • Starting over

    8/4/2015 8:38:49 PM, by JAYNESADDICTION

    I am starting over. Time to get healthier. In February, I almost died when my pulmonary artery got clogged with blood clots. I also had multiple ... Read more

  • Trying to make a decision

    6/18/2015 11:08:22 PM, by ANDILH

    Recently I have been put in a position where I need to make a decision. This decision would benefit no one but me. I rarely make decisions that... Read more

  • Overwhelmed with party planning

    5/27/2015 5:04:26 PM, by ANDILH

    On Sunday I'm hosting a surprise 60th birthday party for my favorite aunt. She is a widow with no children of her own, so she has always doted o... Read more

  • 30 days of small changes day 9 holding pattern

    5/27/2015 7:29:39 AM, by TBIRDANNI

    I think that this is as good a place as any to pause and assume a holding pattern for a little while as there are now a couple of targets for me ... Read more

  • an unexpectedly early day 9 entry

    5/23/2015 12:04:39 PM, by TBIRDANNI

    I'm meant to be in a field, enjoying sunshine and friendship today, sleeping in my brand new tent tonight and doing it all again tomorrow. Alas,... Read more

  • 30 days of small changes day 8

    5/21/2015 4:00:54 PM, by TBIRDANNI

    Watching what I drink I'm not a big full sugar soda drinker (although I did buy full sugar Pepsi for our weekend away this weekend) and I mo... Read more

  • 30 days of small changes day 7

    5/20/2015 3:42:12 PM, by TBIRDANNI

    Sleep Sleep is something I struggle with. It's been a bit better since Hubs got his CPAP machine, in fact, I miss that reassuring Darth Vad... Read more

  • 30 days of small changes day 6

    5/19/2015 9:59:46 AM, by TBIRDANNI

    Me time All good on this one! I went through a pain management course last year and they stressed this a lot (along with pacing.... ) and i... Read more

  • 30 days of small changes day 5

    5/18/2015 10:50:19 AM, by TBIRDANNI

    Taking a stand.. This is a challenge for those of us with dodgy joints, and those of us with fatigue type conditions. Those, like my daught... Read more

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