So I started out the day feeling a little better, but woke before my alarm, that is okay, I normally do that anyway. But, even though my injections for my migraines was only about a month ago and I should have at the very least another month migraine free, I have had a slowly worsening one since after I wrote my morning blog. I think I had a mild one yesterday, but I wasn't sure till today, because I didn't think it was possible. We went out to dinner, and I had such a sudden shooting pain I could hardly think. Everything hurt, made my whole body super sensitive. Had to close my eyes and lower my head, grabbing the side that was hurting and trying to tell my DD to just give me a minute, I'd be fine. But honestly, I don't feel fine. I feel awful. I'm probably going to go to bed as soon as I'm done with this, after a short shower and time for my food to settle enough to make room for me to take my night meds and vitamins (super small stomach, so can't fit all that in at once!).
And I'm having all kinds of other weird symptoms with it. I won't go into detail, but DH has had me writing them down as they happen all day. Or as I think of them. My brain does not work very well when I'm like this, and it is very difficult to type as well. Basically we are going in to see my doctor for documentation and so that they can hopefully order the test DH wants done and to see if they can slap an asap on that referral to a new neurologist. I've had these symptoms off and on for quite a while now, but my neurologist brushed them off, so what could I do?
I'm going to have a cup of coffee. I know that sounds counterproductive to sleep, but sometimes caffeine can help a migraine. And it will warm me up, for some reason, I'm freezing.
I was going to try a symptom checker online to see what might be the cause (cause I already know what the worst case scenario is and I'd like to find an alternative to that...) but I don't even know how to describe some of the things that are going on in a way that a symptom checker would understand or be able to compute. I tried explaining it to a friend, and to my husband, but a few of the things going on are just weird and I don't know how to explain to someone else. Hopefully the doctor, or at least the neurologist will understand. I described one of the things to Aunt G, and she typed what I told her in a text to her friend that has epilepsy, and her friend said that for her that is usually a precursor to a grand mal. But I've only ever had one of those, and I can't remember if I was having this symptom that night or not.
So I have an ever growing list of symptoms, and DH is going to be insistent on getting me an MRI with contrast (one I had almost a year ago in the ER was without contrast and showed nothing abnormal, but for what he is worried about, you'd need the contrast to see it). He was talking about getting some other test done too. I don't know. I just want to be feeling good enough to work out and do housework and get my kids back into a routine before school starts.
Oh, and the author I was talking about called me. She was wonderful to talk to, you could really tell her experience with working with dogs. She basically said that for now I should not think about service dog stuff and just get to know my dog better, build a stronger relationship with her, and work on her confidence. She gave me some tips. But she basically deflated my hopes of owner training my dog as a service dog though. She said most of the things I wanted her to be able to do were very complex and with me having no experience would be very difficult. I want to work with a trainer, but am having no luck finding one that works with positive training. She did suggest that once Hope feels better about going out, taking some basic obedience classes for her to get out and socialize and us to fine tune her basics and then maybe some agility work to help us work better together as a team. And after a year, then see how she responds to possible task work. She said that Hope is basically too young to begin that kind of training, and while she may be picking up on things from me and trying to figure out how to help me, to just do the bet we could until Hope is mature enough for that kind of training. I'm a little disappointed that she didn't have some words of wisdom that would make this into easier training, but she did have lots of words of wisdom on how to help Hope, so that is my main goal. She is part of the family and I'd never give her up. So for now, my concentration is on getting Hope to a point where she can go for walks in the park or neighborhood or hiking and camping with us.
Hope you have a good evening and night, and please keep me in your prayers as we try to work with the doctors to see what is going on with me.