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Normal blood work... finally!

Wednesday, September 19, 2018

I was sick from the last few days of July through to the beginning of September. So, basically the entire month of August, I was miserable and cranky, and symptomatic. (And I still have occasional relapses, ugh). As a result, I lost my appetite. Unfortunately, most of the medication I am on is calibrated based on my weight and normal food intake. I dropped a significant amount of weight, and my eating patterns changed abruptly, disrupting my medication dosing schedules. But when I informed my doctors of this fact they adopted a wait and see position, and it wasn’t until they had verification in the form of two rounds of wonky blood work that they started adjusting my medication. I don’t get it. I know what’s going on with my body better than anyone else, but they have to have proof, and proof again before they will accept what I have to say as truth. Ugh. Instead of going for blood work every week (at one point it was every two days), for a month, they could have adjusted the dose, and it would have resolved in a week or two... saving everyone time, effort, and of course (the big one), money! Oh well, moot point now. My blood work is finally back to normal as of this mornings blood draw. Of course, I have to get rechecked in one week to make sure it maintained its normal level. If it did... I get to go back to once a month! I am on a blood thinner (among other things) because of a history of pulmonary embolism and stroke, due to a clotting disorder... so it is for life, but I really don’t mind, because it keeps me alive and functional. I just tend to moan about it, in part because of the huge, dark bruises I get when they draw my blood... very dramatic! No hiding them. It also means that I have a visual reminder, to prompt me to moan and whinge... lol... I am still trying to regain my appetite after being sick. I am having to set an alarm on my phone to remind me to eat, or I just forget. I am just not hungry. Nothing really tickles my fancy. I almost miss the days of cravings. I have very little ambition to cook, so I am sticking to simple, cold salads for the most part. I try to make them visually interesting with intriguing flavor profiles, but still nothing really appeals. I eat interesting food, but I could just as easily eat a bowl of canned soup... meh... I figure if I just keep doing what I am doing, eating interesting food at regular intervals, then eventually my appetite will return. It has to, right? I have always enjoyed food. Sometimes to excess, as evidenced by the fact that I used to be morbidly obese. So this total disinterest in what I am eating feels weird/wrong. I have sensory memories of liking a particular food, but then when I go to eat it, it does not taste nearly as good as my memory of it says it did... Except for Christmas rice pudding... that tastes just like I remember... just as addictive too! (It’s basically just milk-cooked rice and real whipped cream!) I cannot subsist on rice and whipped cream though! lol Okay whining finished... My silver lining for today? The weather is changing this week. Fall is arriving, with cooler temperatures, colorful foliage, and all things apple and Concord grape (we are a big Concord grape producing region, in fact my parents used to have a vineyard).
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  • _CYNDY55_
    emoticon emoticon
    179 days ago
    emoticon Chandra on the results!! I got my AC 1 last night and it's 5.2!! We've both have well!!

    Hopefully, your appetite will return soon
    179 days ago
    Why don’t the PCPs listen to their patients? Grrr - used to drive me crazy as an ER nurse. (OK, there were some patients that would wash their meds down with beer, because “beer isn’t really alcohol”. Humph)

    Hope they get everything balanced again for you, & your appetite comes back to normal. I keep recording all of my foods, but I keep coming short on protein for the last couple of weeks. Frustrating. I’ve actually been eating some jerky to get at least my minimum.
    180 days ago
    The way you are going with your food and appetite, it will eventually return. I have gone through similar journey for different reasons and eventually my body started to crave food, things started to taste good and I was able to eat without having to use an alarm system. You will get there, it takes time. You have a good plan in place. I'm glad your blood work is normal!!
    180 days ago
  • KATIE5668
    wonderful news...I know you will be doing a happy dance if those results come back as you hope!
    My DIL had a heart attack and we were at the doctor so often during that follow up stage that I was almost tempted to get an townhouse in town...ALMOST!!
    She too has been on blood thinner and she also has been whining about bleeding and bruising..understandable..who wants to go around looking like you just came out of a dog fight!

    Keep doing what you need to do. I hope the appitite situation clears up. Since I lost Jim..my urge to cook and to eat healthy went to the cellar. I seriously thought about just getting boxed microwave meals as they have to be healthier than junk food, and I was eating a lot of that! But slowly am getting me straightened up.
    We all have our challenges and you are doing a great job of dealing with yours,
    whine away...that's what our broad shoulders are for!!

    180 days ago
    Ah, what a miracle to finally be back to healthy numbers with the bloodwork again!

    This loss of appetite is probably related to this illness, but sounds like a loss. Grateful that you are mindful enough about your self care to set a timer while your appetite is hibernating.

    All blessings on your health, beloved!
    181 days ago
  • BJAEGER307
    Glad you are on the road to recovery, and you are starting to feel better. Felt bad for you being sick for so long. Take care and take care of that Cooper dog. emoticon
    181 days ago

    Comment edited on: 9/19/2018 1:53:47 PM
    So happy things are finally looking up for you! emoticon
    181 days ago
    Yea, your blood work is normal. Enjoy that you don't have much of an appetite, just eat healthy and keep on stepping. emoticon
    181 days ago
  • MBPP50
    So very glad that your blood work is finally normal! I hope you get your appetite back to normal. emoticon
    181 days ago
    Girl, I am thrilled your blood work came back normal! That's great! I wish Drs. would listen to what we say. I feel WE are the most important part of the health care team!!

    Yes, keep striving to eat, even w/the reminders. As you go along feeling better, I bet the appetite will return.

    Fighting w/myself on the same issue! Had my left knee replaced Wednesday last week. Appetite is way off, but know I have to have protein for healing. So, just doing it.

    181 days ago
    Glad to hear your blood work results are back to a normal range. Maybe the change of seasons will help you regain your appetite.
    181 days ago
    This is the reason for Ensure. It has been a godsend to people who would otherwise not eat.
    181 days ago
  • LOF7203
    I hope everything gets better soon
    181 days ago
    So glad your health is getting back to normal !
    181 days ago
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