Holy moly it has been a long time since I have posted. I will strive to spark it up and type with my non dominant hand. Does that burn extra calories??
Please call me the One Armed Wonder right now since I am going on three weeks of having a specialized hand/arm surgery on my right hand. Doing everything -yes everything- has been an adventure since I am right handed. Doc said that we won't know if the surgery was successful for about 3 months.
The goal is to dramatically increase circulation to my hand, and hopefully gain more movement. My body is like a tree, and my branches [hands and feet] have been withering away for some years now. I'm determined to do all I can to keep them, wrinkly leaves and all. Hee
One of my chronic pain doctors made the mistake of telling me about this rare surgery 3 years ago. Since then I have been poking, prodding, and emailing that doctor to find out if I was a candidate. Poor guy.
At first the hand surgeon didn't want to do the surgery since it had never been performed on someone with my specific disease and other conditions. My reply to that was, "wouldn't you like to be the first doctor to do this surgery on someone with EM?" : ) I had to agree to see additional doctors for their opinion of the surgery first. Stressful, but successful!
Recovery has been painful. I still have all of my stitches but I am already able to move all of my fingers. Hurrah! I've downsized from a cast to a splint. And I've decided that my splint looks like a giant rice paddle, don't you think?
I have already made a promise to myself that I will not actually use this rice paddle to feed my face, ha!
If you need a good appetite suppressant for the day, look up the surgery online: Digital Sympathectomy surgery. Icky yet amazingly interesting.
Of course the simple day to day actions have been challenging. I've been eating with a dish towel covering my torso since feeding myself with my left hand makes me feel like a messy baby. Arg! Then there is the vanity side of myself [who knew that that still existed?]. I should just start playing circus music in the bathroom while I attempt to shower with one arm wrapped up with a garbage bag, or color in my eyebrows with my left hand. I have looked either very surprised or extremely angry so often lately with my failed attempts with that brow pencil :-)
But I am still very excited and encouraged to see the final result of this surgery. If the circulation is increased, then my hand will hopefully work a bit better for a while. Then I will get the surgery on my left hand. My next project will be to try and find a specialist who does this surgery on feet. I can be annoyingly persistent, so I will start the hunt soon.
To my Spark friends who have been so supportive and encouraging throughout this time, I wanted to say thank you and cover you all with big fuzzy hugs. The jokes, goodies and words of encouragement have been so valuable and to me over this past year. You guys are gems! I hope that I can be there for you during challenging times as well.
Wanted to share a picture that made me squeal out loud a few days ago. I was so proud of myself for getting my eyebrows on correctly, and wanted to text a 'howdy' photo to my husband at work. Pretty sure that I busted my cat behind me, plotting my murder. Ha ha ha!
I am off to my first session of physical therapy. My goal is to ditch the dishtowel, lift a hand weight for some bicep curls soon, and get back some of my boogie :-).