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Saturday, December 10, 2016

For the last two weeks I have had to tell myself stop stressing and let go. There is only so much you can control. I am a bit calmer now, but the end to 2016 has been a doozy.

We went to Rochester and met with a specialist. I left there with more questions then answers, but the answers I received were great. Since birth my son has had a rash, that at least four doctors said was exzcema (sp?), it turns out he is allergic to milk and appears to have some immunity issue. He is also going to be starting sleep meds today, prayers please that they work. We need sleep so bad around here.

We were so broken after talking to the doctor, he has gone from having mild autism to moderate/severe. They were even talking about a home when he is older (over my dead body). The lack of sleep did not help either (darling boy stayed up the whole night) but we took the kids to the Strong Children's Museum and it just reminded us what family really means. Staying in the moment and having a great time with one another.

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  • no profile photo CD16902173
    Bless you - stay strong! I remember spending the first 5 years of my daughter's life desperate for a diagnosis or at least some answers to my questions and I felt so frustrated when all the doctors could say was "yeah...something isn't quite right but... not sure what it is..". When we finally got a good solid diagnosis I just felt relieved (even though it was not exactly what we were hoping for.)
    1336 days ago
    Beautiful family. God blessed you. 😀
    1336 days ago
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