Trying to cope
Tuesday, April 05, 2016
Thank you everyone who posted on my last blog. Really means a lot and feels good to share whats going on with you all.
My husband has told a few people of his terminal disease (huntingtons) but as of now, our children dont know he has it yet.
We are trying to find the right words for them, and the right timing. Trying to preserve some of their childhood before symptoms become more obvious.
We had a talk about the disease last night with them, about how it runs in their dads family.
Our 8 year old son asked if he could have the disease. I hated that my answer wasn't "no". Just trying to be honest with them.
My husband is getting medically retired out of the military. His symptoms are making it harder for him to do his job. He has begun having tremors in his hands, which is not good when you are dental.
He has/had many mental symptoms for some time. I wonder if I was in denial or just scared to not "know" earlier?
I knew he had it about 6 months before he got tested. He is becoming paranoid, depressed, his anger as gotten really bad, anxiety and losing some logic.
My kids have asked me about why dad takes meds and my oldest has noticed his anger and other issues. We will not be able to hide this from him for long.
We are moving from Alaska to Kentucky.
I love Alaska, but it is too expensive to live and they do not have any type of specialist for my husband or support groups.
Kentucky has all that plus, it has my husbands family.
My husband told me he wants to be around his brother, who also has the disease, and his mother, who probably only has a year or so left.
So off to Kentucky we go, this summer.
My whole life has totally been flipped upside down.
Trying not to stress about selling the house, moving across the country, and dealing with everything else.
Trying to find time for myself. Getting healthy isn't just for me anymore. I am going too need to be there as the caregiver for my husband, and possibly my children as well now.
God, please give me strength!
Selena, muster up some motivation during this time of grief and take care of yourself.
You can do it! do it!