fresh produce, kid surgery & art
Tuesday, January 19, 2016
I have a 12 yr old daughter with lung disease & heart disease. Her birth mom was a drug addict. We have adopted her and she's been with us since birth so it's been an ongoing journey of joy and struggles, as parenting any child is. Its just the swings are pretty intense with this one at times. We adopted 2 others with serious challenges, they are now 21 and 31. I also have a 41 yr. old estranged birth son...I'm good with that, he's not a very kind person. Anyway...this 12 yr old isn't supposed to be alive, isn't supposed to keep living, but she beats the odds over and over and over. She is incredibly strong and courageous and joy dances freely in her. She has CP, but she fought to walk, then run, then dance! She still gets leg splints and trembles and falls but she doesn't give up. I could write reams on how incredible she is and how she struggles with dozens of challenges that any one of could easily overwhelm and crash anyone. Her 10th heart surgery is any day. Every surgery we have a pretty good chance of losing her, one identical surgery they said she had a 75% chance of not making it. She is truly a miracle. Living with a miracle helps keep your priorities in place. These surgeries are brutal on all of us. She's a pretty good sport. She said she looks on the bright side: unlimited cable tv, a great menu, calm music video, & the assurance that medical folk will take care of stuff while she is there (she worries a lot about the medical stuff...with reason). I try to stay positive too. I'm thankful we have insurance (thank you Obama-her preexisting conditions would have maxed and kicked her out), good doctors, a great support system, cardiac technology that keeps improving...I'm thankful every day for just existing. I feel I live in paradise. So I'm trying to stay positive and be healthy through this surgery. I tend to overeat around them. I can't promise perfection, but I'm aiming for healthier.
In addition to surgery any day, we have an art & poetry show Feb 1st! We are producing art and poetry daily for this show, we are aiming for all new stuff, it's my partner - Susan - and I. Lexi, the 12 yr old is contributing also. It's been a fun journey to put art in forefront of daily activities. I'm eating less, and better.
More fresh produce is now on my plate every day! The quick start goal has my pattern changed. Now to check off that box & get streak credit! it's hard to give computer time for this stuff when I have art to do!!! Must go write a poem...must read it in 40 minutes!!!