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Thursday, November 05, 2015

We all are still hanging in there. It seems like the week between chemo s are his best time!

But, wouldn't you know both weeks of Thanksgiving Giving and the week of Christmas are both Chemo weeks,! Thanksgiving Day is when he gets the pump take out. And, that is Thanksgiving at our DAUGHTER 2. AND, Christmas eve day he gets the pump out. Christmas day we can have our usual get together as we have that and he can lay down.

We have the schedule up through mid March!

I am going to get in touch with the NURSE NAVIGATOR extra week unknown to
Joh i strongly feel they aren't telling us everything. They ha E never told us about the END STAGE RENAL DEASE. THEY ARE ALL Stage 3 and on the print outs I believe his Dad and I deserve to know everything they know. What they ha E told us, isn't good!

we go see him every day.

We are wondering if we are going to be left high and dry with the care. Example. Tomorrow is the x for the nurse to come! Hubby has a dr. Appt. This Afternoon. So John calls and the appliance is leaking! So, hubby had to drop everything and go and replace it! I'm sorry to say, with Mt disappointed I lit I am unable.
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  • ERIN1957
    Sending prayers Janet. My blessing to you all. Hugs, Erin
    1730 days ago
    1731 days ago
    Prayers and hugs
    1732 days ago
  • no profile photo CD15212119
    My brother had two different cancers and only 4-6 months to live, over 3 years ago. I know how stressful it is. I prayed a lot and cried a lot. He went through 2 different types of chemo therapies just months apart beginning one as soon as the other was finished. Doctors perform miracles these days. I pray for healing for your family.
    1732 days ago
    John may not want to hear the details, but you do. Talk to the docs when he is not present.
    1732 days ago
    I'm sorry you have to deal with this. I pray you can find good help soon, and get the answers you need. emoticon
    1732 days ago
  • PURPLE0906
    I am sure they are not telling you everything. Hope you get some answers.

    emoticon emoticon
    1733 days ago
    OH my gosh, talk w/your health care provider for sure. Yes, you deserve the details, whatever they are!
    1733 days ago
  • no profile photo CD1951302
    It would be important to know for sure if they have plans to help you all later or not, so you know if you will be left with the entire care or if they have more help lined up.
    1733 days ago
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