MOM2ACAT

SparkPoints
 

This weeks appointment, and fighting fatigue

Friday, July 31, 2015

I feel like I have neglected my Spark friends and teams this week; it's been a tough week with my fatigue issues, mostly due to inadequate sleep, for various reasons. I'm not looking for any tips or advice on getting good sleep though, I've tried just about all of them this week. I just have to work through these issues on my own. Last night though, I was finally able to get a halfway decent night of sleep. Today is the first day of this week that I feel like finally have the minimum amount of energy to get through the day. But up until today, I haven't felt much like sitting in front of the computer for more than a few minutes at a time, which is why I haven't been as active on Spark this week.

The weather didn't help with how I felt most of the week either, with the heat and humidity. I have air conditioning, but on the days that I had to be out of the house, going from cool air, out into the heat, and back into the cool air again so much of the time triggered a few headaches. It's in the low 80's here today, and windy, but it feels so much cooler than earlier in the week with the humidity gone. The down side is that we are very dry here, we are badly in need of rain, and fire danger for most of the state is very high.

Anyhow, I had my appointment at the cancer center yesterday, but I did not see my oncologist. I received a call about 2 1/2 hours before my appointment and was told he was not there because he was sick, so I could either reschedule, or see the nurse practitioner. Since I already had my ride lined up, and I was at that time all dressed and ready to go, I decided to go and see the NP.

The NP I saw was Sunday; I like both of the NPs there, but I was glad it was her this time, since she was the one first talked to about stopping the Ibrance. My appointment with her went well; she actually took more time with me than my oncologist usually does, especially when it came to explaining my lab work. She said she did talk to him though, and he totally understands me wanting to stop the Ibrance. Even though I was excited about my platelets and low blood counts going up, my oncologist wasn't so much; I mean, both of them said it was good that the numbers are going up instead of down, but they are still down much lower than they should be, and need to be kept an eye on. And even if I did want to go back on the Ibrance (which I DON"T and I WON'T), I would have needed a lot longer than that 7 day break from it which was the original plan, because the counts are so low.

Some of my liver enzymes are abnormal, but I was told that is probably from the Ibrance yet, and probably not the cancer itself. Still, my tumor markers are increasing so that means that the cancer is still active right now. We discussed more my stopping treatment, and I still feel at peace with my decision to stop.

My next oncologist appointment is August 21st, and this time, it's the same day as my Halotestin injection, so that means just one trip instead of two to the cancer center next month! I still have my share of appointments though; next week I see my internist, and the following week, I go to the pain clinic. And on Mondays, I'll have my standing order lab work to do.
Share This Post With Others
Member Comments About This Blog Post
  • JANET552
    I'm glad your appointment went well and I hope the sleep issue improves more.

    We need rain here in Wisconsin too. Whenever rain is predicted, it seems to just fall apart by the time it gets to us.
    1807 days ago
  • OPALMOON
    Dear Shari,
    I understand the effects of fatigue and sleep problems, and the issue of not being able to be at a computer or focus on anything much....I'm writing this after a night without any sleep due to pain and IBS-tyoe issues (no reason for the latter to occur, but it happened all the same). The changing air pressure tends to trigger headaches for me as well, so I very much hope the weather settles over there and you get some respite from this, and the fatigue, and that you get a better run of good night's sleep.
    I'm glad your appointment with the NP went well and she took time to go over things with you. I totally agree that if a treatment/medication causes issues that are too much to cope with or aren't tolerated by a sensitive system, it's a wise choice to opt out of it.
    I hope your blood counts improve and your liver enzymes settle down.
    It's great that you have one trip to the cancer centre instead of two in August. I know that appointments take up a lot of 'spoons', and the other appointments still take up a fair amount of energy.
    Take care my dear friend - sending prayers for everything to improve for you.
    Love and lots of gentle hugs,
    Nattacia

    emoticon emoticon emoticon
    1807 days ago
  • FLRED12
    emoticon
    1808 days ago
  • TEXASTITCHER
    Peace in making decisions, even very hard ones, is the best thing that can happen. Take care of yourself.
    1808 days ago
  • NANA2JONEMIMAT
    emoticon
    1808 days ago
  • JUDITH316
    Hi Shari, I'm glad you were able to have the appointment with your NP, she sounds very supportive. Sorry you are having so many issues with fatigue and sleeping. Hoping for a good outcome for your August 21st appointment and trusting your blood levels and platelets will continue to increase and the fatigue and sleeping will improve...My prayers are with you always... emoticon emoticon
    1808 days ago
  • LUCYCAN7
    Understand your feelings Shari,keeping you in my prayers! emoticon emoticon emoticon
    1809 days ago
  • JANIEWWJD
    I am very happy to hear from you! I will continue praying for your well being! God bless you!
    1809 days ago
  • CRUISEGAL55
    Shari, I am glad you checked in with us. I'm always sending prayers for you. Tonight is a Blue Moon. If the sky is clear, I will get a pic for you & post it tomorrow. I will go outside tonight, I'll send prayers for you under the Blue Moon. (Added positive energy)
    emoticon emoticon emoticon emoticon
    1809 days ago
  • SENIORSAXLADY
    Hi Shari. It was good to hear from you once agin. Prayers are continuing for continued peace and good night's rest. I'm alos praying for more energy for you. emoticon emoticon
    1809 days ago
  • YELLOW09RED
    emoticon for your peace.
    Hugs and God bless you.
    Have a nice night.
    Debbie
    1809 days ago
  • MEWHENRYSMAMA
    Thoughts and prayers continue for good days, restful nights and cooler weather!
    Love & Hugs,
    Mary
    1809 days ago
  • ICECUB
    emoticon
    1809 days ago
  • no profile photo CD14908548
    Shari, I donated the luminary today in your honor. What it will say is "She's fighting to the end". Our Relay is next Friday and Saturday. I am actually going to stay overnight this time, if not in the tent then I'll sleep in my car. I have a tough time getting up from a very low position. If I do sleep in the tent, someone will have to help me up! I will be sure to have my camera.

    I wish you the best Shari. You are a emoticon . Keep your eyes on the prize! Love you.

    RYDERSAUNT14
    (Tammy Vaughn)
    1809 days ago
  • PICKIE98
    Your staff is very well trained and innovative. They are respectful, helpful and know what to offer you if other treatments do not work as planned.

    I am sorry you are having sleep issues,, I wish I could get somebody to sing you lullabies, or toss sheep over a fence for you..
    We got a heck of a rain blast two days ago and things are a bit greener here.. nothing since then, but there is a black cloud hovering over my house,,only my house.. wish it would cry on my lawn!!

    Today was not bad e=outdoors. if yo do not go out in the sun..
    1809 days ago
  • CELLOPLAYER1
    emoticon
    1809 days ago
  • no profile photo CD4212235
    Prayer you are able to rest and relax better today.

    emoticon emoticon emoticon emoticon
    1809 days ago
  • PIMPINELLAN50
    emoticon emoticon
    1809 days ago
  • BETHGILLIGAN
    emoticon
    1809 days ago
  • BLACKIE2
    emoticon
    1809 days ago
  • PHOENIX1949
    emoticon emoticon
    1809 days ago
  • SLIMMERJESSE
    There is nothing like a decent night's sleep. Hope you can get more of those. I've been having a bit of turbulence as I wake up to get a drink or use bathroom, and then have trouble falling back. Big hug, Shari.
    1809 days ago
  • SPINNER86
    My prayers are with you for a good outcome. Peace.
    1809 days ago
  • Add Your Comment to the Blog Post

    Log in to post a comment


    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.