This weeks appointment, and fighting fatigue
Friday, July 31, 2015
I feel like I have neglected my Spark friends and teams this week; it's been a tough week with my fatigue issues, mostly due to inadequate sleep, for various reasons. I'm not looking for any tips or advice on getting good sleep though, I've tried just about all of them this week. I just have to work through these issues on my own. Last night though, I was finally able to get a halfway decent night of sleep. Today is the first day of this week that I feel like finally have the minimum amount of energy to get through the day. But up until today, I haven't felt much like sitting in front of the computer for more than a few minutes at a time, which is why I haven't been as active on Spark this week.
The weather didn't help with how I felt most of the week either, with the heat and humidity. I have air conditioning, but on the days that I had to be out of the house, going from cool air, out into the heat, and back into the cool air again so much of the time triggered a few headaches. It's in the low 80's here today, and windy, but it feels so much cooler than earlier in the week with the humidity gone. The down side is that we are very dry here, we are badly in need of rain, and fire danger for most of the state is very high.
Anyhow, I had my appointment at the cancer center yesterday, but I did not see my oncologist. I received a call about 2 1/2 hours before my appointment and was told he was not there because he was sick, so I could either reschedule, or see the nurse practitioner. Since I already had my ride lined up, and I was at that time all dressed and ready to go, I decided to go and see the NP.
The NP I saw was Sunday; I like both of the NPs there, but I was glad it was her this time, since she was the one first talked to about stopping the Ibrance. My appointment with her went well; she actually took more time with me than my oncologist usually does, especially when it came to explaining my lab work. She said she did talk to him though, and he totally understands me wanting to stop the Ibrance. Even though I was excited about my platelets and low blood counts going up, my oncologist wasn't so much; I mean, both of them said it was good that the numbers are going up instead of down, but they are still down much lower than they should be, and need to be kept an eye on. And even if I did want to go back on the Ibrance (which I DON"T and I WON'T), I would have needed a lot longer than that 7 day break from it which was the original plan, because the counts are so low.
Some of my liver enzymes are abnormal, but I was told that is probably from the Ibrance yet, and probably not the cancer itself. Still, my tumor markers are increasing so that means that the cancer is still active right now. We discussed more my stopping treatment, and I still feel at peace with my decision to stop.
My next oncologist appointment is August 21st, and this time, it's the same day as my Halotestin injection, so that means just one trip instead of two to the cancer center next month! I still have my share of appointments though; next week I see my internist, and the following week, I go to the pain clinic. And on Mondays, I'll have my standing order lab work to do.