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Good days along with the bad

Thursday, July 23, 2015

Because of the damage to my bones and nerves from the cancer and the treatments, I am always in some degree of pain. On a good day, it's mild aches and pains, but yesterday was one of the bad days, especially with my left hip (which is my "bad" one) and leg. Even with my pain pills, it was still a rough day.

I also started feeling nauseous late in the afternoon; not sure what brought it on, but at 4pm I took my nausea med. It makes me sleepy, so I ended up going to bed at 6:30pm. I woke up again at 10pm, feeling a little better, and then stayed up another hour to read. Got up at 7am this morning.

Today has been much better! Having a day like yesterday makes me appreciate days like today, and on the bad days, knowing that I have the possibility of the next day being a good one, helps me get through those.

The nausea is all gone today, so at least I know it wasn't a stomach bug starting. I'm thinking that even though I've been off the Ibrance for over a week now, maybe it hasn't all worked it's way out of my system yet. Pain levels are much improved too.

I took the Dial a Ride bus to do my shopping, taking along my 2 large shopping bags that are made of recycled bottles, they are about 14x16 inches, nice and sturdy. I won them by entering sweepstakes on the Earthbound Organics website a couple of times. Anyway, when I need to take the bus to shop, I only buy what will fit into those 2 bags.

Not many people were using the bus today, and both going to the store and coming home I was the only passenger. On the bus going home, there was a new driver. The driver that was training him very kindly took my bags and carried them onto the bus for me, and carried them off the bus when I got back home, I didn't even have to ask. I guess he could tell I was struggling a bit as they were a little heavy today and I use a cane also. I was only gone from my house an hour and 20 minutes, which is not bad when taking the bus to get to and from the store.

Even though my legs were not hurting much today, they did feel a little shaky when I first got back home. I think that's just part of the toll that this disease has taken on my body, it's wearing out. But I think it's still good for me to walk when I can, as long I still can, as long as I don't overdo it.

I had a call from the cancer center this afternoon. My oncologist wanted to see me sooner than my August 5th appointment, so it was changed to July 30th. He's ok with me stopping the Ibrance, I think he just wants to make sure that I am really ok with it, and I'm sure he's concerned with the low platelet and low white blood counts too. They know my issues with finding transportation, and before they even called me about my changed appointment, the social worker already started working on finding a volunteer to drive me. I thought that was so awesome, especially knowing that I did not have to stress about trying to find a ride before that day. I've said it before, but I have to say again, the staff and volunteers there are AWESOME!

Now I have the next 3 days to just stay home and get things done at my own pace. The next time I have to go out is when I get my CBC checked again on Monday; hoping for those WBCs to be above 1.00.
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Member Comments About This Blog Post
  • JUDITH316
    Shari, indeed you are such an inspiration here, you encourage and cheer us on our journey in the midst of your own struggles and pain, you are so appreciated... Happy you were able to have a good night's sleep. So emoticon to hear about the nausea and pain but am glad you were able to take some meds which eventually helped you to sleep. It's great you are feeling better today, my prayers are with you as always...Have a great weekend and God Bless... emoticon emoticon
    1809 days ago
  • OPALMOON
    Dear Shari,
    I empathise with your tough days. Nausea can be so debilitating...thank goodness you were able to sleep it off and had a good night's sleep as well. It's very heartening to hear you had a good day afterwards, and managed to get your shopping done quite quickly, topped off with a very kind bus driver, bless him! So glad the people at the cancer centre take such good care of you. They may be awesome, but you are even more so! Praying that you have a good weekend, and many, many more good days.
    Love and hugs,
    Nattacia

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    1810 days ago
  • WENDIQ
    Shari,.....you are truly and inspiration with all your positiveness. So glad you were able to not only get your groceries, but that you had such a nice driver and student......good abounds in many places.....:) That act of kindness on the part of the old driver will impress the new driver.......Enjoy your home time and God Bless......Hugs, ((()))
    1810 days ago
  • CRUISEGAL55
    Shari, It always makes me a little sad to hear about your days of pain. I am glad you know exactly how to handle it. I'm glad the pain & nausea subsided & you got some sleep.
    I hope your weekend is good. Get those chair exercises in and maybe enjoy some outside time.
    Hugs & Prayers
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    1810 days ago
  • TEXASTITCHER
    You are an inspiration for me. Take care of yourself
    1810 days ago
  • BETHGILLIGAN
    So happy for those good days! The staff and volunteers do sound awesome! Hope you have more good days!
    1811 days ago
  • no profile photo CD4212235
    Sorry you had such a bad day yesterday. Like I have told you before, you are a very remarkable person. I admire your strength and courage. I am glad you have such wonderful people out there looking out for you. It truly makes a difference and you know what I am talking about.

    I hope you sleep well tonight and have relaxing day tomorrow.

    Sleep well my dear friend.

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    1811 days ago
  • PIMPINELLAN50
    You have an amazing inner strength Shari,and you always manage to find a silver- lining no matter what you endure.We could all learn a few lessons from you in humility and grace!
    Glad that you had a good day with the pain and nausea today. emoticon
    As always sending you hugs,prayers and love. emoticon emoticon emoticon
    ~Peace and Light.~
    Marianne.

    1811 days ago
  • YELLOW09RED
    God bless you Shari,
    Hugs for your night of rest. They are AWESOME to help you. Wow!
    Have a nice Friday.
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    Debbie
    1811 days ago
  • GABY1948
    Thankful for whatever relief you can get! Your strength in all this has been AMAZING. Blessings and wellness are my prayer for you!

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    1811 days ago
  • JANIEWWJD
    I'm so glad you had a better day, my friend! God bless you !!!
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    1811 days ago
  • LUCYCAN7
    So thankful to hear Shari the nausea left and you had a better day.Will keep
    you in my prayers that your WBC will be above the 1.00 Hugs,prayers and
    blessings.Praying you will have a peaceful weekend also! emoticon emoticon
    1811 days ago
  • ICECUB
    I HOPE YOUR TEST RESULTS WILL BE GOOD. YOU SEEM TO BE SURROUND ED BY GOOD KIND PEOPLE.
    1811 days ago
  • CELLOPLAYER1
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    1811 days ago
  • MEWHENRYSMAMA
    I am sorry you had a bad day...but so glad it balanced out with an improved one and a positive experience on the bus! Glad you can now relax with a long weekend!
    I think you handle things amazingly well, Shari! As I have said, you are a warrior!
    I am so glad you have such a great staff/volunteers to help you! What hospital is this through? It sure does make a difference!
    Keeping you in my thoughts and prayers for more good days!
    Hugs to you!

    1811 days ago
  • MISSM66
    glad you have a good day today and feeling much better,keeping you in my prayers, emoticon emoticon emoticon
    1811 days ago
  • SLIMMERJESSE
    Always wishing you good days of less/no pain. Having one less stress, like finding someone to drive you, is wonderful. Relax and rest these few days of no appts.
    1811 days ago
  • SENIORSAXLADY
    emoticon Glad you are feeling better today. I've said it before and i'm sure I will say it many more times..You emoticon are an lady. emoticon
    1811 days ago
  • PHOENIX1949
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    1811 days ago
  • PICKIE98
    You sure do have nice bus drivers! I think it is great that you went out and got your groceries today. Beautiful weather, breeze, sunshine.
    They will find a driver for you and that is great. Another friend to make!!

    Do you have your Rx's delivered? I know Kroger does it, but I have never used the service. I almost did once when we were both sick at the same time and could not get out of bed, but I waited until I felt better. They bring it right to your door!


    1811 days ago
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