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Getting "Grilled Cheese'd" in a Pannini Press

Friday, June 19, 2015

Have you ever heard that phrase before? Where you feel like you're getting squished, smashed, burned and charred - getting grilled cheese'd in the panini press! That describes how I feel right now.
Some of my wonderful spark friends have lovingly poked me to find out why I have been so quiet these past several days.

Thankfully I was released from hospital, but [as often happens with me], I had an allergic reaction to the drugs used in a nerve procedure done while I was in the hospital. This triggered lots of red bumps and one of my amped-up painful flares, but nothing too serious to keep me in The Joint any longer. So I went home. But hours later things got worse and worse.
Bubbling blisters. Swelling, rash, headaches, lesions. Gah! We took pics and sent them to my pain docs. Blisters getting larger by the hour.
"Don't do anything to rupture those blisters!" One of my doctor's stressed. I've been lying down with my legs over my head for days. And still things have worsened. I'd show you the pics, but you'd liked never speak to me again (ewe!!!).

When is it going to stop? Trying not to lose faith. I've been praying a lot, and crying a lot.

The hospital case manager pushed hard to get insurance approval for a home nurse to come help. This morning she will be coming by the clean these gross blister b@stards and do regular wound care until this blows over. Hurrah for that.

Didn't want to post a blog that was chocked full of my whining, so I guess I just went radio silent. Forgive me : ).
I'm so thankful for all of you guys and your support. Truly!

' Nuff Said,
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Member Comments About This Blog Post
    Praying for you, honey... don't give up!
    1305 days ago
    Ohhh my! I feel for you. (Not pity but sympathy cuz I get it.) The blasted blisters sounds miserable! I sooo wish you did not have to go through the on going battle of immune system versus nerves versus meds! (Etc)

    Gentle huggerz, and a emoticon ball for you to bat around to take your mind off of the pain! (My phonr wanted to take your mind off of the percocet lol.)
    1322 days ago
    So glad that you have so much support!

    & really ,what are the chances that you would have a reaction to that medication...not fair, not fair, not fair!!! oh girl, i've said it before, you are one strong cookie that just blows my mind on how much you kick a$$!
    1333 days ago
    emoticon emoticon emoticon
    1358 days ago
    emoticon emoticon emoticon emoticon emoticon

    I understand your need for silence. But I hope that sharing in your blog felt good.

    1365 days ago
    You poor dear.

    Here are you are, a beautiful person, full of light and life and put through one of the hardest paths in life.

    There are no words that I can express which will convey how I feel for you.

    So instead, feel my light bathing you in light, warmth and love.

    Take care and if you need to whine...it's okay. We are here for you.

    1367 days ago
    Oh honey, I am praying for you! I'm sorry you're going through this!
    1368 days ago
  • NUMD97

    Your SP buddies (and me) are here to support you in any way we can. If you need to go "radio silient" from time to time (been there, done that, too, even without erythromelalgia), you just go ahead and do what you need to do. No hurry in SPLand. We all take from this site what we need, and give what we can.

    I wish for you painless days, ASAP. May your most fervent prayers be answered and soon.

    My best,

    1369 days ago
    Hugs, lots of love and prayers!
    1370 days ago
    I'm so sorry for your suffering.
    Gentle emoticon
    1371 days ago
    You know I am with you in spirit (thankfully as I really look trashed right now, as I can't do much for my appearance with this Vertigo...what a pair we are!!!). I am praying you get relief from this ASAP! It's just awful! Stop worrying about whining...I so agree with Erin @ CATS _MEOW_0911...you are an inspiration! You even whine with grace!
    Love you!
    P.S. So glad the nurse is coming!
    emoticon emoticon emoticon
    1371 days ago
  • PHOENIX1949
    Not taken as whining at all. Just stating the facts. Sorry life continues to hand you such a raw deal. Hang in there.
    1371 days ago
  • CATS_MEOW_0911
    Oh Bren, I'm sorry you're dealing with this. Not whining at all, in fact, you have always inspired me to approach my own chronic illness with grace and humor. Glad you were able to get a home nurse instead of having to make trips to the Dr.

    Much love, Bren.
    1371 days ago

    Comment edited on: 6/19/2015 12:43:08 PM
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