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Saturday, May 23, 2015

I was hoping that my CT scan results would be posted before the day was over yesterday, but that did not happen. Sometimes, the scan results are posted the same day if the scan is done in the morning, but more often than not, it takes about 24 hours, and now that it's the weekend, and a holiday weekend at that, I probably won't find out anything now til Tuesday. If they aren't posted by then, I have to go in for lab work that day, so while I am there, I will just get the report from the medical records office.

I'm going to try not to dwell on the possible results over the weekend; after all, worrying about it will not change the outcome. It is what it is. No point in letting it spoil the weekend. That is one bad part though about getting tests done on Fridays or just before holidays, a longer wait time for results. But I also have to remember I was fortunate to get my scans done so soon after my doctor ordered them, I only had a 2 day wait between the time I was told I had to have them and then getting them done.

I did ok with getting through the scans; I told the tech that the last 2 times, I threw up immediately after the dye injection, so she used a smaller amount of the dye and pushed it in slower. I still thought I was going to sick, but it actually ended up just being dry heaves. By the time I left the hospital, I was feeling ok, just very tired from having to get up so early. I took a long nap shortly after getting home and felt much better after that.

Today I am feeling achy all over; I think a lot of that is from the Halotestin injection I had on Monday; it's a normal side effect but thankfully a temporary one. That is another good thing about being able to get the shot every 28 days instead of every other week; I won't have the bone pain from it as often.

One of my Spark friends asked me if I was having any symptoms from the cancer being in my liver and lungs. Right now, the cancer in those areas is not causing any symptoms; it's just kind of "there", and the scans before this last set on Friday showed that the mets there were still very small; not large enough yet to affect the function of those organs. I haven't had any kind of shortness of breath except for when my hemoglobin is very low, and so far, my lab work is not indicating any problems with the liver function.

It's the cancer in my bones causing the most symptoms; even in the areas where the cancer is stable, I still have pain in those areas, especially the left hip. The level of pain varies from day to day, and like arthritis, it seems to affected by weather also.

The problems with the bone marrow cause fatigue, especially when my hemoglobin starts dropping. Even when my hemoglobin is at a good level, I still get tired out easily, so I suspect that the cancer itself is causing some of the fatigue. Even though I'm just under palliative care, I believe that the body is just naturally inclined to fight against the cancer, and that takes energy, so I think that is another reason why I feel so tired all of the time. I know that even though my hemoglobin is withing the normal range right now, I'm just not bouncing back energy-wise as much as I used to after the blood transfusions.
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Member Comments About This Blog Post
    So sorry to hear that you are still waiting for the results.
    You are such a fighter Shari and that is why you are using
    up energy and while fighting this, it makes you so tired.
    Praying that you will get good results. emoticon
    1904 days ago
    God bless you, my friend! I am praying for good results!

    1905 days ago
    The wait is always the hardest..wishing you all the best and good lab results Shari.
    Continued thoughts, love and prayers for you. emoticon
    1905 days ago
    1905 days ago
    1905 days ago
    Dear Shari,
    I'm sorry you are still waiting for your results and that it will take an extra day till they can be accessed. While I am sorry you need to have these scans etc., It was very good of the technician to be careful with administering the dye injection.
    I'm sorry you are having pain and are very fatigued. I think it is true that the body uses a lot of energy dealing with pain and illness.
    I hope you are able to distract yourself enough over the weekend and rest up when your body is needing you to slow down. I wish I lived close by so I could come and visit you!
    Wishing you all the best for you lab work and sending prayers, love and big hugs,

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    1905 days ago
  • no profile photo CD4212235
    You are right won't help get the results any sooner if you worry. I hope you are able to relax a lute this weekend and possibly enjoy a good movie on Lifetime or Hallmark Channels. My daughter and I are suckers for the corny romantic movies. They Mystery Weekend on the Hallmark/Mystery station.

    Whatever you decide to do, I hope it is a good Memorial Day Weekend.

    emoticon Happy Memorial Day.

    emoticon emoticon
    1906 days ago
  • PHOENIX1949
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    1906 days ago
    Thinking of you.
    Have a good evening. Hope tomorrow is nice weather for you. God bless you.
    emoticon emoticon
    1906 days ago
    1906 days ago
  • PICKIE98
    Time moves so slowly when you are waiting for something. You are so right about being able to get the testing done right away!!

    Time for some kitty-cuddling...
    1906 days ago
    Shari, I hate waiting for results as well. Unfortunately we can't speed the process up Try and have a good weekend and relax. You'll know soon enough what's gong on.You continue to be in my prayers for continued strength and hope. emoticon
    1906 days ago
    Shari,so sorry you have to wait for your results.You are right about the waiting
    part,when it is out of your control.Praying for good results for you.
    Hugs and Blessings! emoticon
    1906 days ago
  • GABY1948
    I HATE waiting....but it is necessary a LOT...praying you get GOOD news's overdue!

    1906 days ago
    Hi Shari! I had a feeling the scan results might have to wait until Tuesday. Get your rest. Try to enjoy your weekend. I hope you'll spend time with friends (Penny).

    Hugs & Prayers my friend.
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    1906 days ago
    Hi Shari,
    I am glad the test is over and that the technician was helpful so you weren't sick!
    Sorry you need to wait...but knowing you are not going to get them til Tuesday means to let it go for a couple days and relax til then! You are so right, it is what it is and prayers are all out there for you! Hugs!
    1906 days ago
    Grrr... on not getting the test results yesterday.

    Knowing you have to wait over a long weekend for your results reminded me that I had to wait over the long Labor Day weekend for the results of my initial breast biopsy. I pretty much knew even before the biopsy that it was most likely cancer, but I still wanted to know the results. I was actually relieved when they finally called with the information. The news wasn't good....but at least I knew for sure one way of the other. I slept better that night after getting the "bad" news than I had for the two previous weeks from the time of my initial diagnostic mammogram and ultrasound. I imagine you will sleep better too after you get the results of the scan, no matter what.

    I hope you can keep your mind occupied with other things like a great book or something on tv over the weekend. I've got to believe that it's a good sign that you aren't having symptoms other than fatigue from your liver and lung mets and that things are progressing slowly if at all.

    Thinking of you...
    1906 days ago
    The waiting is the hardest part, so they say. However, with this process, there are many hard parts and you keep on keeping on like the hero that you are. Which I hope doesn't irritate you when I say that because I truly feel that you are an inspiration.
    1906 days ago
    What a nice technician! That's really good "bedside manner." It's so nice when they listen to you. I hope you get her again!

    I can understand you wanting your results as soon as possible. Or why take the test, right? Oh, well. They'll come in soon!

    A great-aunt of mine had bone cancer, and she was in a LOT of pain. Unfortunately, she was living in a nursing home and they were ignoring her. She was complaining about the pain, but they didn't get it checked out. And so she had to endure months and months of this pain all on her own, without pain medication or being able to lie down. They made her sit up all the time in a wheelchair, and they didn't understand why she was so eager to be put to bed for the night. They made her wait until the last possible moment. They just considered her a difficult patient. It was awful! We didn't know why she kept cursing and being mad. What are they giving you for the pain?

    My mom's boyfriend had cancer, he died almost two years ago. He was really tired all the time. He went to bed way earlier than before, and he had to take a lot of hot baths to feel better. He liked taking epsom salt baths. They're kind of soothing to your muscles. He kept hearing that his cancer was gone, they couldn't find it anywhere, but his body was still fighting it. He had elevated white blood cells, so they thought it was somewhere. So they kept having him do the chemo, but he ended up dying, even thought he cancer had disappeared. Weird, huh? But that happens a lot.
    1906 days ago
  • JUDITH316
    I am so sorry Shari your results didn't come in but I am trusting and praying for a good report. Glad your hemoglobin is staying within the normal range, as always I stand with you, you are a blessing and an inspiration to me and all who are your friends and for that matter the whole SP Family community. You shine and radiate the Lord in your life in everything you are going through. Hope you have a blessed weekend my friend. Sending you heaps of love, prayer and hugs... 🙏
    1906 days ago
    I read your blog with great interest as you lift my spirits. DH was diagnosed with cancer last week and was scheduled for a "hydrating scan" yesterday, so we are with you.....waiting. But also like you, am thankful we were able to get this apt. We have an apt. with his ENT doctor Wed. when we will get more definite analysis....Right now, we are thinking lymph node/nodes. He did have a kidney removed in 2010 because of cancer. This is quite scary so again, I'm so uplifted by your positive attitude. I will pray the three days go quickly for you too......waiting for news is so darn hard!
    1906 days ago
  • GEORGE815
    Sorry to hear about your afflictions and the wait to hear the diagnostic results. Hope things work out well for you.
    1906 days ago
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    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.