40,000-49,999 SparkPoints 42,283

NO FEAR! Little Griff's story begins. Just try not to cry...

Wednesday, February 18, 2015

The following was written by 7 yr. old Griffin's mom. Please help us pray for them.

Oh friends. Today was a tough day. It felt a bit like a punch in the gut if I'm being honest. So we sat in front of Griff's oncologist and listened to her explain what we are battling. It is called a Ewing Sarcoma. It is a rare, aggressive form of cancer most typically found in children. This is something that most likely hasn't been there very long...maybe a handful of months? It grows quickly. This cancer spreads. Where does it go? 3 of the most common places are the lungs, the bones and the bone marrow. {Deep breathe} So the PET scan that Griffin had today is very important...we NEED it to come back CLEAR. Please Lord, don't let there be any additional spots found!!! We also need to have a bone marrow biopsy done tomorrow. So back to the U we go. Tomorrow the biopsy will be done at 11:45. They will take 2 samples of bone and bone marrow, 1 from each side of his hip, on the backside of his hips. The results from both tests will be back this week. PET scan results will be back tomorrow. Bone marrow results will be back on Friday. We're gonna need prayer warriors like never before. PLEASE pray NO OTHER CANCER IS FOUND!!!!
Tomorrow while he is under general anethesia he will also have his Port Cath placed in his chest...this is how they will administer
his chemo treatments. {Deep breathe}
So chemo...first of all I hate you and I love you. This is what this is gonna look like...beginning Monday Feb. 23rd Griffin's treatment will begin. He will be in the hospital for 3 days that week, and then we will go home. The following week he will be home all week. And then the week following that he will be in the hospital for 5 days. {wash, rinse, repeat} 3 days in the hospital, 1 week home, 5 days in the hospital. {Deep breathe} This will continue for 12 weeks, at that time we will weigh our options and opt to insert some radiation or if possible have surgery~immediately following that 2 wk period we will go back to our chemo schedule for an ADDITIONAL 22 wks. Good additional 22 weeks. {Deep breathe}
Unfortunately I am a "numbers girl"...I needed to hear stats. I needed to hear "success rates". {Deep breathe} We did not hear #'s that made us feel all. I can't even bring myself to share those #'s with you. I mean we KNOW that God is bigger than any stat or success rate. We've gotta beat this. It's just the way it is. Period.
During my devotional time early this morning I "let God have it"...our pastor suggested that sometimes that is helpful! So I did. Like he didn't already know what I was thinking! I cried out to him...."why are you using MY SON?!?!?!....WHY???? Use ME!!!!" I understand that God works ALL things for good. Even cancer. I get it. I believe it. I know it. Something good will come out of this. But Lord, why MY son?! I heard him speak to my was very gentle and loving, he simply said "oh Jill, honey, he isn't YOUR son...he is MY child...I love him more than you can even imagine. Your job is to simply love him and TRUST me....TRUST ME." {Deep breathe}
Ok God. I do trust you. But I don't like it! 3 weeks ago, we trusted God...with all our heart. 3 weeks ago, our faith couldn't be shaken. God is the same God that he was 3 weeks ago...he didn't change with the cancer diagnosis, he didn't change with the Ewing Sarcoma diagnosis, he didn't change with the ugly stats. He is the same today as he was 3 weeks ago. Therefore, our faith will not change...we will not give up, we WILL continue to believe HIM for who he is. But friends, sometimes people get tired and so I am calling out to you to hold my precious son...along with all of our precious children, Dallas, Hailey, Grace and Reese and my husband, hold us up with your prayers. Storm the heavens, do not give up. We trust God will heal our son with medicine and with us!!!!
I'd like to leave you tonight with 3 heartwarming nuggets....) I accidentally left out a special little boys name from the story of when Griff got sick in school last week. Blake, bless his heart, was right there rubbing Griffin's back~reacting in an extremely mature fashion~just loving his buddy. Way to go Blake!
2nd.) Griffin had a FIT about that darn IV the point where he needed to be pinned down. It was awful. BUT, immediately following the IV placement he pulled it together and contritely apologized for how he acted...he apologized to me, Kurt, Grandpa, the nurses. And then he thanked the nurses. Aww little man~he just amazes us. and 3rd.) One of Griff's highlights was that his oldest sister Hailey came along today and she played such a beautiful role in supporting him! This picture was early on in our day. He loves his her so much!!!
Bless your hearts...thank you for partnering with us!
Let's march into tomorrow with NO FEAR! (This has become Griffin's motto).
Share This Post With Others
Member Comments About This Blog Post
  • JAMER123
    Griff and his entire family are in my prayers of healing. Thank you Sammie for sharing the story. They do have a very long road ahead of them!
    1488 days ago
    I put him on my prayer list.
    1489 days ago
    Thank you John. This is not me or my family, but a neighbor of one of my daughters. They have a very long road ahead and need all the prayers they can get.
    1489 days ago
    You are in my prayers as you face this journey.

    Face each day as it comes and savor every moment.
    1489 days ago
  • Add Your Comment to the Blog Post

    Log in to post a comment

    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.

More Blogs by SAMMIESMOM13