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Glow Sticks In The Bathroom

Sunday, February 15, 2015

*written on 2/14 in the dark : )*
I'm back in The Joint for another round of Operation Save My Feet. This is day 6 of treatment. No fun thus far as it is friggin' painful, but the team in the cardiac unit are awesome possum, so they make this easier to endure.
On Friday we were informed that electrical work would need to be done within the main hospital, and all non-critical power would be shut off from 6:00 AM -10:00 PM. Infusion machines, heart monitors, respirators and stuff like that would still work. But the overhead lighting, TV, Internet access, patient rooms and hallways would be blacked out.
(Enter sounds of shrieks and wailing),
My mind instantly went to the ice machines and how I need ice packs rotated throughout the day to keep my body temp low. Would the A/C go out? Crud, we are in the middle of another record high temp week (78 degrees in Feb, really?), and bad things happen when my pain flares go berserk.
I prayed before bed that all would somehow work out and tried to sleep for a wee bit.

They cut the power early (5:55AM), so I didn't get a chance to get my eyebrows 'powdered on'. Oh the horror! The expressionless face of a pasty pale gal! Oh wait, it's dark. No one can tell. Phew!

One of my regular nurses Holland was worried about how to keep me stable during our mini medical blackout, and brought in a massive soft cooler bag from home to store ice packs for me (how COOL is that?!). The night prior she had also stock piled some buckets of ice in the main freezer and labeled them for my use.
Holland wedgied a flashlight into the crook of her arm as she dragged the cooler bag in my room. I'm sure she was smiling as much as I was, but it was kinda hard to tell in the dark, ha.

Meals are simple today, but that's fine. Yogurt, little snack packs of crunchy stuff and those silly little water bottles. I am glad I packed protein bars. This feels kind of like being on a plane or train. Hmm, maybe it's those mini water bottles.
Around lunchtime, some of the staff were carrying lanterns and pushing around little carts full of sweet clementines and cold water. Adorable!

Pain is still super high. My joints, legs, arms, and face are all so swollen and red. The pain burns like acid and fire. The areas where my skin has broken down are the worst. Makes me cry at times. And even though I'm in The Joint at a strange time with this power outage, I still know I am in very capable hands. Just a few more days to go (I hope). And then we do it all over again in another 5 weeks.

Thank goodness for those glow sticks in the bathroom. Dragging around an IV pole while chocked full of heart monitor stickers and lead wires can make one feel like an accident magnet. Plus, if I get the itch to do my little bed-dance later on today I might grab some light sticks and wave some awesome jazz hand moves right??

Strangely, I'm very entertained by all of the hooplah going on around me - even though I can't see most of it, cuz' it's DARK man!

'Nuff Said.
Bren


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Member Comments About This Blog Post
  • CHERRY-TREE
    I'm sorry I missed this blog... What to say.... just thinking good thoughts for you and yours.
    1331 days ago
  • KIKKI-G
    I second seeing some dance moves & you made me laugh about the eyebrows too.

    You definitely sound like you're in amazing hands!
    Thnking of ya girl! emoticon
    1335 days ago
  • MELIBUG
    How sweet of the nurse to be thoughtful when you are needing it the most!

    P.S. I'm thinking you might need to start posting videos of your dance moves. emoticon

    Hugs!
    1336 days ago
  • KAILYNSTAR
    Wow. Your nurse is so dedicated to her work and to you. You are so fortunate for that.

    Bren, I wish I could come and see you. Just to be there for you, even if there is nothing I can do...except perhaps, have a laugh with you.

    You're in my thoughts. Always.



    1339 days ago
  • JCARDINAL
    I'm glad you're in such loving and capable hands!! I wish I could send you some of our cold, it's 1 degree with a wind chill of -30 today. Just your kind of environment. I pray that one of these days one of this treatments will give you the relief you deserve. You know you are in my prayers every day. If you do that bed dance take videos. emoticon Love ya Bren!! emoticon emoticon
    1341 days ago
  • OOLALA53
    I'm in tears over this lovely post. The kindness of Holland, the attempts of the rest of the staff, your fabulous humor. All my suffering is in my head, literally! I pray to remember that at my silliest moments and I pray for YOU to be free, if not of pain, than of suffering.

    I swear, you have GOT to be compiling these blogs somewhere off line, just so that they don't get accidentally lost. There is a BOOK in here. And/or you should be given a weekly column in a newspaper. I'm serious. Maybe it doesn't help to hear that, but I'm sayin' it!

    I hope we can meet someday.
    1344 days ago
  • SWEETNEEY
    love your attitude. hope all goes well
    1344 days ago
  • NUOVAELLE
    I've always loved winter but knowing how much it helps you makes me pray for it even more! And it's so comforting that you have nice people around you taking care of you.
    Hang in there, my brave Bren! And don't forget those jazz hand moves, ok? Maybe I don't have glow sticks but I'll be joining you from over here. Let's make them awesome!!!
    emoticon
    emoticon emoticon emoticon emoticon emoticon
    1345 days ago
  • PHOENIX1949
    emoticon emoticon emoticon

    You are one emoticon person.

    emoticon emoticon
    1345 days ago
  • CARRILU
    Oh My Goodness,
    Yes, it has been too warm lately. Where is winter anyway? It must be very dark in the hospital, those are such big buildings! Okay, how awesome is your nures? God bless her! As usual, you are awesome possum friend. Do they really have glowsticks in the bathroom?
    1345 days ago
  • MEWHENRYSMAMA
    Oh Sweetie...I so wish I could do something...you are so brave and strong...a Warrier!
    I see you with one of those metal "hats" with a horn coming out on each side (snort)!
    And with a glow stick! You retain your fantastic sense of humor and amaze me!
    I am sending you a private message after this...please read!
    You are, again, in my thoughts and prayers! Sending love, light and gentle hugs!
    Mary
    P.S. Who would ever think of a hospital in the dark?! Crazy...but adds great dimension to the crazy thing called life!
    1345 days ago
  • AAAACK
    Aw man, I thought you were in for pain treatment, not foot treatment. Bummmmmmmeer. emoticon For some reason I thought your last foot thing was successful and that was all that would be needed and that your next foray would be a much needed, and much delayed, pain treatment. Rats.

    As always, your attitude is inspirational. Your ability to see happy things makes me examine my own life for those. You endure so much, and complain so little...actually DO you ever? Heck, you're always so incredibly positive.

    I could hug Holland! What a great person. Taking care of such an awesome person as you.

    Rest up there in the dark, and I hope that the power returned earlier than predicted!

    I'd like to send as many gentle hugs as you can possibly stand! And some good sleep.
    emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon
    1345 days ago
  • TRENTDREAMER
    "I'm back in The Joint for another round of Operation Save My Feet. This is day 6 of treatment. "
    * emoticon

    "But the overhead lighting, TV, Internet access, patient rooms and hallways would be blacked out. (Enter sounds of shrieks and wailing), "
    * AHHHHHHHHHHHHHHHHHH!!!!!!111
    >"and brought in a massive soft cooler bag from home to store ice packs for me (how COOL is that?!)."
    * (rim shot)

    "Pain is still super high. My joints, legs, arms, and face are all so swollen and red. The pain burns like acid and fire. The areas where my skin has broken down are the worst. Makes me cry at times"
    * As always, really sorry to hear about Ethyl and all that you are going through. I sincerely hope and pray that your health may improve and that this can be beaten.
    emoticon emoticon

    "Plus, if I get the itch to do my little bed-dance later on today I might grab some light sticks and wave some awesome jazz hand moves right?? "
    * If you track that as exercise, I would identify it as Zumba, calorie-wise

    "Strangely, I'm very entertained by all of the hooplah going on around me - even though I can't see most of it, cuz' it's DARK man! "
    * Dude.

    Again, emoticon emoticon
    1345 days ago

    Comment edited on: 2/15/2015 1:09:55 PM
  • CRAMPERELLA
    You are brave.

    emoticon
    1345 days ago
  • WARRIORGIRL121
    Oh wow, Bren... honey, that's awful but your attitude is amazing! Hang in there, sweetie! I'm praying for you. How much longer will you be in hospital? Sending lots of hugs!
    1345 days ago
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