*written on 2/14 in the dark : )*
I'm back in The Joint for another round of Operation Save My Feet. This is day 6 of treatment. No fun thus far as it is friggin' painful, but the team in the cardiac unit are awesome possum, so they make this easier to endure.
On Friday we were informed that electrical work would need to be done within the main hospital, and all non-critical power would be shut off from 6:00 AM -10:00 PM. Infusion machines, heart monitors, respirators and stuff like that would still work. But the overhead lighting, TV, Internet access, patient rooms and hallways would be blacked out.
(Enter sounds of shrieks and wailing),
My mind instantly went to the ice machines and how I need ice packs rotated throughout the day to keep my body temp low. Would the A/C go out? Crud, we are in the middle of another record high temp week (78 degrees in Feb, really?), and bad things happen when my pain flares go berserk.
I prayed before bed that all would somehow work out and tried to sleep for a wee bit.
They cut the power early (5:55AM), so I didn't get a chance to get my eyebrows 'powdered on'. Oh the horror! The expressionless face of a pasty pale gal! Oh wait, it's dark. No one can tell. Phew!
One of my regular nurses Holland was worried about how to keep me stable during our mini medical blackout, and brought in a massive soft cooler bag from home to store ice packs for me (how COOL is that?!). The night prior she had also stock piled some buckets of ice in the main freezer and labeled them for my use.
Holland wedgied a flashlight into the crook of her arm as she dragged the cooler bag in my room. I'm sure she was smiling as much as I was, but it was kinda hard to tell in the dark, ha.
Meals are simple today, but that's fine. Yogurt, little snack packs of crunchy stuff and those silly little water bottles. I am glad I packed protein bars. This feels kind of like being on a plane or train. Hmm, maybe it's those mini water bottles.
Around lunchtime, some of the staff were carrying lanterns and pushing around little carts full of sweet clementines and cold water. Adorable!
Pain is still super high. My joints, legs, arms, and face are all so swollen and red. The pain burns like acid and fire. The areas where my skin has broken down are the worst. Makes me cry at times. And even though I'm in The Joint at a strange time with this power outage, I still know I am in very capable hands. Just a few more days to go (I hope). And then we do it all over again in another 5 weeks.
Thank goodness for those glow sticks in the bathroom. Dragging around an IV pole while chocked full of heart monitor stickers and lead wires can make one feel like an accident magnet. Plus, if I get the itch to do my little bed-dance later on today I might grab some light sticks and wave some awesome jazz hand moves right??
Strangely, I'm very entertained by all of the hooplah going on around me - even though I can't see most of it, cuz' it's DARK man!