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Tuesday, September 16, 2014

This entry has taken a while to figure out how to write what I wanted to say. So here I go and I hope it comes out making sense.

Many of you may not know that I am an epileptic and have 2 types of seizures. It's not something I generally share because is has cost me jobs, friendships and relationships. I actually had 1 gentleman friend tell me if I had another seizure, he would leave me. Needless to say, I left him!

Occasionally stress or lack of sleep might trigger a seizure, but I always have an aura (a type of warning) before a seizure. But boy did I have a duzzy of a seizure on September 5th. My family had never seen anything like this seizure and it was nothing like anyother seizure I had ever had. There had been quite a bit of stress during the 3 previous days, I was fighting a serious infection as well as taking an antibiotic. Any of these things could have triggered that major seizure

By the end of that Friday, I ended up at Dartmoth-Hitchcock Medical Center. I was unconsicous for over 30 hours. That doesn't even count the time I was in the local ER. After I regained consciousness, I was in the hospital for another 3 days. I had a lot of time to think during those days. Needless to say, I won't be driving for at least 6 months which is fine by me. When I stop and think that 10 minutes before the seizure I had been driving, it scares the living daylights out of me! Especially since I had been seizure free for more than 5 years.

During the time that I did that serious thinking, I decided to make some changes - very important ones - in my life. Here they are:

1. No more putting myself last. I make sure everyone else in my family is OK, but tend to take care of me last. My health needs have to come first!

2. Work with neurologist, primary care and the surgeon who will replace my hip (yes I decided to have it done) to become the healthiest me I can be. I know that running is no longer an option, but I can walk, hike, ride a bike and another very large list of the things I CAN DO to become a very healthy me.

3. Create a daily ME time. I haven't done any type of crafts in a very long time and these have always been my stress busters or ways to relax and wind down.

4. Keep my life as stress-free as possible. This may sound strange as part of a slife-style change, but it's what I need to do the most for me. If this means cutting back on certain things, or staying away from certain people for a bit, then it's what I will do.

I hope that this all makes sense. I am not usually a blogger, but I needed a way to put my thoughts in print.
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  • DBEAU57
    I'm not glad you had the seizure. But I am glad you had an opportunity to really think about what you want your life to be like. That is so important and you have done very well at it. You have strong goals set that will make you a happier person. Go for it!
    2214 days ago
  • STONE815

    You are a brave lady. You need to take care of yourself and enjoy life, I find doing anything I enjoy reduces my stress. Surround yourself with positive friends and family and live the life you love.

    All the best.

    2221 days ago
  • 68ANNE
    You did a wonderful way of saying it exactly. I hope you are seizure free for years to come!
    2223 days ago
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    2224 days ago
    Thanks for posting! You are important and dont ever forget it. Be self caring because without yourself you have nothing. Major hugs. emoticon emoticon
    2224 days ago
    MaryAnn - I am so grateful for your presence to write such an important blog. Be strong and stay true to yourself. You have all the skills to put this list in action. You are so worth it! Woo HOO to being alive and being the best you can be! Make your home exactly what you need to stay positive and focused on your goals. Tranquility Now!!! Awesome, friend. We are all here for you. Reminds me of the saying I heard Oprah had on the wall in her office, "You are responsible for the energy you bring to this space". I think that is close, you get it. So glad you are getting better. emoticon
    2224 days ago
    Oh Dear Lady,
    I am sorry you had to go through that. But putting yourself first is a great idea. It is about time, too! emoticon
    You can do it!
    Best wishes for a speedy recovery. Keeping you in my thoughts and prayers.
    Huge Hugs.
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    2224 days ago
    I agree with the others, you deserve and should be number one in your life. The changes sound like great ones to me. Doing crafts or games, reading whatever you like is a great way to de-stress. Doing whatever it takes to keep stress out of your life is extremely important. Don't be ashamed or afraid to share your epilepsy with friends. The knowledge can save your life. If it bothers them then they aren't really friends. Hugs, take care. I for one would love to be your friend and have added you as my friend.
    2224 days ago
    This was a wonderful blog.You are worth being put first.All I have to say about friends who would discard you because you are epileptic is you are better off without them,for no real friend would do that. I too am having my hips replaced so perhaps we can share that part of the journey.You are a strong person and I think we are lucky to know someone as resilient as you. Take care of yourself and if we can help you in any way do not hesitate to let us know. I am so glad you are back and feeling better and that you escaped serious injury when you had your seizure. (Driving at the time would have been horrid !) hugs,Cheri
    2225 days ago
    Ahh yes, my dear friend,, you DO need to make YOU #1 ,,,, I had pointed this out b4, not just because of health, but LOL What little bit of "Sanity" you have left (oh yeah, and watch out for the TYPES of friends you make ! LOL)

    I love the changes above,,, esp the doing crafts,,, that I had 'planned on during my recovery, but never did it, its been 11 weeks,,, almost 3 months ! So yes my friend,, we both need to encourage each other, and others on the team to do so.

    It scares the wahhhhh woooo hoooo outta , that you had been just driving 10 mins b4. Remember that Weds night (ur seizure was on Fri) you said you didn't feel right,,,, I asked you specifically if it felt like "you might have a seizure"? You stated no, next time, my ears will be DAWGGIE UP ! I will be paying morah attention to how U are feeling,,, I do so carah.
    Lets start to LAUGH more ,,, we both need this.

    HUGS Sweet friend.
    2225 days ago
  • MM11113
    When I figure out that I need to truly de-stress, I like a cup of fragrant hot tea. And, I like your craft idea.

    I waited 30 years to elevate myself toward the top of the list. Don't make that mistake, the family needs to learn to be supportive, caring, and independent. Balance.

    Good luck. I would be terrified of driving, too!
    2225 days ago
    After a seizure like this you are fortunate to be alive. I hope they can find the reason for this and prevent it from happening again. i think you are on the right track and need to tke very good care of yourself. I am sending a prayer for you!
    2225 days ago
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