JITZUROE
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I don't need to count my blessings. They surround me!

Thursday, July 24, 2014

As the bubbling, gurgling tar-like funk starts to recede, I can now see remnants of my true self underneath (phew). And I am able to better reflect on the shiny gems set throughout last week's Mayo Clinic trip, not just the pain and the tears.

To kick things off, the flight attendants were made aware of my disease and my special needs for travel. They were very attentive, and brought me ice packs often. That was great.

There was an issue with the air conditioning where I stayed. They did all that they could, but they were simply not able to get the air-conditioning to operate with the demands of Ethel. I needed the room to be at a maximum of 60°F. Honestly I would've preferred it to be lower than that, but commercial air conditioning just can't compete with those demands 24/7.

Unfortunately they couldn't get the temps down below 70°, and there is currently a heat wave going on in Minnesota [90° are you kidding me?], so I was in a tight spot. Massive swelling, bloody noses and lots of pain. Kind of scary since the bloodwork, biopsies and the pain-filled bits that was to come with the Mayo Clinic had not even started yet.
The maintenance team actually hunted online for some type of DIY contraption to cool me down. It looked like something out of an old I Love Lucy episode, but oh my goodness it actually did work! I just wished it had more force, since the R2D2 looking contraption needed to be parked about 6 inches from me. But still, I'm blown away (Har Har, blown away) that these guys even did this for me. Another blessing.




In case you're wondering, this is a bucket from the hardware store, and inside is a water jug that was frozen solid. On top is a tiny desktop fan to push the cold air out through the PVC pipes. Pretty creative huh?

The lead doctor on my case at the Mayo Clinic decided to let us come home a week early, and said that she would work with Stanford Hospital out here in CA when my testing and surgery results came back. *Wow*

She understood how hard things were for me, and how much pain I was in. Allowing us to come home earlier meant a much cooler climate was on the horizon for me, as our air-conditioning worked better than what we had currently in Minnesota. We were not expecting to come home days early, so that was yet another huge blessing.

The airline agreed to waive the penalties involved in getting us home. Wouldn't you know, there is a Mayo Clinic discount available.

When we got home, my husband went to go pick up our cat JitZu from where we were having her boarded. We were told that someone had anonymously paid our bill. That was not cheap. Wow, we were so thankful...

The next morning my husband drove across town to pick up our dog Olive from where she was being boarded. The owners told him that they were not going to be charging us the $450 fee, since they knew that we will were struggling with my illness on all levels. They said that they wanted to help me in some way if they could.
Again, what a massive blessing.

I had mentioned to a Spark friend that even while at my lowest, I still felt as though God was carrying me through. And I can look back and definitely see that sprinkled throughout the entire trip now. Thank you Lord!

Incredible (gentle) hugs to you all for being such pillars of strength for me. Directing your prayers and strength when I truly needed all of them was not taken for granted. YOU are blessings in my life!

And the icing on the cake, look what was parked outside across from the hospital. It's the Wiener Mobile!!! Talk about getting a great laugh when one was truly needed. My husband pushed me through the lobby in my wheelchair and we saw this last week.


Of course I had to ask if this was the new hospital shuttle. Sadly, it was not…

'Nuff said.
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Member Comments About This Blog Post
  • EDENFELL
    Wishing you lots more good things and treatment that gets rid of all the pain you're going through!{{hugs}} It's so touching when people come through with blessings during tough times. Sending you tons of positive thoughts and fairy dust! emoticon
    1440 days ago
  • NIGHTSKYSTAR
    You are, indeed, blessed. I think without my pain i wouldnt appreciate things as much..and have as positive of an attitude.
    How wonderful of your gifters to pay those bills..and the hotel staff..and the airline!! i'm smiling at all the good vibes here...
    AS always please take care and i am here if you need an ear!
    1447 days ago
  • DSJB9999
    emoticon
    1449 days ago
  • GREGGWEISBROD
    I'd say the biggest blessing is your fantastic sense of humor!!! :D I think that navigating through your life would be impossible without it. I'm so incredibly amazed by you. :)
    1453 days ago
  • CANNIE50
    It is hard to feel grateful and count blessings when one is in terrible pain. It is so indicative of your shiny spirit that you are able and willing to do this. Gratitude is such a game changer. I am so glad you have been surrounded by blessings. You deserve each and every one, and more more more. emoticon
    1454 days ago
  • CTUPTON
    Blessings abound! Weinermobile for a much needed laugh, people helping you to pay the pet bills, R2D2 to cool you off ! Thank you for writing this blog. I will go look for my own blessings now! chris
    1455 days ago
  • CHERRY-TREE
    What a wonderful blog! You have a very good spirit.
    I hope you'll feel better soon. emoticon emoticon emoticon
    1456 days ago
  • RORYLYONS
    I'm delighted to hear you had an angel at every corner Bren....God is so good and you are especially deserving of all his blessings to you and your dh. emoticon
    1456 days ago
  • NUOVAELLE
    You deserved each and every one of those blessings, Bren, and more. A person who finds the courage through all this pain to acknowledge their blessings and be thankful for them, has only one name: strong.
    You are still in my prayers. My thoughts are always with you.
    emoticon
    1456 days ago
  • AAAACK
    It's so great that Mayo was willing to work with Stanford, maybe they can develop a good relationship there and save you other trips, and maybe they'll put their heads together and come up with something that whups Ethel's butt!

    I hope nothing but good things for you!
    1457 days ago
  • WARRIORGIRL121
    That is awesome to hear, Bren - God IS carrying you and helping you! That is the Lord taking care of you! I'm keeping you in prayer, honey! Don't give up. Help is flowing your way. emoticon emoticon Karen
    1457 days ago
  • ALLYCANDOIT
    emoticon
    Wow! You weren't kidding. You were totally surrounded by God's blessings.

    Really neat a/c device. I had to show my Engineer husband and he loved it.

    Want to hear about your Birthday. The weiner wagon was really cool as well as the airlines discount.

    Won't stop praying for you!

    Ally
    1457 days ago
  • MAMADWARF
    Bren, you were surely surrounded by God's love and people. what a wonderful blessing and I dont know anyone that deserves it more... Please keep us posted on how you are doing...Love ya, girl!
    1457 days ago
  • CARRILU
    God is so good!
    This stuff is way to hard to see in the dark moments but when we get to come up for air it is so apparent. I'm so glad you are feeling better (slowly...) keep us updated on the results and we are still praying it up for you here. Rest and be extra kind to yourself on behalf of all of us who wish we were close enough to. emoticon emoticon (gently)
    1457 days ago
  • SLIMMERJESSE
    Wow, what kindness abounded for you. And so wonderful that you felt God pulling for you throughout your struggle. Just wow is all I can say right now. Big hug.
    1457 days ago
  • MEWHENRYSMAMA
    You are indeed loved, thought about, prayed for, hugged and SPECIAL....
    I am glad you had so many examples of goodness mixed into your tough experience and pain
    to keep you going!
    AND, get outta here, the appearance of the Wiener Mobile? A true sign from heaven you are being
    Looked out after.....LOVE IT!!!!
    Love & Healing Hugs,
    Mary
    1457 days ago
  • MISSB8604
    God is SO good.
    1457 days ago
  • _RAMONA
    So glad the curtain is lifting!
    emoticon
    1457 days ago
  • JCARDINAL
    It is an honor and a privilege to know you Bren! Your strength inspires me when I want to give up I wish you tons of cool air and a cure. emoticon
    1457 days ago
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