Greater than 350,000 SparkPoints 566,701

Doctors say the "cure" is a Scam

Saturday, July 12, 2014

So I emailed both my doctors whom I really respect. Both said empathically "NO". My autoimmune specialist said that these people are "stealing" people's money. My GI doctor said that the one doctor pushing this has no credentials only is a GP and only participated in one small study regarding diabetes. So these two doctors pushing "the cure" are taking advantage of sick people. My doctors told me to warn people. It's so sad that someone would do this. My defenses were up and I asked a ton of questions and really just got a run around. One of the questions I asked yesterday was "You say you take 5cc of my blood and mix it with a specific solution and then make the vaccine that I then give myself a shot everyday for a year. I am not going to give myself a shot of something unless I know what is in what is in the shot". They gave me a run around and told me they couldn't tell me as it was "Pattened". I also asked if they could give me statistics of the research and success percentages. They didn't have any numbers.

So yes, the old "if it sounds to good to be true it probably is" rings true here. It was an interesting theory and I just saw on the news this morning about the trail where they thought they cured a child with HIV with injecting them with a vaccine. So I think someday they might be able to create something to rebuild your immune system. I know they discovered some new proteins that might be able to be targeted that are present in autoimmune.

I read a lot and try to say up with things. Since it's my body who is attacking itself I want to make sure I know all my options to control the Sjogrens.

Thanks to all of you who responded to my blog yesterday and for the advise. Everyone was like me and skeptical. I love you guys

Have a wonderful Saturday.
Share This Post With Others
Member Comments About This Blog Post
    It's really sad that "Doctors" would go around selling a dream to sick people just to line their pockets. Glad you contacted the ones you know and trust.
    1381 days ago
    these doctors should be arrested when found to be scamming people. then maybe this cruel money making practice will stop . glad you checked into this hugs
    1382 days ago
    Listen to your doctors, they know what they are talking about. I know that if a "so called doctor" doesn't answer my questions and gives me the runaround, I drop him like a ton of bricks!!! Very smart going Sallie!!! God bless you and have a terrific Sunday!!!
    emoticon emoticon emoticon emoticon emoticon
    1383 days ago
  • FIT4MEIN2013
    The scary part is that so many just blindly believe the 'miracle cures' about cancer, lupus, diabetes and even obesity. Good for you for researching!
    1383 days ago
    Run as fast as you can the other direction. Shame on them!
    1383 days ago
    Well done super sleuth Sallie! Good for you
    for asking the right questions. Boggles the mind
    that so many of these quacks can get up there and
    convince people to part with their money. I am so
    glad you do a lot of research and check with your
    doctors. You know your body better than anyone.
    Have a great Sunday. emoticon
    1383 days ago
    You did a great job of looking into this option cautiously and not falling for a scam. I can imagine how vulnerable people who are desperate are. Unfortunately, there have always been people who take advantage of the vulnerable. Good going, Sallie.
    1383 days ago
    Wonder how many people spent money for this cure all?

    Glad to see you did your homework and wouldn't subject yourself to possibly a drug that you could make you worse!

    Have a good weekend!
    1383 days ago
    It is sad that people take advantage of others hopes and fears. If they can't explain themselves then that's a definite warning flag right off the bat. You were smart about this and am glad you had doctors you respect and trust to advise you!
    1383 days ago
  • GUNNSGIRL91303
    Not surprised but all things are worth checking out. One thing I will say, having been in the medical field for 24 years and have worked for both MD's and Naturopaths is that MD's will almost always scorn anything natural. However, this did have SCAM written all over it. I find that if something is scientifically sound they will be willing to tell you everything that is in the cure, not hedge around it and give you the runaround.

    Good job Sallie being on top of your research and not falling for their tricks!
    1383 days ago
    It is great that you did your research. Good on you.
    1383 days ago
  • 123ELAINE456
    Great Job asking the questions You did, doing your homework and checking in with your Doctors and Medical Teams exposing the Two Doctors for what the are. Scam Artists. Stealing People's hard Earned Money, Taking Advantage of Them Being Sick and Giving Them False Hope ETC. I hope they are sued, lose everything they have and end up in prison for all the harm they are doing to People. Very Proud of You Salie. Good For You. God Blessings Always. Have a Fantastic Day with DH. Hugs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    Coming Your Way. Take Care.
    1383 days ago
    Sorry about that : (
    Great job you investigated.
    The most shameful example I saw of this kind of "cure" was an advertisement in the canteen of a cancer institute, saying their water has a decreased proton content and it helps cure cancer. Just like you said, no references, no numbers.... It was not cheap, well at least it was certainly not harmful.
    1383 days ago
    Very proud of you for NOT just believing what these people were saying... sorry it wasn't real... but glad you learned that sooner rather than later....
    1383 days ago
    I am sorry it didn't work out, but glad you figured it out before you lost lots of money.
    1383 days ago
    Great job looking out for your own health
    1383 days ago
    sorry its a scam
    1383 days ago
  • LIS193
    So sorry this turned out to be a scam. It is so sad that there are people out there taking advantage of people who are looking for a "cure" and are willing to latch on to anything that gives them hope.
    So glad you asked tough questions and did the research! It did sound too good to be true..

    1383 days ago
    Kind of what I suspected. I think the path is a lot closer looking @ proteins. But long way off right now!

    So glad you checked it out. I wouldn't have had to think twice if they wouldn't answer questions directly -- HUGS red warning flag.

    HUGS and sorry it turned out to be a bust!

    I keep forgetting to ask . . . did your FIL get his brace???
    1383 days ago

    Comment edited on: 7/12/2014 10:50:29 AM
    That is such a bummer that it was a scam! It is really sad when people take advantage of sick people trying to get well! So glad you did your homework! Thanks so much Sallie for sharing all your information with us! I just let you know how much I appreciate our sparks friendship! I think you're wonderful! Hope you and your DH have a great day! Hugs and love!
    emoticon emoticon emoticon emoticon emoticon
    1383 days ago
  • _LINDA
    So very sorry it didn't work out :-( Maybe someday something will come, more likely genetic engineering. I am sure missing Sparkpeople's Health News feature :-(( They had such good articles on the latest legitimate research and health news information.
    Enjoy your Saturday!
    1383 days ago
  • Add Your Comment to the Blog Post

    Log in to post a comment

    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.