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Friday, 6/6 Can't move my legs much, rehab inevitable

Friday, June 06, 2014

Hi All,

I rattled some cages today and am going to get things my way to the best of my ability. The reality in my world right now is that I have a full incision down my back. There are no signs that anything else is damaged or non-functional from all of the tests I had. My legs don't work right now. I can wiggle my toes and ankles on both feet and have some movement in my right knee. I am getting a bit of sensation in my legs. My knees on up to my waist have no feeling. This is scary stuff.

I told the nursing and PT staff that there were so many people giving me information and that so much of it didn't match that I wanted my spine team to visit with me and straighten things out. I called my PCP and my pain doc from home and let them know what I knew and the ideas of sending me to rehab when I cannot stand or take a step or get from the bed t a chair without being hoisted like an old Chevy truck engine through the air. I learned that there are a couple of resources at home, but they wanted me in the hospital, here or there. My pain doc said the fact that I am getting some sensation in my legs is significant because it should come first and walking is probably going to happen but there is no predicting when it will happen.

My entire spine team came and spent a good deal of time with me. My condition is tricky but they are optimistic and explained the CT scans, x-rays, and MRIs and how they have come to this conclusion. They took the vacuum pad off of my incision. as well and my incision is looking good and free of problems (and stapled from end to end.)

I no longer have 3 working IVs and I am now on oral medications rather than morphine. I had the catheter removed and my bladder has worked. My local hospital where all of my docs work has an acceptable rehab unit and if the insurance approves things, I will end up there, probably on Monday. They will have to figure out transportation and I have told them I don't want an ambulance for an hour and a quarter ride because it will be too painful on my incision.

My mood is rough and I'm crying a lot. I didn't sign up for this and have no idea how this all will play out. The people in charge now know that I am a player though--and finding my voice has helped me a lot.

Gentle hugs,
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Member Comments About This Blog Post
    so sorry to hear this, will definitely be praying for you. emoticon
    1705 days ago
    So glad you got a chance to talk to the spine team. It sounds good but as you say there is no way to know how long it will take. I hope they will let you have rehab in hospital close to your home. I understand their desire to have you in the hospital at this time. Things are good right now with incision but infection can happen so quickly and as you know you don't want that problem. I know you are impatient but you have to let your body heal. I agree with Mortica, you have a lot of post surgical edema that has to resolve. Take care and before you know it you will be back in your own hospital working your behind off and thinking the therapist are torture addicts. I know you can do this Silvia. emoticon emoticon emoticon emoticon
    1718 days ago
    1719 days ago
  • _LINDA
    I so am glad you were able to get a consult with your whole team -that is wonderful they took all that time for you. I am assuming the horrible pain in your leg is gone/ was fixed? I hope they will allow you rehab in your own hospital. So its still extremely painful for you to lay down I am assuming. They can sit you up in an ambulance -I sat up on my trip as I didn't want my broken arm touching anything on our bumpy bad roads. They would also be able to give you pain medications..
    Thinking of you as always,
    {{{gentle hugs}}}
    1719 days ago
    1719 days ago
    I think the fact that the spine team is optimistic is a good sign. I don't believe that they would give you false hope. Right now you would have post op edema and that should improve over time. Keep your spirits up. Your body needs to heal. Praying for you! Love you, Sylvia!
    1719 days ago
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