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Turning Bad News Into Good (Heart Transplant List A No Go)

Tuesday, April 08, 2014

We went to Dallas this past week to find out whether or not I had met the criteria to be placed on the heart transplant list. I went to the heart failure doctor back on June 29, 2013 after having experienced a major heart attack at the end of May that my defibrillator managed to bring me back from. I lost 129 pounds which met the weight requirements and I have been exercising like crazy and managed to bring my ejection fraction (measure of heart failure) one percentage point above the ranges that they will accept for the transplant list but not enough to keep my pacemaker from failing. To say the least the news that what you have been working for the past few months is no longer a reality is very heart breaking and you feel like a big failure and then you just don't know what your next step is. Everything you have been counting on for your future has just been squashed and the doctor walks out the door as he says see you back in 3 months after telling me how proud he was at how well I had done and sorry. My daughter and I just sit there looking at each other in shock.

The doctor then came back in just as we started to leave and said they do have one last thing he wanted to offer. They do have a new research project but I didn't qualify for that Friday either because my blood pressure was too low, it was 68/42, so I have to try to get it up with medication over the next 3 months, and then decide if I want to participate. It will require frequent (weekly visits to Dallas for first 6 months - 4-5 hour trips- and that would require my daughter to take off work since they still won't let me drive) and the project lasts for 5 years - a lot to consider.

Well in the meantime I am just going to press on with the 100 Day challenge and know that even though it may be what may have knocked me out of the promise of a better chance at the heart transplant list I still will enjoy life. I will not give up or give in- I am going to "embrace life - I have been re-energized' so watch out here I come. emoticon
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Member Comments About This Blog Post
    You have a great attitude and are a positive person. Praying things fall into place for you to make it easier for you.
    emoticon on your fantastic weight loss, you have to be so happy not to be carrying that extra wt.
    1496 days ago
    Fingers crossed for your health! Keep your spirits up and keep going! You are on the right path!
    1497 days ago
    I will pray for God to intervene. You have worked so hard, don't give up, just give the problem to the Lord and ask Him to work it out.

    Sending you cyber hugs and prayers.

    1499 days ago
  • BOPPY_
    You've made excellent progress, and you are staying true to your program.

    Congratulations on all that success.

    Thank you for sharing your story.

    I wish you the best,

    1501 days ago
    I should have started reading your Blogs a long time ago.
    Keeping my fingers crossed for you.
    1502 days ago
    Awesome attitude and so sorry about the news re the transplant list.

    So great they did offer the possibility of the research project if you decide to go that route and meet their criteria.

    But the best thing is you are re-energized and taking a positive approach.

    1502 days ago
  • QTEALADY20031
    Beth, I am sure this was such a disappointment for you but we never know what God has in store for you. I am sure God will lead you on the road that you are to be on......keep your faith in Him. Please know that I will continue to keep you in my prayers. You have a wonderful attitude....stay with it! emoticon emoticon June

    1503 days ago
    I so admire your attitude!

    Even those with strong healthy hearts are not guarantee the next minute of life, so we all should embrace each moment to the fullest.

    God bless!

    1504 days ago
  • POOH97015
    What a great attitude!! That's the way to keep the faith and believe in yourself and your new life. You may not have got the news you wanted to hear, but maybe it just isn't "God's time" yet. He may have bigger and better plans for you. I am happy to hear you're continuing with your 100 day quest and didn't give up in defeat. You are an amazing person!! I feel good too. I had my gall bladder surgery and I have lost 15 pounds in the 3 weeks since the surgery. I am down below 250 pounds for the first time since high school. I'm not doing as good as you are, but I will get there! You are a great inspiration and I find many others on here as well too. Your story touches my heart though and my thoughts and prayers are always with you. Take care of yourself, be careful and God bless!!

    Hugs, Lauri
    1504 days ago
    I will keep you in prayer, Beth; please keep your faith going!!

    1504 days ago
    emoticon Man oh man, Beth. I am so sorry that you're facing this setback and wish I could do something for you. emoticon
    1504 days ago
    Hang in there and know that I am praying for you!!!! The Great Physician heals!!!! Your attitude is awesome and so are you!!!! emoticon
    1504 days ago
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    1505 days ago
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    1505 days ago
  • TRICIA1957
    Beth, I am praying every day for you that God will show you the way and open the door he wants you to go through. Lord God, please help beth as she struggles through this difficult time. Show her your will Lord and keep her safe from harm and on your path, God. In Jesus name I pray, Amen
    1505 days ago
    Beth, you are an amazing person. Your beautiful spirit and strong determination will help you find a way. I know you will make the right decision. In the meantime, your positive attitude will help guide you in your journey.

    1505 days ago
    Beth, don't let this news get the best of you. With all of your hard work YOU and YOU alone have prolonged your life without a new heart. There's no way to actually know if a new heart would prolong your life any more than the steps that you're taking now. You are such an inspiration to others. Prayers for good decisions and discernment from your doctors. Love & Hugs to you!! emoticon
    1505 days ago
    emoticon just love this background
    1505 days ago
    Bring it on BETH!!!

    1505 days ago
    You are amazing and so inspirational! Sending lots of emoticon and emoticon
    1505 days ago
  • BIBS4664
    Blessings and hugs. What a lot of info to absorb. You are a wise and strong woman. Your health is so much better.. The journey continues, and we lift each emoticon other up!!!
    1505 days ago
    praying for you emoticon
    1505 days ago
    Beth, I know this wasn't the news you were expecting. But like someone else said, God never closes a door without opening a window. You have lots to consider. Don't let all your hard work and determination go to the wayside. All your hard work and effort are doing your body good. I will pray for you!!

    1505 days ago
    Wow... that is quite a lot to think about. I can't believe that your ejection factor disqualified you. That really is so awful... but guess that means your hard work has really and truly helped your heart health. Since my Mom, my brother and my BFF all have heart failure, I know a little about it, and I can't imagine any of the 3 working as hard as you have. I know you have prolonged your life by your work, but perhaps not to the extent a transplant would do. I will keep you in my prayers, my friend.
    1505 days ago
  • AMAS92568
    1505 days ago
    I am very proud of you Beth. I can see you coming girl! emoticon emoticon emoticon emoticon
    1505 days ago
    Your in my prayer for peace, comfort and wisdom. When one door closes another one will open.

    1505 days ago
    I love your attitude about the news. So sorry for the report about the heart transplant. You are in my prayers. But it sounds like that program may just be what you may need to do. Sometimes God works in mysterious (mysterious at least to us) ways.

    emoticon emoticon

    1505 days ago
  • SPEEDY143
    emoticon YOU sure have a way with turning disappointment into hope emoticon for the future Beth emoticon Praying for you every day sweetheart emoticon
    1505 days ago
  • 123ELAINE456
    1505 days ago
    Beth love, don't let it get you down .. I know this is quite devastating .. But you need to continue your exercise and to get stronger .
    The medical profession is sometimes quite wrong ..
    I am sure if you continue to look after yourselves something will happen for you .. Sending love hugs and healing vibes my friend .. Love Susie xx.
    We can do this !!! Xx emoticon emoticon emoticon emoticon
    1505 days ago
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    1505 days ago
    emoticon I am praying for you my friend.
    1506 days ago
    I just love your spirit! Never let anyone get in your way to a healthier life! Praying for your journey to be filled with joy and happiness as you walk your path. emoticon
    1506 days ago
    You are awesome, Beth! And all of the hard work you have done was not in vain (even though the Dr. took a little wind out of your sails), you are a healthier and stronger woman because of it. You took charge of your health and you are winning!

    1506 days ago
    Wow, you go girl. I am proud of you. So glad you are kicking life in the tush and trudging along quite well.

    1506 days ago
    You're in my prayers, my friend! emoticon
    1506 days ago
    I like your attitude! emoticon emoticon emoticon emoticon
    1506 days ago
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