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Any prednisone takers out there?

Tuesday, March 18, 2014

First of all I am feeling a bit better today. My doctor decided to put me on a higher dose of prednisone. Then of course I will then have to taper off again. I am on 15 mg per day taking 5 mg 3 times per day. This is for a week. It amazes me how quickly I felt better but of course there is the insomnia that comes from taking it. I also know that it screws with your cortisone levels and adrenal glands. So my question is for anyone out there with experience and what suggestions you might have.

By the way, someone here, a dear concerned person emailed me and wanted to know more about my condition. I have Sjogren's Syndrome which was diagnosed with a lip biopsy. I never knew it was actually confirmed until I spoke with the doctor here the other day.....a site communication problem. Of course with this autoimmune disorder comes GI track issues during a flare up. I do all I can with reading and researching to find ways to prevent flare ups and was excited to have gone 8 months without a flare....until recently. I think now that I can trace it back to the 4th of March when I went to see the doctor and was doing so well. She then wanted me to taper off the 5mg of prednisone that I was on to 2.5 and then down to none. So of course being the good patient that I am I cut back the very next day which was a Wednesday, which was also the day we ate out and I got bad stomach ache. By Thursday I was going downhill until that following Monday went on IV for two days...but this time it really didn't work. Anyway to make a long story short, I am thinking now that the decrease in the prednisone made me have the flare up. My doctor is thinking that I might have to stay on the very low dose of 5mg per day. I know we all handle things differently and I know I am unique but just wondering if anyone else has had experiences with prednisone.

but the good news is that I think I am on the upswing and walked the dogs with DH for 4 miles and then washed my hair! Woo hoo! We are also going to do an errand or two.

Now if we could just get back our electric(been off since 8am yesterday) so we don't have to run the loud generator so much, I would be happier.

Hope you all had a good St. Patty's day and are having a great day today.
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Member Comments About This Blog Post
    Ambien is showing to have some bad side effects. I think I would just stick to Tylenol pm for sleep.
    1550 days ago
    My son was on prednisone for asthma. I am glad to hear you
    are starting to feel better again. I hope the prednisone helps
    you until some other solution is found. Don't knock yourself
    around if you gain a few pounds as it will be from
    the medication. I hope you have a great weekend.
    1550 days ago
    Hi Sallie .. Glad you are feeling better .. Please make sure you come off the Prednisolone slowly .. It is to dangerous to just stop it .. I have Oestio Athritis .. It was caused by the Prednisolone .. My bones also are affected my this drug .. But as I said in a earlier answer to your Blog .. I am still alive .. Which I wouldn't be if not for this drug .. Take Care my friend .. Hugs Susie xx emoticon
    1551 days ago
  • LIS193
    I am glad you are feeling a bit better and got more info from your doctor. The higher dose of prednisone seems what keeps you functioning right now.
    DD was on it briefly when she was first diagnosed with RA at 14 but there was so much to deal with at the time that I cannot remember the specifics of what that particular drug did to her, the methotraxate side effects were much worse..
    1551 days ago
    Thank the Lord that you are feeling better!!! I don't have any experience with prednisone, but it sounds like going off of it is the reason you started feeling so bad again. God bless you and continue being positive!!!!! Have a great day!!!
    emoticon emoticon emoticon emoticon emoticon
    1551 days ago
    I'm glad you're beginning to feel better. Bodies are such complex things, and it's amazing how interconnected everything is.
    1552 days ago
  • _LINDA
    Glad to hear you are on the mend! Looks like prednisone is very effective but runs the risk of side effects. Maybe they wouldn't be too severe at such a low dose.
    Feel better soon, what ever it takes to get this flare under control..
    emoticon emoticon emoticon
    1552 days ago
    I have been on prednisone since 2000 and slowly coming off of it. It is great on getting the inflammation down but bad on the body. It will mess with your liver, eyes(makes things blurry), make you hungry all the time, and some people will make them angry too. Hope that you don't have all those side affects. Those are the ones that happens to me when I get to 20mg. I am now taking 5 mg M and F and on W I take 3 mg. I get flares but if I keep it for a while then it settles down some and I can lower the dose again.
    1552 days ago
    If the prednisone keeps you in good health then that is your answer. You make such an effort to eat healthy and take care of yourself.
    1552 days ago
    No idea what to say about the prednisone as I have only used it once or twice.
    1552 days ago
    1552 days ago
    I'm sorry to hear you're coping with the demands of Sjogren's, Sallie. I have been on methylprednisolone, which is similar to prednisone (perhaps a derivative? I don't know my biochemistry). I know how miserable that insomnia can get, too - not to mention that you're already coping with your symptoms. I was prescribed Ambien for two weeks while on my pred, and then I was tapered off. I'd strongly suggest asking your doctor about this sleeping medication or something similar to get you over the hump. It was completely non-addicting for the duration I was on it.
    1552 days ago
    I'm sorry you're still sick Sallie. I have never heard that autoimmune disorder comes GI track! I find that very interesting... Thanks for sharing! I have never been on prednisone ... but I'm glad it seems be working! I hope you feel better soon! Sending you a hug
    1552 days ago
    I was on it for awhile and had a bad experience with mood swings but that could have been perimenapause who knows if you are doing well that it is what you need hugs
    1552 days ago
    I hope you continue on your path to healing!! Walk on...
    1552 days ago
  • 123ELAINE456
    I hope that the Prednisone is the answer for you along with the diet that you have been on. You do very well on it. Glad that you are feeling some better. Hope in the next couple- three days you well feel very good again. Hope that you get your electric back on very soon too. God Blessings Always. Have a Wonderful Week. Hugs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    !!!Take Care.
    1552 days ago
    I've only been on Prednisone one time in my life @ tapering doses for a week. So, glad you've gotten some advice/information from those who have been through using it.

    HUGS and I hope that you feel better.
    1552 days ago
    1552 days ago
    I hope the prednisone will do the trick Sallie emoticon emoticon
    1552 days ago
  • GUNNSGIRL91303
    I also have Sjogren's as well as Lupus and RA. I have taken lots of prednisone in the past but I won't touch it now.

    Do you have any Naturopaths available where you live? Perhaps that would be helpful as a 2nd opinion. There are natural solutions to Prednisone but I don't know how bad your autoimmune status is and Prednisone can be helpful but should only be taken in short bursts.

    Of course you know it will put weight on you so don't beat yourself up if you do end up gaining a few lbs.

    Wish I had some herbal advice for you but I don't know your history well enough.

    My mother was on high doses of Prednisone for almost 20 years. It killed her (12 years after stopping the med). But that is an extreme case and (hopefully) they don't RX Prednisone like that anymore.

    Take care, hang in there!
    1552 days ago

    Comment edited on: 3/18/2014 4:11:33 PM
    I have taken Prednisalone for many years .. I was actually on 15 mgs a day for over 8 years for severe asthma .. I gained so much weight and blew out like a ballon .. I was 145 kilos .. Then a new drug became available and I was weaned of the Prednisolne .. It took me several years to lose the weight I had put on .
    I am almost down to a acceptable weight .. But of course had to go on another course of Prednisolone after suffering a Asthma attack .. I put on over 10 kilos .. But at least I could breath! .
    Now I am working on losing the weight I gained ..
    It's a wonderful drug and a life saver .. But the side affects can be very severe ..
    Hugs Susie xx emoticon
    1552 days ago
    I just went through a 25 day regimen of prednisone for my psoriasis. My previous experience with prednisone was a 15 pound gain. This time I was careful not to use it as an excuse and gained very little. So glad that the weight issue is not major for you; you are doing a great job maintaining!

    I have no personal experience with long term low dosage. My MIL took it for years for rheumatoid arthritis. She thought it was essential for her daily functioning but she did blame it for a weight problem she never had until she started taking it.

    Hope you find just what is right for you. -Marsha
    1552 days ago
    I'm glad you are feeling better, thanks to the prednisone - but I understand you would like to take it for as short time as possible.
    My husband takes it too for his Crohns' disease for a few weeks 2-3 times each year, when he has a flare up. Just like you, he feels better very soon after starting the medication. He takes 20 mg every other day (so as to let the adrenal glands work), and he has to take a proton pump inhibitor to prevent gastric ulcer.
    1552 days ago
    I've used prednisone off and on over the years, and every time I've been on it, I felt absolutely WONDERFUL. At one point I even asked my dr if there was something lacking in my system that required me to take predizone all the time, and she told me that there was a disease, but it was a terrible I would never want to have. Everyone is different, though, and if your dr thinks that you can maintain on 5 mg/day then I would explore that, especially since you seemed to be doing so well before you went on the lower dose! Good luck to you!!
    1552 days ago
    I hope the prednisone will do the trick. i can't take it as it makes me climb the walls.
    1552 days ago
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