Disgusted and frustrated
Saturday, November 09, 2013
I've been struggling with an unexpected case of edema for about a month or so. It came on overnight and has been very slow to resolve. It doesn't help that I can't exercise to move some of that fluid out.
I've also been on the specialist-wagon lately. First, my pulmonologist tells me (before the edema episode began) that the every-other-day diuretic isn't cutting it. Daily now. Okay, fine. I'm in the bathroom every 2 hours, round the clock. Except when I know I have to go out, in which case I just don't take it.
Then, the next trip a couple weeks later to the cardiologist... and he's not content with the daily furosemide. He changes it to TWICE daily. Fabulous.
And today, it's the endocrinologist. I've naturally gained weight, mostly water (even he says; but I'm not so sure).
So he asks how much water I drink, and I said, well, not as much as the typical recommendation - maybe 32 or so ounces a day... but I'm always thirsty. To which he replies - no! no more than 24 ounces per day until the edema resolves! I know in my mind this makes sense. But I'm already dying of thirst, and phlebotomists hate me because I'm always dehydrated to boot.
Then my husband, traitor that he is, offers that I eat too much salt (he isn't fond of salt, so he thinks no one else should have any, either). So the endocrinologist falls right into that and tells me "no salt!" I suppose it barely matters, since I'll have nothing to salt shortly.
He's also the one who's got us on this LC/Primal diet. That has been a good thing, and I'm glad for his direction. But I'm not nearly so happy about these new constraints. If he had his way, we'd be no/low fat, too. In the past we've agreed to disagree on that point, and it's been okay.
So, here's my dilemma:
I'm supposed to limit my carbs to 30 - 50 g per day. I can do that.... I did it in the beginning, and I do honestly need to get back there. I've let it creep up, and that just isn't working.
I have intolerances and sensitivities. FODMAPs and nightshades are nearly 100% off my list of edibles.
My gut can't tolerate much roughage due to scleroderma-related GI problems.
Similarly, I have to be very cautious with heavy proteins. I can eat lots of eggs, and do... but this creates a bit of stress for the endocrinologist, who thinks fats (ie egg yolk) are at least semi-evil. But I can digest them without distress. Meats, well. I have to eat small quantities and space them out.
I can't tolerate any cruciform veggies. Due to the low carb, I'm not supposed to have any starchy veggies. Or sugary ones, like carrots. I do eat small amounts of carrots, and we had a small skirmish about eating green beans because of the teeny little beans in there! sheesh I agreed to eat the frenched ones which possibly have fewer beany-seeds in them.
Someone please tell me what the heck it is I'm allowed to eat?!?
I quipped somewhat sarcastically that I ought to just quit eating and live on meds, supplements, and Atkins shakes. He (endocrinologist) says I can do that. I don't know if he's being facetious or not. But I'd better not drink *many* of the Atkins shakes, at 11 ounces per container! That's half my day's allotment of fluid!
So I'm mad and frustrated and at the moment I've decided to do exactly that. I know, after I've fasted a day or so, the hunger will go away. What I'll do after that, I have no idea.
Probably collapse from exertion slogging to and from the bathroom and end up in a hypoglycemic crisis in the ER. And I'm not diabetic.
Meanwhile, DH is playing up concern by offering me food. Well, I can't have any food. And any food that I might be able to accept isn't attractive to me totally sans salt. So there you go.
And maybe me, too.