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Life with MS and taking Tysabri

Thursday, July 04, 2013

This is my first blog, and honestly, I don't really know what I'm doing. My life isn't that special, but I started thinking that maybe some of my experiences might be beneficial to someone (if anyone bothers to read this). My name is Ronda, and I am 55 years old. I was diagnosed with Multiple Sclerosis when I was 40 years old. I think I had it a lot longer, but it became quite evident at that time. I dragged (literally) myself along and continued teaching. Finally, in 2008, my symptoms kept getting worse until my foot dragged, causing me to fall and break my ankle in 3 places. That was the beginning of a major downward spiral for me. I had taken Avonex (every 5 days instead of 7) and Rebif since I was diagnosed. I am allergic to Copaxone. My regular neurologist didn't know what to do, so he sent me to a MS Center in Charlotte, NC. I was living in Gastonia, NC at that time. It that there that they started me on Tysabri in February, 2009. I was terrified when I read all of the literature. But, that is the best thing that ever happened to me. I had flu-like symptoms every time a took an injection for all of those years. It was horrible. I am doing so much better now with Tysabri. I don't mean to sound like an advertisement for them, but I know how scary the idea of changing medications is. The other life changing event for me occurred on May 20, 2013. I had been using MS as an excuse (and the depression that goes with MS) to do anything about my weight. All of a sudden, that day I decided that enough was enough. I did an Internet search on "free on-line weight loss programs." SparkPeople came up as one of the first hits. I absolutely love the program. It has changed my life and attitude. I realize that I've only used it since May 20, but I haven't missed a day. I was so excited to find a blog for MS patients.
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Member Comments About This Blog Post
    And, Rhonda; we're glad that you found the Doing It With MS SparkTeam. Keep coming back!
    ~ Faith
    1804 days ago
    Thanks for sharing! I'm sure your experience will be valuable for someone out there who is thinking about changing their treatment plan, but is afraid to.

    Keep up the great work! Keep logging in to SparkPeople, it really does help!!!

    1806 days ago
  • ANGGEL40
    Hi Ronda, thank you for sharing..such an Awesome attitude change..glad you are part of the Spark family and Spark Louisiana..God Bless! emoticon
    1807 days ago
    it is nice that there is a place that makes us responsible for ourselves and that doesn't say all our problems are caused by the extra pounds we carry. MS is an interesting condition, as none of us have the same symptoms, or the same disease progression. i'm glad you finally found medication that helps you.
    1808 days ago
    Hi Ronda.
    And emoticon Glad that you found Spark People!Thank you for sharing your
    story.Good luck and best wishes on your Spark Journey! emoticon
    1808 days ago
    Thank you for sharing your amazing story!

    emoticon emoticon
    1808 days ago

    Comment edited on: 7/5/2013 6:06:19 PM
    Wow, you have a amazing story. Thanks for sharing. Through all that we are going through, we still have something to be thankful for. Great job on your first blog--keep them coming. emoticon emoticon
    1808 days ago
    Thank you for sharing!

    emoticon So glad you are part of the Spark Community! SparkPeople has been a Godsend for me, as well.

    Keep up the great work!

    1809 days ago
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