My aunt has myelofibrosis

Thursday, April 04, 2013

My aunt has cancer ( bone marrow) her cough has gone away and no sweating and her appetite has improved she looked better today more alert. emoticon

If you allow me to do one favor very breifely ....Thank you Ocean_Mist for gentle reminder on my aunt.. You read my mind....I was just about to repley on it tonight! emoticon emoticon emoticon

Ok ...Back to my aunt....She has rare condition ( thickness of the blood ( her case red blood cells) polyicimica Vera? Forgive the spelling) for most of her life. She has been taking a chemo drug for about 20 some years to keep the thickness under control and take blood each month ( yay) or once a week ( ugh) depending on her blood numbers.

Well lately her blood numbers has been wacky so that why there was tests going on for the last few weeks. First time her white blood cells were High -- Blood doctor say increase one more dose- the next week her numbers dropped about 50 points - whoa the doctor/aunt was schocked. They checked her numbers again but it good . Next day blood results more stable 3 point drop ok ... That was last week.

So the speicalist answer is silmar to the blood doctor. So far stay on cheo drug your on and keep an eye on things for while.
Yesterday the specialists said myelofibrosis.

So not sure if good or bad on myelofibrosis -- ( if anyone is a nurse reading this medical 101 please)but I'm somewhat encouraged by her improvement of her sympotoms for today.
Maybe that's enough for now ( grateful tears falling in my cheeks as I write this) emoticon
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Member Comments About This Blog Post
    I'm sending love and light flying to you and your aunt! emoticon emoticon emoticon
    2161 days ago
  • LINDA!
    emoticon I am praying for your aunt. She is fortunate to have a wonderful niece, YOU.
    2174 days ago
    I am so glad to hear about your aunt's progress. I read a little bit about it online (used search engine to find information) and it is a long term problem but I also read the different things people do to feel better. It sounds like she has good doctors and that is SO important plus she has her family and friends to love her and support her. Keep up with your goals here in SP and your creative endeavors, Dolly, so you can best help your aunt. I pray for you all and wish you the best! Have a wonderful, warm weekend. Love, Chelsea emoticon
    2175 days ago
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    2176 days ago
    I never heard of Myelofibrosis and I tried to google it and got Myelodysplastic Syndrome...which is what that TV anchorwoman had (I believe that's what she had). They did a bone marrow transplant for that...
    There are protocols for it and they can be looked up...Its important to call the doctor if she has a fever over 100...no raw fruits or vegetables...no flowers in the house...the water harbors bugs that you can't fight off when you are on Chemo.... Soft stools...no constipation...most infections come from the body...
    Glad she is doing better...its always an up and down kind of thing...I'll keep praying its up...
    2176 days ago
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