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Radiologist Report, Rotten Day, Hike Photos

Thursday, March 14, 2013

In the radiologist`s report, disease activity is marked by radiotracer uptake. In other words, the radioactive dye they injected into my vein goes right to where there is a problem.
Focal regions of intensely increased radiotracer uptake involving both mid feet, right hip and both shoulders. The finding involving the lower lumbar spine at L5-S1 spine level posteriorly, with somewhat more intense on the right than the left. This finding is likely on the basis of facet joint arthropathy.
So this is explaining the pain I am having in my back, more on the right, as well as the right hip, although my surgeon said my hip is fine for the moment according to the X-Rays he took. I have been ignoring the shoulder pain as the lower pain is worse, but do notice it more on the left shoulder then the right. The feet have always been a problem and I can no longer wear my orthotics due to the pain and changes on my right foot. My podiatrist can offer no suggestions what to do with it as the foot is visibly off shape.
I just learned I can`t get my medicine refilled, its expired. It would have not been a problem except my specialist appointment got pushed back to a later date so now I can`t get it renewed when I need it. I see her once a year and prescriptions always expire in a year. They have a new policy you can`t phone or fax in prescriptions now, you must see the Dr. No chance of getting in to see my family physician any earlier either, takes a month to get in to see her. We actually have a shortage of family physicians, its hard to get one.
I talked to the housing authority manager. Best they can offer is the carpet steam cleaned, no replacement :( I grew up in a home with tile flooring. I didn`t mind it and my allergies didn`t bother me there. It was so easy and quick to clean, wipe up spills, etc. Its my opinion that steam cleaning carpet method picks up nothing. He said they hope to work on the building`s roof and get this horrible ventilation system fixed, but is not sure when they will get to it. He asked me if there were any visible holes that the smoke could be coming in from and there aren`t any except the vents, one of which I blocked off, and yet comes in strongest there anyway :P
My morning was reasonable, but that was thanks to both the gabapentin and the narcotics. I am realizing I will not get much done without using them. When they wear off I can see how bad I feel. It was just a struggle walking home today, and there was an amazing amount of snow melt and slush which will make it bad this week when our temperatures fall back to well below normal again. I am thankful I don`t have to go out tomorrow!!
I have major things coming up with the club again, the time consuming rookie master game, the huge senior swiss teams two session club championship. Thinking about the upcoming spring luncheon to make the tickets and posters. Guess I am not getting a lull after all :P I did inform the club powers that be how I am struggling with health issues and how its the nature of the beast of RA that they can take off like wildfire leaving me incapacitated. I don`t know if they will have a response to it.
On my last day at Mom`s we went up the steep trail known as Stove:

Without leaves on the bushes, this trail looks more precarious then ever, with just a narrow path clinging to the side of the hill:

It was cold and windy being so open, so only a few photos before the fingers froze :P

Cant leave without a Daisy photo :) She has this unique habit of laying down with her front legs crossed -never seen that before in any of our dogs:

Sparkpeople made me angry when they changed my clock setting, costing me an hour of last minute Spark Point gathering as I am usually doing it just before bed :(( In all the years I have been a Spark member, my time was never changed. I am quite happy to be from the only place that doesn`t have to deal with that silly clock changing.
I filed my first income tax online today. Here is hoping its a success :P The software I used claims it was free, but prompts you for a donation.
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Member Comments About This Blog Post
    Ah Linda thus really sucks. I feel for you so much. I sending out a volunteer search party to find spring. I'm sure it must have lost its way. I finally realized just how late in March we already are and I've got 4-5' snow banks still with more in the forecast.

    The doctor situation in this prov is ridiculous right now. It's an embarrassing mess really. If you phone and explain the situation maybe someone else can see you just to refill your meds. They should also make a exception about the phone in to the pharmacy because your doctor is sick and your case is an exception. As a last resort ask family if they can call their doctor , explain it and thy may take you on temporarily. Worked for me. My sister in law pulled the strings for me. A lot of docs even if not taking new patients will make allowances for family. Good luck. Thinking about you.
    1922 days ago
    sorry Linda about the report and not being able to get your medicine but I love the photos you are sharing with us I miss snow
    1923 days ago
    Sorry to hear you're suffering so much. Isn't there at least a walk-in clinic that you could go to? Or, worse case scenario, ER? I just cannot believe that you cannot get an appointment with one of your doctors in order to get your prescriptions refilled. I know there's a doctor shortage but you have said that you have two doctors. If it were me and an appointment was not granted in the immediate future, I would go to my doctor's office and wait to see him/her. I have done this so I know that I would do this.

    emoticon doing your taxes online. I haven't started mine yet because of the whole online thing. Did you need to get special software or can you just log onto the Revenue Canada website and do them?

    Love the dog pic! I've never seen a dog lie like that either.

    Take care.
    1923 days ago
    1923 days ago
    I'm sorry you are not feeling better. This lousy disease...combined with a lousy medical system that won't let you see a doctor when you need one. I don't know what I would do if I got cut off of my meds...I would be very very sick that's for sure. I hope you can somehow get the meds you need quickly. I hope too the apartment super fixes the smoke problem in your apartment.
    That is one STEEP trail you guys walk!
    HUGS to you sweetie. Prayers to feel better.

    emoticon emoticon
    1923 days ago
    That is one of the reasons the U.S. does not want to go to the National coverage deal like you all have...leads to a shortage of Dr's, because they don't get paid as well. Why do you think so many foreigners migrate here to become Dr's...they want $$$$$$$$. They get rich here and we have poor insurance coverage and they get paid $$$$$$$. That is too bad about the RX situation...that would freak me out, especially if it were meds you had to have everyday! Like heart or diabetes meds!!
    Now you know what the problem is with your back, that is good, but yet you don't want to be in pain or have worse problems anymore. I feel for you Linda. Hang in there. At least you have a great family who can help you as time goes on and you can still take those great hikes! Even when I hike or now ride my bike, if I feel discomfort...I keep going! Better to be moving (Like you have said before) than to be sitting around! Sometimes it hurts worse then, with arthritis!
    Great pics and love the one of Daisy!!! emoticon
    1924 days ago
    emoticon emoticon emoticon emoticon
    I can empathize with the back pain - exactly what I deal with on a daily basis. Also on the gabapentin and pain meds. They have increased the first, and lessened the second.
    I love that your gift of photography pulls you in so much, and I love it more that you share your pictures. Thank you for being a Spark Friend, and all the encouragement you have given me.
    1924 days ago
  • LINDA!
    It is so adorable how Daisy crosses her legs! emoticon What a cutie. How I wish you had less pain today. But sending positive thoughts that tomorrow will be better. emoticon
    1925 days ago
  • ENUFF81020
    Hmm, we had a similar couple of days, my friend. I had an EMG and a visit to my pain doc which shows that I have damage in both shoulders and likely worse problems in the right that rarely bothers me except for tingling and numbness. The left gives me serious pain and it seems to be that calcium deposit that will require surgery if the injections don't work. (Then my ortho said that he was guessing that I didn't want more surgery...Hmm, I don't but I don't want debilitating pain either.) My pain doc realized that a source of the pain in my lower back is in my S-I joint and that can mimic the pain of my hip, my lumbar spine, and a lot of the other pain that I have been dealing with. Arghhh, there is no end in sight.

    It is flooding in our secondary river here and looks kind of rough, especially after the drought almost dried it up in several areas. We did a bit of sightseeing between grocery shopping and my appointment and South Shore Drive is 100% under water right now, flowing very fast. We are predicted to have snow and rain yet this week and neither will help this problem. People have had to leave their homes and we haven't even gotten to the part where this will dump into the Mississippi River. Living in a river town can be tenuous in the spring.

    I am really taking a break this time--I don't know that I ever have, but my body issues required it. I should have Megan's afghan finished by the weekend and then I am going to spend time on some mending. Resting doesn't mean being idle, it means doing things in the physical positions that don't tax my body so much. It is starting to look like you need a break from your club for a while. Maybe, we should combine our skills and work together on things, lol. Find someone to help you with some of this, it makes people feel good to be asked as well as important. It will help you to take care of yourself and that would make those of us who are worrying about you calm down a bit.

    I'm keeping you in my prayers, my friend.
    Gentle hugs,
    1925 days ago
    I too live in a SANE state in the US, that does NOT do the DST thing. We have enough sun here and to NOT need more!

    I too find I have to get in my sparking early now, because of the time thing. Aggravating.

    Well, I do have to get my taxes done myself, but am going to H&R block this year. Need more help than I get on line.....

    Hang in there Linda....so sorry about your medicines, and all your pain. The pits for sure.
    1925 days ago
    Love the pictures. Great steep snowy trail and great Daisy pix!

    So sorry for your pain, problems with the medical establishment, and general rotten day. I know you will do all you should and maybe all you can. Hoping you get to walk trails and pet Daisy enough to distract you at least a bit from your troubles. Hoping tomorrow is a much better day!

    Thanks for all your supportive and helpful comments on my blogs. You are a great SparkFriend!! -Marsha
    1926 days ago
  • LESLIES537
    That does sound like a rotten day! emoticon

    Will keep you in my thoughts and prayers! emoticon
    1926 days ago
    You are in my thoughts and prayers! May spring's warm surround you soon!

    1926 days ago
    emoticon to you, my dear friend. These are warm hugs too, to make your joints feel better. Us RA victims stick together and I'm thinking of you with warm hugs all the time. emoticon emoticon emoticon emoticon
    1926 days ago
  • KANOE10
    It does sound like a rotten day. Plus it is so frustrating that you have to wait until you see the specialist before they renew your prescriptions. That is ridiculous. Good for you getting out and exercising.

    1926 days ago
    Sounds like you have your hands (and feet) full...Sending pain free thoughts.
    1926 days ago
    I hope you feel better!! May tomorrow be a much better day for you as well! Hugs!
    1926 days ago
    I don't know how you endure it all, Linda, and still keep exercising and doing for others. Wishing you better health and freedom from pain.
    1926 days ago
    I must agree, it sounds like a rotten day, indeed!

    As an old saying says," Cheer up, things could be worse! So I cheered up and, sure enough - things did get worse." emoticon
    1926 days ago

    Comment edited on: 3/14/2013 1:22:16 AM
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