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Warning---Ranting ahead!

Monday, February 25, 2013

There are many hard working individuals out there. I'm sure many, many, many of you are. I know, I was one. So was, wait is, my father and my brother, all my uncles, some of my aunts (who weren't stay at home mothers), and even my bestestest friend in the world. My mother was a hard working housewife who, never let it be said, sat on her butt eating bon-bons all day while my dad worked his two jobs, as a railroader and an electrician. She raised us kids rights. I can't help it if my older brother went down the wrong path. . .anywhooo

Yet, now that I've have had brain surgery

(photo coming up but it's not that bad)

and 3 pelvic bone surgeries to remove bone tumors, a myriad of other major surgeries, and finally a spinal fusion (sorry, no photos to share of those areas!), I am unable to hold a steady job. And am fighting, yes, fighting for disability! I worked from the time before leaving college to 2003, when the brain surgery and then skull repair surgery occurred. Oh yes, I had to have a second crack open my skull because it didn't heal properly and I was leaking spinal fluid from between my brain and my skin. Doesn't that just sound great? It looked like I had a cantaloupe on the back of my noggin!

I fought back though. I was determined to get back into the work field. But, nobody wanted to hire someone who had had brain surgery. The mere mention of brain surgery and the interviewer's eyes would glaze over and I could just see the "OMG she's going to die tomorrow, we CAN'T hire her" come over his face.
What was I to do?

I started working at a last resort school for violent and behaviorally challenged students but the first year there, I got caught in the middle of a fight and was clocked in the back of my head and received a concussion for my efforts not to mention severe pain from having the scar area hit. The second year, I was moved to a handicapped unit and was bit, punched, kicked, spit on, shoved, and the final straw was when a highly functioning autistic young man brought a fully loaded hand gun without a safety into the room. I was the one responsible for removing it and locking it in a safe location. After all that, my doctor said, ENOUGH! You will leave that job. You can not risk your safety. So, I resigned and again began job hunting finding the same glazed over looks. Finally, I took a position as a cashier, which was the very first job I had back in 1987. I did enjoy it though. Then I broke a vertebrae lifting a 24 pack of Pepsi and that was the end of that. And for that effort, received my spinal fusion. And thus continued my

I require some daily medication. The most expensive one is Cymbalta. Now, I'm sure you've seen those commercials that say, "if you can not afford your medicine, blah blah pharmaceuticals can help you out." And so, I was getting my Cymbalta through the
But, guess what? Because I now have ZERO income, I am told

I'm sorry, what was that again? I don't think I heard you correctly.

How is THAT possible? The conclusion I have come to?

Yep, work hard, do the right thing, play by the rules, and you will be screwed!

I'm tempted to go out on a tangent and rant against those who don't work, except on their backs, and play the system for all it's worth but I don't think I need say anymore.

I'm fairly certain that you understand I am

Now, I have to check with my PC physician to see if there's any combo medications that I can take that this (THANK GOD IT'S THERE) Faith Community free pharmacy has, otherwise I will have to go off my depression medication and we ALL know that's never a good thing.

My final thought for today~~~

~~~ps. I promise to try my best to have more upbeat blogs than rants and downers but, I just had to get this out of my system. I hope you understand~~~

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Member Comments About This Blog Post
    I am sorry you are having such difficulties. It really stinks especially when you want to work but can not.......

    Have you inquired about Eli Lilly's program?

    Here is a link, it is worth a try:

    I think you will qualify since you have no income.

    I truly hope this helps!

    2243 days ago
    So sorry to hear about your struggles. It does seem that the disability system seriously needs an overhaul. When I was seriously ill and couldn't work for a few months I could not get ANY help from the government, my son, my blessing, paid all my bills until I was well enough to work again. I wish you the best and hope everything works out well for you sooner, not later.
    emoticon emoticon
    2244 days ago
    I hope you can keep on fighting for disability. It can take a long time to get it. It sounds pretty awful to suffer as you do.
    2244 days ago
  • BEEJAY49
    I had my rant yesterday too. We can all look forward to better days ahead. I know the "system" sucks and you're sure right about getting "screwed" for trying to do it the right way. Love you! HUGS!
    2244 days ago
    So sorry to hear about your struggles. Try to keep your spirits up!

    I know some other people in the same boat you are. (Well almost) They need special medical attention or medicines and can't get them because of the expense (No insurance or huge co-pays). It's as frustrating as you say and I think you only gave us the tip of the iceberg.

    And go ahead and vent, it'll make you feel somewhat better and I, for one, don't mind listening.

    2245 days ago
    That is what this is for to get out the frustrations that is holding us into the life we are trying to change. I am so sorry for your health problems and the issues of getting your medications. I hope that you find some help somewhere! Vent anytime! emoticon
    2245 days ago
    I am so sorry to hear about your health issues and those with bureaucracy! It's mind-boggling how so many people can work the system to their favor when they don't deserve it. Then someone like you comes along and the system doesn't hesitate to slam the door in your face! Is it possible to get your dr to help in this fight?

    I really feel for you. I wish there were something I could do for you. I'm not e en familiar with how the process works as I live in Canada.

    Take care & don't give up! I'm with you in spirit!

    emoticon emoticon
    2245 days ago
  • MAGA99
    so sorry 4 ur struggles

    fighting 4 disability is such a hassle / what is really messed up is that ppl who get out of jail can get it quicker

    I have much less struggles then u and have been fighting for almost 3 yrs
    I heard that getting on going mental help will help if I m in regular treatment - which I wasnt receiving due to no insurance
    2245 days ago
    2245 days ago
    I am so sorry to hear about your health issues. I hope you find relief soon and get your disability claim resolved. I am here as a shoulder for you, I just wished I could do more. Keep pushing and fighting for what you need.
    2245 days ago
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