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Combined a mini-vacation with an important appointment

Monday, February 11, 2013

My husband and I got back from a mini-trip to Kansas City (about a 3-hour drive).

We drove up Sunday afternoon and spent the evening and night at a motel. (We always our KC motels, and get nice ones, for a good price.) We lazed around all morning, and followed that with my bi-annual appointment at KU Med Center with my MS Specialist.

I commented, during the part of the neurological where I had to walk on my tip-toes and my heels, and walk toe-to-toe, how much better I thought I was doing that than I had two years ago. Dr. Lynch agreed. She thought it was a combination of my medication change in 2008, my weight loss in 2010/2011, and the less frequent and less severe MS flares in recent years, giving my brain an oppotunity to heal a little bit.

Since it has been 5 years since my last MRI, and, since I haven't had one since switching meds from Betaseron to Copaxone, Dr Lynch would like me to have an MRI before my next appt in August, just to check on what changes there might be since 2008.

~ Faith
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Member Comments About This Blog Post
    Abby - I would trust your neuro on the once a year appt thing, esp since you are encouraged to call if anything comes up. I switched docs once. They both required twice a year visits.

    I haven't had an MRI since 2008. and 2003 before that. Had 7 MRI's in 2002-2003, prior to dx.
    1905 days ago
    Happy to hear about your improved health.
    I've been on Copaxone since January, 2001, and so far so good.
    I have great fatigue and short-term cognitive issues, some tingling and little issues, but so far things have been pretty good.
    I am on my 3rd new neurologist since the last two left the MS clinic. I was having MRIs done once for my brain one year and the next year one for my spine since I have lesions in both.
    My new neurologist thinks that 2 times a year visits are unnecessary and that a yearly visit is enough in my situation. Unless, of course, something comes up I should call immediately.
    I was relieved that 2 visits are now reduced to 1 a year, but now I'm wondering if I should be worried.
    What do you think?
    1905 days ago
    I got the "you're definitely in remission" report from my neuro, too. I attribute it all to the weight loss and more healthy eating. I just don't eat the fried foods and processed junk that I used to. I feel so much better. Oh, there are still 'days', when I have the tingling, and the brain fog is pretty constant, but I am so glad not to be inside a hospital four times a year!

    1917 days ago

    Comment edited on: 2/21/2013 9:56:21 AM
  • VALI_T
    That's great, Faith! I always love good reports from neurologists. When I try to walk on my tip toes or walk heel to toe I can only take one or two steps before my neurologist has to catch me because I fall over. emoticon Hopefully if I stay on Copaxone and lose some weight I'll see the improvements you've seen. Keep up everything you've been doing because it's obviously working. emoticon
    1925 days ago
    That sounds very positive and encouraging! emoticon emoticon emoticon
    1925 days ago
    It sounds like you made the best of what could be a frustrating trip. I am headed to Topeka today for work. I am hoping to get there in time for some mall walking before I hunker down in my motel
    1926 days ago
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