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Roller Coaster Care....

Monday, January 07, 2013

Many troubling thoughts are in the fore-front these days. Dooms day has arrived and I am not standing or walking.

Physical therapy released me this morning and I have many mixed thoughts racing through my mind...

* In the beginning, they stated they have an aggressive therapy program and WILL have me up walking before I leave. Perhaps they shouldn't make promises they don't intend to keep! And those basic exercises are aggressive? Hardly....

* They often ask if anyone has tried - a platform walker, a knee brace, standing from a higher surface? Yet no-one follows through....

* On Dec 7th I asked why my engorged Lymphatic legs weren't being addressed? OT / PT sees every patient twice daily for therapy - WHY are our concerns / questions not being addressed to the nurses, to then be addressed to the doctor? WHY do we always have to be our own advocate?

Miss Perky Pants is able to keep everyone else in good spirits...but I'm struggling to do the same with myself. I took a long nap yesterday afternoon and the day brightened up a bit.

But dealing with all this crap at 60 does NOT make me look forward to the next 30 years... longevity bites!

Time to put on my big girl panties and look for alternatives. I NEED to get some independence back for sanity sake!!!
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Member Comments About This Blog Post
    Dang. The care you're getting there sounds sloppy at best. I know the nurses, doctors, aides, etc are all harried and probably overworked, but your good health is worth fighting for Annie, thank God you're not one of those timid people who are afraid to ask questions about your own care! The squeaking wheel gets the most grease, Annie, so you just keep right on demanding better care, better answers and never give up on yourself. I know it's got to be frustrating at best and disheartening at worst. Please don't give up though. Continuing prayers from me for your return to good health. Love you.
    2227 days ago
    I can see why that is frustrating. Be more demanding I guess. Hope you get the care you need. emoticon
    2232 days ago
    You remain in my thoughts and prayers, Annie. Please continue to advocate for youself as it doesn't appear that anyone else is going to do it for you!!! I don't understand why your leg issues aren't being addressed although Ken's doctor says there are enough people out there who understand what lymphedema is or what to do with it. I am finding all the time that that is a very true statement.
    Keep up your great work, Annie!!! Do not give up!!! YOU CAN DO IT!!!
    Blessings and hugs,
    2232 days ago
    If you still can't stand or walk what goal did you reach for pt to release you? I'd raise heck, Annie girl, and demand more attention! If you don't advocate for yourself no one else will. Thinking of you always, my friend. Hang in there.
    Hugs, Di
    2232 days ago
    You're in my thoughts and prayers Annie. I'm glad that you're advocating for yourself. They definitely need to address the leg issues. LOVE ya
    2232 days ago
    Sending good vibes your way Annie, and prayers that they find something to help you. ((HUGS))
    2232 days ago
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