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Life on the Spectrum...a mommies point of view

Sunday, November 25, 2012

Life is challenging, raising children difficult and raising an Autistic child is the greatest challenge I have faced to date.

When you live on the spectrum life is not normal, it just isn't....you can try to have as normal of a life as possible but it is so different from everyone else that you start to become isolated, a little island unto yourself.

Things that many people take for granted and do daily with their children are "deal breakers" for my son and results in the horrific meltdowns that can last for days. You take your children shopping and although there may be an issue over a toy or candy bar not purchased, our struggles start right at the door with the security monitors, they cause a severe fear reaction in Michael, let alone the electronics department, forget it...can't remember the last time we browsed that aisle. Organized sports...nope isn't going to happen without the one on one assistance of a specially trained adult. The worst part isn't even the meltdowns, I know why he has them and can deal with them the best that I can. It's the looks from others, either the pity in their eyes or their obvious scorn of either my child or myself. The whispers of what's wrong with that kid or the not to veiled whispers of bad parenting.

It seems there is a price to be paid for everything, even enjoying a Thanksgiving meal with family (of course that usually means a relatively large crowd of 25+ people). Michael has been horrific since Thursday night, one meltdown after another and my nerves are wearing thin.

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Member Comments About This Blog Post

    For some reason this reminded me of the whole concept of Spoons ( http://www.butyoudontlooksick.com/n
    avigation/BYDLS-TheSpoonTheory.pdf ). While it isn't you that is sick as is the case for the author of that, as the primary caregiver you do have the challenge of figuring out how to have enough resources, emotional and physical, to keep yourself from wearing out and to help your child as much as possible.
    2001 days ago

    Comment edited on: 11/25/2012 1:09:44 PM
    do you get/or can get respite care? Sounds like you need to get some down time for yourself.
    2002 days ago
    Watching Parenthood, and how they deal with their autistic son, has hopefully opened the eyes of many people to what's going on. From that, I can see it would be a very rough row to hoe. Praying for strength and peace for both of you.
    2002 days ago
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