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PCOS and IUD issue

Tuesday, November 13, 2012

I was diagnosed with PCOS at 19 and I have learned to live with it. I have found that diet and exercise makes me almost completely asymptomatic so life as a PCOS girl is as close to normal as it is going to get for me. For those who don't know what I am talking about, I have Polycycstic Ovarian Syndrome. It is a hormonal imbalance that causes a mutlitude of issue some of which include, loss or irregularity of menstraul cycle, loss or irregularity of ovulation, it makes you three times more likely to develop ovarian cancer, and it creates little polyps or cysts in your ovaries which can be dangerous but typically are just annoying for the above-mentioned reasons.

One of the hardest things for me has been finding a birth control method that will regulate my periods without causing other issues. It has been really hard to find the right one because it has to mesh chemically with the already wacky chemical and hormonal imbalance that I have. For years I had been on Yaz with no issues and it was the only birth control that worked well for me. THey have recently stopped prescribing it so I was trying to find a new birth control. Now I may add that typically fertility is not something a woman with PCOS would worry about. However, the moment diet and exercise regimes are in place and the weight starts to come off, our fertility sky rockets! I have been pregnant three times and each time came as a result of a drastic weight loss. Unfortunately, I also have an incompetent cervix so I am still child-less at 29. Considering that i will be getting married in ten months, I do not want to get preggers especially since after dropped the initial 25 pounds, I began ovulating again.

About three weeks ago I got the Mirena IUD put in. It was a horribly painful process, like a PAP smear on steroids, but after day 2 all the cramping and discomfort had subsided. The doctor told me that one of the more common side effects of the Mirena is ovarian cysts. At that, I chuckled because I already have a sack full! The doctor told me that in my case, it may cause the small cysts to actually combine and form a larger one. Now that is scary. My cousin, my mom and her sister all had to have an ovary removed so that is a real risk for me. But I was so mesmerized with the possibility of ridding myself of menstral cycles that I overlooked it. Well the past week or so I have been having sharp pain followed by dull, pulsing pain in my right ovaries. I have even experienced the dull pain in my left. I have had no bleeding or spotting but something is telling me that I may have a larger cyst developing. When Derrell and I tried to be intimate, it was painful. Last night as I was falling asleep, I started to feel like I was having contractions . I had to take an Ibuprofen 800 just to fall asleep.

I am not asking what should I do because I already know i am going to have to make an appointment, but has anyone else had trouble with IUD's?
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  • ALLISON145
    Yes ma'am... I was actually diagnosed with PCOS when I went to have my Mirena removed because it was causing me problems. I was one that got the large cysts from it. Very painful, and nasty when they burst. :( Everyone's bodies are different, but be sure to keep an eye on it and if anything doesn't feel right, see your doctor.

    1983 days ago
    I pray for you my dear. I've been through the fibroids and recently had surgery to remove them. The pain was unbearable and the bleeding worst. So I say go get checked out and make sure everything is okay.
    1983 days ago
    I'm not sure if I have PCOS, but have had intermittent problems with ovarian cysts throughout the years. After having my 2nd child I got the Mirena IUD. After I got it I found that almost all intimacy was uncomfortable and sometimes painful. I also ended up with a lemon-sized cyst on one of my ovaries. It was one of the most painful points of my life so far. I only kept the IUD for 1 year before I had it taken out. It wasn't for me. I didn't want anymore babies after my 2nd, so I got my tubes tied. Now I wish I hadn't gone that route.

    I would give it awhile before you think about taking it out. Your body might adjust. I've only heard of a few women that weren't able to keep it. My Dr. told me that my cervix might just be extra sensitive. I think I was only the 2nd or 3rd person in my town that had Mirena removed.
    1984 days ago
    Hello Nikki!
    Surprise , surprise, I am living proof of Positive PCOS life living! I also am on my 2nd Mirena. However I DO take Glumetza(an insulin enhancer, type of Metformin) to help with the PCOS.
    I think the first 3-4 months of the Mirena are tough...with the cramping and body becoming accustomed to a "foreign object" in there. It may be that you might have an infection that you just need some antibiotics for?
    The good news is that it's worth it! It helps with the painful period(like after my 3rd period, I barely spot....for the next 5 years!). More good news, I took mine out after 4 years to have another baby(enter little Miss Adia). So if you want, you can take it out and get pregnant the following month without complications. Then I had her & after I was done breastfeedin, added Mirena #2.
    I didn't have many problems with the additional cysts, probably because I'm on Glumetza which is regulating my PCOS very nicely. I feel like my hormonal self has stablized!! I know people try to stay away from medication, I understand...but I wouldn't go back off of it if you paid me. I feel SOOOOOO much better!
    Shoot me a SparkMail if you want to chat more about it!
    1984 days ago
    I don't have any personal experience to share, but I just pray that the pain dissipates and you find a solution that works for you.
    1985 days ago
    I haven't checked it recently but maybe I should, because after I lost the weight my TOM is not as regular as it used to be... I'll keep an eye on it and see how it will go.

    I hope it's nothing serious, the best you can do is visit the doctor so you won't have to guess or be in pain. The sooner, the better! My thoughts are with you!

    1985 days ago
    I have PCOS also!! I've never tried the IUD but I am on the NuvaRing. It seems to help me out better than an oral BC. Good luck and I feel your pain!
    1986 days ago
  • PURPLE180
    I too have PCOS...never knew how many women had it. After losing weight last year (72 pounds) I ended up pregnant with my daughter (my son was 10). Even now at 80 plus pounds down I still have the random cramping but my cycle is regular (I could live without it, lol). I have not had an IUD so I am not sure on that...I have heard that some people have problems with it. Praying for you and wishing you the best.
    1986 days ago
    I don't have one, but one of my best friends got Mirena last year. She had the worst most painful periods for the first two months, and odd pain like she's never had. But then it went away, and she wouldn't change a thing! She also mentioned it felt like she was having contractions. Best bet would be just to get checked out to be safe.
    1986 days ago
    I have actually had an IUD for 16 years, I am on my second one. Both have been the copper t style, called Paraguard. I have never had ANY issues with the IUD, I LOVE it, they would have to pry it from my cold ,dead uterus emoticon Would that style work better for you, since it is non-hormonal? Best wishes!
    1986 days ago

    Comment edited on: 11/13/2012 2:42:05 PM
    IUDs always scared me.. So I don't have any advice on that. I have know friends who had difficulties and had to take them out and I had friends who forgot they had them because they never had a problem.
    I have PCOS as well. :( I take Oral BC. I would rather not because it is doing a doozy on me emotionally. After 10 years, I had all but given up on having babies. Then, I lost +80 pounds.. and Ta-Da! Had a baby. LOL! I am scared to not take BC because what if I am all of a sudden fertile..
    PCOS is a @$*&$. My biggest complaint is the sharp random pain and the totally unneeded chin hair. What the hell is that all about anyway!
    Well, I will cross my fingers and keep you in my thoughts. Hope the doctors are able to work with you and figure this out..
    1986 days ago
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