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2 days at Mayo Clinic with my daughter

Wednesday, May 02, 2012

My daughter, who is 27, has tried several cholesterol meds over the last few months. She's had many side effects or they haven't lowered her cholesterol enough. It's a family thing with lots of early heart attacks & deaths. I've blogged about this before regarding my own situation. Long story short, we ended up staying an extra day for more tests. She had blood drawn twice, a chest x-ray, EKG, stress test, calcium scoring, and a scan of her carotid artery. I'm not sure I'll get this all straight, but I'll try. The dr. feels her situation is interesting because she should have shown some inflammation in the arteries through her bloodwork, but there was none. Her carotid artery was clear, but she did show a very low score indicating she's already got some plaque in her arteries. I've had the same test, 10 yrs. apart, and he feels like mine is moving slowly, so that was good news For now, he's trying a couple meds and will add others if this doesn't do enough. There are also 3 new ones being developed that she could try in the future. If no meds end up working she would have to be on ultrafiltration for the rest of her life. She would have her blood filtered weekly to remove the cholesterol. We're hoping it doesn't come to that and it sounds promising that something else will work. The most interesting thing was how much he stressed exercise. He even said he wasn't as concerned with weight as he was exercise. It's been proven that people who exercise have 30% larger arteries than those who don't. He recommended she do cardio for 1 hour, 6 days a week. That means I need to do better too. April wasn't my best month.
On another note, after I finally decided to take the job with the students with behaviors for next year they told me they might have a couple kids to add to my class which would keep it open. After waiting about 8 weeks, I'm keeping my current classroom so all that stress and decision making wasn't necessary. Go figure.
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Member Comments About This Blog Post
    What a tough situation. Hang in there. Keep seeking answers. And be good to you! Keep up the good work! Thanks for the encouragement! Spark on! emoticon
    2149 days ago
    I hope your daughter's cholesterol situation gets resumed quickly. Cholesterol is such a common problem. I also have a little higher cholesterol.
    It seems to me that everything in the body gets better when exercising. The body becomes healthier all over, with weight and medical conditions.

    2172 days ago
  • LE7_1234
    Glad everything worked out for next year!

    The exercise component is amazing, isn't it? In normal situations, even half an hour makes an enormous difference....

    Have you ever seen the video 23 1/2 hours?

    2173 days ago
  • SALLEN111
    Hi, now I understand some of what you meant when you said you weren't having the best time right now. I hope things get better for you and your daughter. Like you said, hang in there! And thank you for being so encouraging even in the midst of your own struggles.
    2178 days ago
    My heart goes out to you and your family, with the heart history! You are right on top of things, though. THANK YOU for sharing about the exercise component. It frustrates me greatly that I have been banned from all exercise because of the Chronic Fatigue. But, not working in ASD has really helped the last few weeks. I AM getting better! Anyway, I can't wait to share your info on exercise with my husband.

    SO GLAD the classroom situation worked out. Yep, that's how it is. It's a numbers game and they sure love(d) keeping us hanging in the balance with worry, don't they?

    Have a great day!
    2180 days ago
    Interesting fitness and cholesterol stats. I'm doing well with numbers, but the exercise has fallen off a little as my oldest does baseball. I'll have to pick it up.

    Glad you have your job situation settled.
    2180 days ago
    Wow, 30% larger arteries is a big difference. Thanks for sharing that information. Hope your daughter's cholestrol numbers get better quickly! emoticon
    2180 days ago
    Hopefully the meds work for A! And doesn't that always figure that you stress for nothing?! At least you'll be happy next year. I'll be doing the same thing next year that I'm doing now as well :)
    2180 days ago
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