Check out this website! www.littlemendedhearts.org. My daughter's BFF was born with CHD and she had to be put on a heart transplant list 2+ years ago after failed treatment with meds and lifestyle...Luckily she was given a heart August 2010 and a new start on life. She is a healthy, happy, amazing 13 year old little girl now. We had another friend that lost their little 2 year old boy to CHD in November 2010 after a battle, long hospital stays, and a short time on the transplant list. We all need to be aware and do what we can to help.
I copied and pasted some info, but please see the site itself. After all...we just wore our red yesterday for Women's Heart Health via American Heart Association. (GO RED for women).
February 7th to 14th we need to wear red for our little angels with CHD!
For many parents, hearing the heartbeat of their unborn child becomes the first loving bond to the child. The discovery of a child’s heart defect, whether diagnosed in the womb, shortly after birth, or during childhood, is often devastating.
When parents hear the news that their child has a heart defect, many feel hopeless and alone. Mended Little Hearts, a program of the Mended Hearts, Inc., lets parents know that there is hope and that they are not alone. Mended Little Hearts was created to help restore hope through a loving community of people with shared experiences.
Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951. The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.
Congenital heart defects are the most common birth defect in the United States occurring in nearly 1% of births
There are approximately two to three million individuals in the United States with congenital heart defects. Because there is no U.S. system to track congenital heart defects beyond early childhood, more precise estimates are not available.
Thanks to improvements in survival, the number of adults living with congenital heart defects is increasing to about 85%.
Most causes of congenital heart defects are unknown.
In 2009 the hospital costs for children with congenital heart defects was nearly $1.5 billion.
Mended Little Hearts relies on the support of individuals, corporations and foundations to help us provide hope and support to thousands of children with congenital heart defects and their families and caregivers. We are very grateful for all donations that have made it possible for Mended Little Hearts to offer services that give hope, help and healing since 2004 when the program began.
You can help Mended Little Hearts families by:
Making a one-time donation
Making a recurring donation
Creating a personal fundraising page
Making a tribute gift
Supporting a fundraiser
Supporting the Congenital Heart Walks
Providing items for care bags for families with children in the hospital
Winchester (this is our local chapter)
Mended Little Hearts of Winchester
Contact: Megan Setzer