Wednesday, January 04, 2012

Hello sparkfriends,

Today, my 18 year old said to me that he wishes that he "lived" on the moon.

"There's no gravity there!" This statement tugs on my heartstrings because he

has muscular dystrophy and his muscles are too weak to manage his body weight

and gravity is one of his enemies. He went on to say many more things about the

advantages but I couldn't really get away from that statement. You see, every

now and then I am reminded that my son has many obstacles to face on a daily

basis. I guess I don't always see them because I am somewhat used to his inability

to do physical things, yet I don't always realize that it doesn't mean he wouldn't

want to. He is such a trooper and I don't know that I say it to him enough. I guess

I just found myself a new challenge. I want him to know that in my heart and

soul I see him struggling with pain and weakness and all that his physical

disabilities entail and I am truly proud of who he is in spite of all of these

adversities. I love him with all of my heart and I would give anything if I could

"FLY HIM TO THE MOON" just for one moment so he may have total control of

his mind, body and soul.

I will share with all of my friends that I am truly blessed with my sons' courage,

humility, intelligence and love, every single moment of my life and I wouldn't be

who I am if it weren't for him.

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Member Comments About This Blog Post
    Hey Twin. How you can actually be so strong to deal with this is incredible and inspiring. You are both such a powerful source in other's lives. If you can picture this...Mary, gave birth to her son, Our Lord and Savior. As a mother, she was well aware of all the pain that her Son was destined to experience in life. How she was able to endure this as a mother is but by the Grace of God. I love you so much and pray that God give you the grace and mercy to continue to endure yours and Ne**'s journey. I hope I can be there with you both so that you are not alone in this battle. I love you!
    3392 days ago
  • TEDYBEAR2838
    Thank you for sharing that. He sounds like a very
    special young man.

    Sometimes we don't realize what they are thinking
    and when they say it out loud, it makes us more

    Blessing on you and your family in 2012!
    3394 days ago
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