500-999 SparkPoints 958

Josephine HarleyQuinn

Friday, July 30, 2010

Hi I am home and it has been a really long day but I have to share that things are even worse than we knew with lil quinn she has a genetic disease. That there is no cure for it cause mucus on the brain and of course in her lungs. They have no treatment for it either. There 3 yr old may have it as well and has to be tested as it just may not be flared up yet.With the same situation she is no longer on anything but oxygen and iv she gets meds not to have a seizure but they are not to revive her it is just a matter of time and that is where we are at with this precious Angel.I was able to be there for her Christening as well as Hold her and bless her as well.She is so tiny it was if I was just holding a bundle of blankets.The Angel did out of reflex or what ever it wants to be call grip my finger and that is a touch I shall never for get.We all Know she will soon be one of the true Angels of above soon.But the Touch of Angel I have be blessed with.
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  • BELLE!
    I want to thank u all so much for your kindness.I wish I had alot better news to share but at this time I do not she has gad several seizure and has even stop breathing again in the past day so they are still not giving us any hope.They say it is still just a matter of time.
    3736 days ago
  • no profile photo CD2562942
    There is nothing to say except that I am thinking of you and praying for you and your family. Such a sad thing!
    3736 days ago
  • SHERYLP461
    You and her family are in my thoughts. My blessings as well.
    3737 days ago
    God bless the little angel and may he place his hands and heal her! Our prayers and thoughts are with you and her family!!
    3739 days ago
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