Friday, July 30, 2010
Hi I am home and it has been a really long day but I have to share that things are even worse than we knew with lil quinn she has a genetic disease. That there is no cure for it cause mucus on the brain and of course in her lungs. They have no treatment for it either. There 3 yr old may have it as well and has to be tested as it just may not be flared up yet.With the same situation she is no longer on anything but oxygen and iv she gets meds not to have a seizure but they are not to revive her it is just a matter of time and that is where we are at with this precious Angel.I was able to be there for her Christening as well as Hold her and bless her as well.She is so tiny it was if I was just holding a bundle of blankets.The Angel did out of reflex or what ever it wants to be call grip my finger and that is a touch I shall never for get.We all Know she will soon be one of the true Angels of above soon.But the Touch of Angel I have be blessed with.