FINALLY !!!!!!!!!!!!!!!!!!!!

Tuesday, April 20, 2010

The other day when I said I was so happy was because I found a nurse, yes after almost a year. I didn't want to jinx it by getting my hopes up-no I'm not superstitious! (knock on wood!) emoticon

That morning when I woke up 3 things in a row happened good. I don't even remember the other 2, just that Cindy has accepted the position. My only nurse Marie trained her Fr-Sun, and the agency even payed her! Complicated story but the Waiver program obviously only would pay for one nurse but Cindy's agency "picked up the tab" She came in last night to work by herself-within 15 minutes my John had started with a seizure, within minutes it was full blown, and # 1 John-John is safe # 2 she didn't flip out!!! She said she's in for the long haul! She is so kind, talks to John gently, tells him whats she's doing, talks to him like the adult he is, and not baby talk. What will I do 3-4 nights a week??? Oh that's right SLEEP !!!

Its been a struggle, as you my Friends know. John is my life, a part of me, and hope no one thinks "I'm opening my mouth all the time with all my woes" I hope I share the good of myself with the bad, because that's what I believe friends do, share-----

Last but not least, keep my John in your Prayers, he goes for surgery 4/29 at 9am for that darn urethral stricture that has come back. I know it hurts John, and am trying to keep John comfortable as possible until this procedure is done. I love him, what can I say, John is a part of me as are all my kids.--Thank you again my Dear Friends for standing by me, I know it's been a strain, and at times Ive broke down, but I'd like to believe I do have a pretty good disposition, and do think,say,act positive! emoticon emoticon emoticon to all!!-Kathleen
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Member Comments About This Blog Post
    How lovely for you, your family and most of all John.
    4006 days ago
    It's so great that you found a new nurse! My hubby and I seldom get to do things together, and haven't had a vacation in over 20 years. There's nothing more important in this world than taking care of our son!
    I love reading your blogs, and reading about your love for John the way we love our son, Eric. emoticon emoticon
    4030 days ago
  • CHUPAL01
    What great news! I hope you get the rest you deserve, and that John gets the care he needs as well!

    I also hope to hear that John's surgery goes well. Anything to help ease his pain and help him to be more comfortable.

    4030 days ago
    Girl, I have got my fingers crossed for you that this nurse works out. And John is definitely in my prayers. Stay strong.. Much love.
    4038 days ago
    Kathleen, it's been a long time coming but sounds like you hit a winner. So excited for you. Will keep John in my prayers. Now, get some emoticon

    sending you lots of emoticon

    Mary Anne
    4039 days ago
    Kathleen - you're wonderful, and never a 'down' person. I am thrilled you have found the right nurse - you deserve it!! After you sleep for about a year, start a new hobby (with all that extra time - LOL!!

    Blessings and prayers to you and John.
    4039 days ago
  • no profile photo CD5699183
    That is so great you have a nurse Kat. I'm happy for you, look out sleep-time, here you come. And no, I don't mind hearing about John. I have seizures too & I know how they take their toll out on not just the person having them, but family as well. So I'm with you there. John is definitely in my prayers as you are too. You are not "opening your mouth...". I know what you mean. Go ahead and let us know your woes as well as the good times. That is what we are here for. You and John are in my heart and prayers!

    Love, Em emoticon emoticon
    4039 days ago
    Kathleen, so happy you have found someone you can rely on and trust! John is in my prayers; take some deep breaths and feel your blessings right now, my friend!

    Hugs back at ya,
    4039 days ago
    I've been hoping to hear this wonderful news!! I'm so happy for you, and for John, that you have found a wonderful nurse. Enjoy your time. Sleep, read, breathe, heck, you can even sit and stare at John some more if you want to!! emoticon
    4039 days ago
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