I hate Doctor visits...

Friday, February 26, 2010

I had a doctor's appointment this morning with my rheumatologist. He already diagnosed me with Fibromyalgia and Ehlers-Danlos syndrome (one of the effects of EDS can be found in my picture gallery i.e. the bendy joints) Now in addition to that I've developed premature osteoarthritis. At 18. For the pain caused by these three things he's started me on ANOTHER medicine. I have to stop the strength training so I don't know what I'll do there. He pressed on my joints to check on something or another so they're sore now.
I also have another physical therapy appointment. He's sent me to two other PT places and they had never heard of Ehlers-Danlos (not many people have) and so they had no idea what to do. This time he's sent me to the hospital itself instead of a clinic.
After the doctor's visit, mom and I went to Wal-Mart to pick up the prescription. I got a new wallet! It's so soft. ^-^ My old one was about to fall apart.
Anyways, five and a half hours away from home for the doctor's appointment, going to Wally world, and doing errands and such (actually just along for the ride) and when we got home I had to take a 2 hour nap and I was still tired when I was woken up for supper.
My dad is a truck driver and he's home right now. When he's in everybody tends to overeat. Like yesterday when he got home he brought home three pizzas, tortilla chips, salsa, and several liters of my Pepsi, which I haven't had in ages. I gained 5 pounds. Today he barbecued chicken, ribs, and sausages. I'm afraid to weigh in the morning.
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  • no profile photo CD862737
    Welcome to the EDS Club! Haha.
    We're a one-time, life membership, and we're all a little whacky with sometimes a strong sense of black humour to laugh about dislocations and stuff!

    Definitely make sure you get a PT that understands EDS. If they don't they need to be studying up on it and getting advice from someone that does.
    A PT who doesn't understand it can be the WORST thing possible.
    I had a PT who put me into a wheelchair. I told him again and again and again that the things he was having me do for my hip were making it worse. He refused to believe me and said I wasn't doing the exercises, I was being lazy.
    No... I was doing the exercises, and they destroyed my hip!

    Do NOT take no for an answer if something feels wrong.
    Often things will feel weird at first if you're moving muscles you haven't moved for a while, and obviously getting joints stronger will feel strenuous for a while... but if it is seriously hurting and limiting motion of the joint, or causing too much motion (myhip dropped out of socket and everytime I put weight on that leg, it collapsed), make sure you talk to the physio, be strong, be firm.
    I wasn't firm enough, I trusted him because of his qualifications. But he didn't understand hypermobility.

    Bad mistake!

    Best of luck with it all, and I have joined the EDS team, three of us now! Hopefully we can do this together :-)
    3794 days ago
    Hang in there!!! emoticon emoticon emoticon
    3821 days ago
  • JLWOF1
    Don't be so hard on yourself. Everyone has their "rib and pizza" moments. You just have to learn to eat in moderation. Hope you feel better today.

    3821 days ago
    3821 days ago
    Don't be afraid, just weigh and move on from there. Stumbles are going to happen, it's choosing to get back up that makes the difference. I have a hard time turning down ribs myself (my husband is awesome on the grill) I just eat some of them and add an extra lap on my walk or cut something else out at dinner. Your not going to give up your favorite foods forever, you just have to learn to eat them responsibly. You can do this. Hope you feel better tomorrow.
    3822 days ago
    Oh my, you did have a full day and you NEEDEd a nap!
    emoticon emoticon emoticon
    3822 days ago
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