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Baby almost died, self care and caregiving

Wednesday, January 13, 2010

Sun. the baby almost died, he couldn't breathe, really, really bad asthma. I'd given him multiple albuterol treatments, plus pulmacort, prednisone and augmentin. He was retracting severely - he was working real hard to breath. I rushed him to the hospital, they said I should have called an ambulance. He almost died. A team spent 4 hours trying to stablize him. For 24 hours they pumped in hourly (and sometimes constant) albuterol, prednisone, atrovent, pulmacort, prednisone and stronger antibiotics. They finally got him stablized. The next day (yesterday) they sent him home. SCAREY! He's still in very rough shape. My stress level is through the roof. I learned how to listen to his lungs from the respiratory therapist. He now has a suction machine as well. To add to the stress my 6 and 15 year old are sick (as am I), my partner is out of state with a terminal parent, my refridgerator died (10 days - no fridge....)..The upside is I tried to take care of myself through this stress. All of my kids really needed me to be available as their caregiver. Instead of just emotionally eating, I thought "what will be the best fuel to help me fight this bug and sustain my strenth?". It really is being different in making it through this crisis (not done yet). Interestingly when the baby came home I collapsed emotionally and then I ate some doritoes, but still it was minimal compared to historical coping binges. As I ate them I thought about their calories and would it really make me feel better, I decided a large portion (not the whole bag)wouldn't be disastrous, but that I would also eat something healthy as well. Now to get through the rest of this, as consciously as possible. This little babe has come into the world under extremely harsh circumstances, he's already beat incredible odds by being born, his will to live is powerful and through it all his disposition remains sweet and charming - he just started giggling! Some pics, hope you don't mind..I'm off to the nebulizer and suction machine...and meds...

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Member Comments About This Blog Post
    Healing Light, Love, and Prayers for you and your beautiful family, especially Sun. What a beautiful aura he has, just like his name. Be Blessed and know God's angels are watching over you. emoticon
    3356 days ago
    this sounds like my life a few weeks ago apart from the fridge being broke that old is your baby?my son has just turned 13months and since he is born he and his older brother has been in and out of hospital several times.end of last year i thought my baby was actually dead.did a blog about it.luckily he wasn´t but it is a fear i live with since the moment he is on pumicort 2 times aday and atrovent and salbutamol 3 times a day.his older brother(7)is on vianni forte 2 times a day and salbutamol as and when needed during the day.i know how tough it can be and like you i am dealing or trying to with emotional eating.for some reason this year my motivation seems high and i hope it will stay that way.but it was also high last year and i lost alot of weight only to put most of it back on again in a very stressful time with the two kids being very ill my man and me also being ill.but this year i am using new stratagies to deal with binge eating etc.and plan to succeed.if you like we could maybe do it together.take care and i hope you and your family remain well.
    3356 days ago
    I'm glad he's better. You're right - taking care of you helps you take care of him and your others. Take care and I will keep you and yours in my prayers.
    3358 days ago
    He is beautiful, I am so glad he is here with us still. I wish I was there to help you myself. Keep up the good work my friend. Love, Jetta
    3358 days ago
    What a little cutie pie I hate to think of that little angel so sick in the hospital. Bless your heart for standing by him. He's a lucky little guy to have you there with him. Hope he can get strong and healthy. emoticon
    3358 days ago
    What a beautiful angel you have. I will keep you & your family in my thoughts and prayers for a speedy & full recovery. Good for you remembering that the caregiver needs all her strength.
    Sending you many, many positive vibes.
    3358 days ago
  • TINYC887
    awww how precious. You and yor family will be in my thoughts
    3358 days ago
    Your son is so lucky to have someone so caring taking care of him. As long as you remember to take care of yourself to, you'll all be fine.
    3358 days ago
  • F8CONE8
    He is beautiful and you are beautiful for all of the love and caring you give to all of your children. I admire you so much. Hugs - Carol
    3358 days ago
    What a gorgeous little boy! How lucky you are to have him. My thoughts and prayers are with you and your loved ones as you work though this time of crisis!
    Healing thoughts!
    3358 days ago
  • OPAL50
    How frightening to have a baby that is so ill! You indeed need to care for yourself so you can handle all this chaos (severely ill baby, sick children, being sick yourself, broken refrig and absent partner due to a family crisis of her own). Do you ever have a minute to yourself? You must make time if only to stop and take deep breaths.

    What a SWEET face!!! He is a survivor- this little guy! You can see the giggle rising on his face in the first picture. And, I love the pucker on his mouth in the first closeup.

    Take Care! emoticon
    3358 days ago

    Comment edited on: 1/13/2010 6:19:13 PM
    Beautiful baby! I have a brother who is a severe asthmatic and I can remember many late night trips to the ER. He took classes on breathing and all kinds of related things growing up. He, too, was a very happy child. He still did a lot of normal things and now works as a painter and drywall person. He uses the dust masks, nebulizer, inhaler, etc. He would be much healthier in a different profession but he likes what he does and can, for the most part, work around the illness. It did take a lot of prayer and a lot of patience from my mom and others.

    He did complain one night that they kept sending him back to the Children's Hospital because they had his records and were used to dealing with him - doctors knew him, etc. He said, "I have to be the only 25-year-old who still gets treated at Children's Hospital." Mom and I asked that day as we were leaving - the other hospital was closer to home as well - and they finally allowed him to go to the other hospital. He joked about how he felt like he'd finally become an adult. On the serious side, he said he'd felt as if they were telling him he wasn't going to live much longer by not letting him go to that other hospital.

    Good luck with your child! Hot cocoa might help you (hot liquid, a treat) for stress - they have sugar-free packets. I always found plain orange juice helped my allergies. Everyone is different.



    You AND your baby are survivors!
    3359 days ago
    What a beautiful baby! How lucky he is to have a mother who is able to handle the stress and the emergencies that will come your way. Stay strong and know that you are being held up in prayers by your friends here at Sparks.
    3359 days ago
  • no profile photo LRINGER
    My thoughts are with you & your family.Keep strong
    3359 days ago
    What a beautful baby hugs for you all and warm wishes
    3359 days ago
    Awwwww what a cutie he is so adorable. My thoughts and prayers are with you and your family.
    3359 days ago
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