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1/3/13 12:14 P

Let me say upfront that I am completely biased against the Mirena IUD. I had a large fibroid before the IUD was inserted, and I asked for one without hormones, and was told they are not available in the United States, so the Mirena was prescribed instead. I had gradual weight gain over 2 years, but no pain or discomfort - but my stomach got HUGE. I started getting nervous about the IUD, thinking I had a tumor or something. I went in to get it checked out, and the first thing the nurse did was give me a pregnancy test, b/c I looked pregnant. They did an external and internal exam, and finally an ultrasound. I had a fibroid tumor (not cancer, thank goodness) that was the size of an 18-week fetus!! Fibroids are known to be "fed" by hormone treatments, and I should never have been prescribed an IUD with hormones. I wound up having an emergency complete hysterectomy, with a huge incision, b/c my uterus was so big. I am angry that this happened, and that it was a direct result of the hormones in the Mirena IUD. I am also sad, because even though I am "done" having children, I am somehow hurt to lose the cradle where I carried both of my children for 9 months each.
As far as advice for you is concerned, you should not live with chronic pain associated with a medical device, and you should not have to rely on prescription pain meds. At your young age, you should not risk losing your fertility like I lost mine. Go to a different doctor and get a second opinion. Even if the Mirena IUD is not the problem, this condition seems to be and should be resolved if possible. Good luck, we'll be praying for you.

1/2/13 5:09 P

I have had the Mirena for 10 months now. So far no real problems. I haven't had a period in 3 months, but I think it is because I'm going through menopause. I am not pregnant. I am 50 years old and was put on the Mirena to get me off oral contraceptives. Occasionally, I have cramping, but it isn't severe.

MRSALLYP SparkPoints: (0)
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1/1/13 6:41 P

I agree with the others you should talk to your doctor again. I had Mirena before but didn't have those symptoms other than the weight gain but did have emotional/mental ones while on it! Hope all turns out fine!! btw... if you search the boards for Mirena you will find a lot of women that have had good and bad reations to Mirena!

BRIANASTEELMAN SparkPoints: (11,940)
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1/1/13 6:19 P

I have the IUD and have had some similar issues. The first year was HORRIBLE and it turned out that the Mirena hadn't been put in far enough. I had to have it removed and a new one inserted. That would have been seen on the ultrasound so at least that isn't your issue. I had a cyst the second year. It felt like painful stabbings. My doctor told me to wait it out and it would go away by itself. After a few weeks the pain subsided. Cysts are pretty common so that is why the doctor probably shrugged it off. My mom gets them often so it is something that I have kind of expected I will have. But if the pain is unbearable you should definitely talk to your doctor again.

SPARK_COACH_JEN Posts: 65,752
12/29/12 6:28 P

Hi Jess

I'd make an appointment to see your doctor again to discuss the symptoms you're having. They would be the best person to address your concerns.

Good luck!

Coach Jen

JESBLOS SparkPoints: (3)
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12/29/12 4:01 P

I am 27 years old and have had three children. After our last child I had the Mirena IUD implanted because I wasn't sure if I was done having children. I have had the Mirena IUD for 2 years now and within the first year I didn't have really any problems besides an increase in weight gain. Now, just in the past year, I have been experiencing side effects that I would rather not be having. In July I started experiencing quite a bit of abdominal pain, almost like a menstural cramp at it's most painful. It became pretty constant from day in to day out. I made an appointment with my family physician and he was also concerned so he referred me to a surgeon that specializes in women's health and prescribed me a low dose of Nortriptyline 10mg to relieve the pain. From there the doctor suggested a non OB ultrasound to be done. I was called back with the results a couple days later and the surgeon stated that I have a small cyst on my left ovary and his recommendations were to have the IUD removed to begin my periods again (my periods stopped all together within the first month and I haven't had one since) and to get back on a regular cycle. He stated that he did not believe the IUD is the cause of the cyst. I am fairly healthy and have never had any problems prior to this and at this point I have not decided if I want to remove the Mirena because I'm not sure what the problem is. I like the Mirena because I have not had to deal with periods and it's been a reliable form of birth control for my husband and I but if it's the source of the problem am I just making things worse by leaving it in? The doctor did not schedule me with any other appointments and shrugged it off like it was no big deal. I am still in pain and most days the pill I'm on doesn't help and when it does it's for a short amount of time. I'm so confused! What should I do?

Edited by: JESBLOS at: 12/29/2012 (16:11)
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