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ICEDEMETER Posts: 1,332
6/11/13 11:26 A

The recommendation to go and see your doctor and a dietitian is a good one --- I have a couple of friends with Lupus who have had a lot of success with working with a dietitian to figure out a diet that works specifically for them, and we've noted that their "foods that work for me" lists are very different.

As for the calorie levels, I have the same situation where there are days (or weeks) where exercise just is not going to happen. What has worked for me is to not look at single days, but to look at the month as a whole. For example, if you found during the last month that you were able to exercise a total of 2400 calories worth, then divide that by 4 and assume that your average weekly workout is 600 calories. Put that in to your Spark info along with your starting info and goals and go with the range that they calculate for you. Some weeks you might be at 100 calories of exercise and other weeks at 1500, but over the course of the month it will all work out. I never worry about an individual day, just that my averages work out over time.

You also will want to keep in mind that your body will be using calories fighting with itself, so you may want to consider keeping your goal to losing 1/2lb to 1lb per week max. This will keep your ranges a bit higher to allow you to intake enough nutrition to cover what the lupus is using up.

It is especially important to work with a dietitian who is familiar with both lupus and whatever treatment you are on. Prednisone and Rituximab both pose different challenges when it comes to nutrition, and I'm sure other treatments do, too.

Kudos to you for your success so far, and good luck with continuing to figure out what works best for you!

NIRERIN Posts: 14,273
6/11/13 6:59 A

there are options. one is to set your calories burned number to zero to see what the ranges would be with no exercise, save it, note your ranges, and eat in those ranges on those sick days.
one thing you should remember though is that while you aren't exercising, you're body is probably burning a fair amount of calories fighting on the cellular level, so you may not want to go too low because you want to give your body enough fuel to make you functional again. so you may want to eat closer to maintenance or a little under your loss ranges, provided you are eating more than 1200 cals [if you can].
and it all will depend on how you feel eating on those off days. do you want more calories? do you want fewer calories? if i were in your shoes i would figure out about where i was best eating on those days and just call that the path of least resistance and do that on those off days. since they're happening about three times a week, i'd also take a look at calorie cycling and figure that those three days a week that i was eating high/low/maintenance are what they are and plan out my four good days to accommodate those off days. so if my ranges for the week were 1400-1750 cals and i was tending to the not wanting to eat on those off days, then i would eat less on my off days and a little more on the good days to balance it out. so if i were naturally tending towards eating 600 cals on those off days, i would try to make sure i was getting 700 on the off days, leaving another 700 cals to make up three times a week, or 2100 cals. since three bad days means four good days, that translates to adding 525 cals to the good days, or making my ranges on those four good days 1925-2275 so that on average, i was in that 1400-1750 range i wanted to be in. if i wanted more calories on those off days [and i wasn't just going to call it okay to eat in maintenance on those days, which is another option, albeit one that leads to slower loss], say 2100 cals, i'd eat in the 1200-1550 range on the days i was feeling okay to balance it out.

SLIMMERKIWI SparkPoints: (250,105)
Fitness Minutes: (41,449)
Posts: 26,956
6/11/13 4:54 A

I really think that you are best to ask your Dr this! There is a strong medical component to your needs. He/she may also refer you to a Registered Dietitian to help you as well.

I wish you well for this to pass speedily!

Kris xxx

ALIUHOH86 SparkPoints: (172)
Fitness Minutes: (35)
Posts: 10
6/10/13 11:00 P

I have Lupus and on days like today where I'm barely getting through the day fighting 102 fevers, nausea, throbbing lymph nodes, swollen aching joints, nerve pain and a migraine, exercising is the last thing in the world I want to do. These days happen often (a few times a week or several times a month), so I'm wondering how should I alter my eating to accommodate for not exercising on these days? Is there a certain percentage I should reduce my calorie intake by?

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