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HARLEQUINADE's Photo HARLEQUINADE Posts: 42
8/12/11 7:38 P

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I've had crohns sine I was 14 and being almost 24 now, I've had the bulk of my issues in the last year and a half. All of a sudden foods I could eat send me to the Emergency department with full obstructions. I used to be able to eat salads but they are now off limits. I used to be able to eat vegtables but I can only eat some steamed. Left and right safe foods are starting to hurt me and not just a flare for a day or so, full blown obstructions. I'm currently on Remicade but it's not helping that much. I had an infusion yesterday and I'm already having a bad flare. I get obstructions every few months and I keep getting pushed to talk about surgery which I don't want.

I have heard so many bad things about surgery, how it doesn't actually fix it and I'll just need more surgeries later down the road. Right now when I go into the hospital, I get put on morphine for the pain and then a few shots of steroids, get sent home with presidone. That clears it up for me and I guess I'm thinking if I'm going to keep having these problems every few months, why not keep getting presadone instead of cutting out pieces of me?

I'm very worried about the amount of time I would have to take off of work to get surgery, not to mention I'm already on displinary for missing so much time due to being in the hospital. I'm also scared I'm going to wake up with a colostomy bag, either temporary or permeant. I don't know why I'm so scared but I don't want one at all. My uncle had one and he was just a skeletal mess.

I'm not sure what else I can do to manage my flares and obstructions, I feel like I'm running out of options.

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