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CELTIA51's Photo CELTIA51 SparkPoints: (8,371)
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11/4/13 1:41 A

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The specialists involved in a pain study I was in decades ago confirmed that insomnia is definitely connected to my fibromyalgia. In a double blind test they tried several sleeping pills, Elavil, Lorazapam, Clonazapam etc. I found the best one was Clonazapam taken only when truly needed as it is less addictive this way. The others left me totally dopey well into the next day when they worked at all.
This wasn't part of that study but Gabapentin (Neurontin) helps a lot more for sleep as it seriously relieves RLS (I also get the same kind of spasms in my arms; would that be ALS. lol)and often allows sleep. This is an anti-seizure medication and works on the leg spasms in the same way it does on epileptic seizures. No addictive tendencies either.

I believe absolutely in my Lord and Saviour Jesus Christ.
My personal motto is that a day without learning something new or finding something to laugh about or be grateful for is 24 hours wasted.


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DAZZLEANNIE's Photo DAZZLEANNIE SparkPoints: (672)
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10/29/13 10:22 A

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I never thought of the fibro being associated with the insomnia... I'm taking lorazapam to get to sleep.. but I think there must be something better...

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CELTIA51's Photo CELTIA51 SparkPoints: (8,371)
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10/19/13 3:16 A

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After being diagnosed abt 1980 I still find some days are great or good and as you say, some days I can't get out of bed or off the couch. I have found that I don't get as angry at my body or as frustrated as I used to but sleeping well and waking with energy to face the day is a major goal.

I believe absolutely in my Lord and Saviour Jesus Christ.
My personal motto is that a day without learning something new or finding something to laugh about or be grateful for is 24 hours wasted.


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COCONNOR80 SparkPoints: (226)
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10/15/13 9:20 P

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I have recently been diagnosed with fibromyalgia. I'm take 11 pills a day, vitamins & prescriptions, in hopes of feeling some relief. Some days are great & others I can't get off the couch. I don't sleep well at all & have tried several things. My newest trial is an extra tramadol at bedtime to see if it helps. I will have to let you know...


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9/7/13 8:35 P

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I was diagnosed with Fibro in 2004. I take so many medications, sometimes I wonder how they know what to do. I have good days and bad. Back in February I had a chair collapse with me, and since then I have been in pain all the time. emoticon

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CELTIA51's Photo CELTIA51 SparkPoints: (8,371)
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9/5/13 6:35 P

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I'm in the same group. After being in a pain study while living in London, Ont, I have been on Prozac and occasional sleep meds for sleep and pain control. Also on Neurontin for restless leg syndrome. My fm pain is mostly under control but as osteoarthritis is part of the package I have my major problems there. Had knee replacement last year and it has helped but building up strength is hard and the main problem is with my spine; osteo and fused discs (congenital), that means I can't walk without a walker of walking poles or I am slumped over and in intense pain. No meds help this at all.
As for sleep, my biggest problem is trying to have a regular wake/sleep schedule instead of days on end of sleep followed by days of being awake.
As for Cymbalta, my specialist advised strongly against it due to severe and dangerous interactions with other meds.

I believe absolutely in my Lord and Saviour Jesus Christ.
My personal motto is that a day without learning something new or finding something to laugh about or be grateful for is 24 hours wasted.


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CHERIJ16's Photo CHERIJ16 SparkPoints: (63,339)
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5/6/13 8:53 A

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I have fibromyalgia too. I was finally diagnosed in the 80s after many doctors and much frustration. I have been on a low dose of Elavil since then to help me sleep better. It does help me when I remember to take it before 10:00 in the evening. I tend to stay up until 1 OR 2 AM if I don't. I still have a lot of pain but I work through it. Some of it is osteoarthritis. I have been afraid to try Cymbalta (?) and some of the meds for fibro because of all the side effects they list. I am also trying the chamomile tea at night.

Good luck to all of you. This is a pretty miserable disease and most people don't understand it. If anyone has other tips I would love to hear them.

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AMYTHECRAFTER's Photo AMYTHECRAFTER SparkPoints: (13,845)
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4/21/13 8:22 P

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Hi fellow fibro insomniak,
I also have your problem.
I've been having better luck with natural aids, such as:low doses of melitonin, valarian root capsules, or tea, 5HTP and or camille tea. But not always a cure all, I also find if I'm more active during the day I can drift off easier with the aid of 5HTP and a little melitonin an hr or 30 min before I want to fall asleep. emoticon

Edited by: AMYTHECRAFTER at: 5/5/2013 (19:22)
I started out top weight 245 but that was when I actually got on a scale. I was diagnosed with fibromyalgia almost 20 years ago. Over the years I've learned that I do so much better when I eat organic foods and I haven't eaten red meat in years I have been gradually working more raw foods, vegetables and fruit into my diet. I avoid drive through resturants like the plague.


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DLEONARD824 SparkPoints: (2,535)
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4/8/13 3:07 A

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I have had fibro for 20+ yrs now and sleep has always been a problem. I'm still up and it's 3:00 am even tho I swear every day I will go to bed early. I am a true insomniac, just can't seem to turn off my brain and go to bed. Some medicines help make me drowsy but I forget to take until right before I go to bed. I am incorrigible, but I soooo want to change and start living in the daylight with the rest of the world. I could use a friend who understands fibro. So many don't, including some family, but I see the signs that family are developing it too.

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PURPLEDRAGON6's Photo PURPLEDRAGON6 SparkPoints: (216)
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4/5/13 5:38 P

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None of the medications for fibro have worked on me! I am getting frustrated, I am in constant pain and I don't sleep very well, so I am always tired. I don't know what to do anymore I have started seeing a new doctor recently and hopefully she will be able to help me more than my last doctor! emoticon

Edited by: PURPLEDRAGON6 at: 4/5/2013 (17:39)
“I believe that everything happens for a reason. People change so that you can learn to let go, things go wrong so that you appreciate them when they're right, you believe lies so you eventually learn to trust no one but yourself, and sometimes good things fall apart so better things can fall together.” Marylin Monroe Quote


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EBONYSOL's Photo EBONYSOL Posts: 2,361
8/5/12 6:48 A

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I use Cymbalta to control my fibro. My poor sleep has more to do with my bipolar disorder. At the right dosage (between 90 and 120 mg) my fibro is no longer a BIG PAIN IN THE BODY but rather a background ache.
Good luck in your search for some respite.
Cath

Slow and steady wins the race.



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9/25/11 9:43 P

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I can understawhere you are coming from. I have fibro too. I often have wierd taste because of my medicine. ish you the best.

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MSHELEN21's Photo MSHELEN21 SparkPoints: (146,091)
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9/25/11 8:37 P

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HI there and welcome to the team. Sure hope you are able to find what works for you in getting you sleep and dealing with the Fibro pain.





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WOLFSPIRITMOM's Photo WOLFSPIRITMOM SparkPoints: (67,422)
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9/25/11 11:16 A

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Hope the exercise helps you.

CSTzone, Wpg, MB, CAN Leader Corrosion of Conformity, Winnipeg Sparklers, Positive Thinking.

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FRISKY_FELINE's Photo FRISKY_FELINE SparkPoints: (5,158)
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9/24/11 11:17 P

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I was officially diagnosed with fibro in 2002 or 2003, but had been having pain and fatigue for years prior to that. It has always boggled my mind that I could be so exhausted from the fibro but not be able to sleep. I have tried various meds, (ambien, flexeril, rozerem, lunesta). Lunesta 3mg works very well as far as helping me get a sound night's sleep, but sometimes I feel groggy the next day. It's kind of like dancing with the devil. Plus, for me, it tends to make certain foods taste bitter.

Something else I've had a problem with is falling asleep and then waking up from severe pain that is unrelenting.

Now I'm trying gentle exercise by using a Pilates machine, and next week I'll be starting exercise classes in a therapy pool. One class is for fibromyalgia, and the others are for arthritis. I'm also going to start a Tai Chi class. All of this is designed to help relieve my pain and help me sleep without meds.

I really understand where all of you are coming from, and I encourage everyone to hang in there. I honestly do know how tough it is to deal with this pain and how it affects every area of your life. I've already started blogging about my Pilates, and as soon as I start my water therapy classes, I'll start blogging about those also.

"It is better to light one candle than to curse the darkness."
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