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TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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6/12/14 8:50 A

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Some nights I drink a glass of wine. when I am wound to tight

"The greatest thrill in life is doing what people say you cannot do."


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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
6/10/14 10:51 P

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It sometimes helps if I use the grain and dairy snack about an hour before bed. There is something about the combination that soothes and helps you through that wake-up time (about 3 a.m.) until a reasonable time in the a.m. to get up.

If you have some of the pain conditions, work on getting them under control also. Some of the docs in Utah were hard to convince that such a thing as Fibro existed--but mine finally had to come around to recognizing it. Fibro and other painful conditions bring their own needs.

It's amazing what great Weather Vanes we become, huh? Mine detects storms/low pressure areas about two days away. How about yours?

Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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THEPKK130's Photo THEPKK130 Posts: 28
6/5/14 8:05 P

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I am so like My Genius I have Fibromyalgia and menopause too. But the worse for me is that I have chronic pain in my knee and my back, I take 3 trazadones at night for sleep. Weather does make my pain worse. Last night we had thunderstorms and I was hurting. So the medicine didn't work. Awake all night. Went to sleep about 6 AM this morning. Now I will have my days and nights mixed up. emoticon I hate it when that happens, it takes a long time to straighten them out.

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1BOSSMOMMY's Photo 1BOSSMOMMY SparkPoints: (8,998)
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3/18/14 1:10 P

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Hope it's a good morning for everyone else.
Today I am being a turtle in my shell since a storm system moved into our area yesterday about dinner time. Just after my Rookie 5k training program I notice I was beginning to feel achy so I prepared dinner and then I was red flagged out of action for the rest of the evening. As the snow began to fall heavier I came alive with pins and needles all over my body and joints that resisted my movements and my muscles burned hot with pain. I tend to multi-task on TV. computer, crocheting or reading. Anything that will draw my focus in so strongly that I back burner in my brain the discomfort. My husband came into the bedroom at about 10:30 pm. and laughs at me dong three four activities at once. I was watching The Voice and my avatar on a computer game do her own thing, on TV. , crocheting a minion for my granddaughter, and listening to my relaxing music on my IPOD. I'll do whatever it takes to draw the focus away from my body and draw my mind into an external happening. Usually a really good book will do that for me The book I am presently reading is a slow high school level fantasy book that I read so I quickly get bored and fall asleep one. Not a good one to read when I am in a lot of pain because I don't identify with any of the characters and get involved in their activities. Come visit my on my Sparkpage sometime. Slow and steady is my motto for today.
emoticon


To me HEALTH means Energy. Stamina. Flexibilty. A relatively pain free body. Enjoying healthy food. You are your body, and your weight loss efforts will succeed exactly to the extent that you mange to do the work on behalf of your embodied self. You’ll do much better when you focus on making positive changes to improve your health and well-being, rather than on fighting your bad habits.


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MYGENESIS Posts: 1
3/7/14 9:20 P

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When I was initially diagnosed with Fibro--almost 20 years ago, the doc told me that they weren't sure if the lack of sleep caused the fibro, or if the fibro caused the lack of sleep...but, that there is a definite correlation between the 2. I knew that when I do not sleep well the fibro is at its worst.

For me it is of the utmost importance to ensure that sleep happens...It only happens with Ambien. (all other remedies have been unsuccessful), I do not have a problem falling asleep, but, I wakeup 2 hours later and remain fully awake for the next 5-6 hours, and then exhausted, crash for an hour until the alarm wakes me.

Menopause only served to compound the issue, as in addition to the night sweats, hot flashes, etc., I developed Tinits in both ears. It is almost deafening at times.

The problem now is that I am developing a tolerance to the Ambien and feel toxic after so long. I have tried to eliminate the dependence on it but fall right back into the same sleep pattern as before...Would love to have natural, uninterrupted sleep. Here's to Dreaming :)

TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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3/6/14 7:25 A

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Go to health food store and ask for Chaste Tree

It has help me

"The greatest thrill in life is doing what people say you cannot do."


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MRSHCASTRO Posts: 1
3/4/14 12:45 A

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Depression,anxiety , chronic pain, bladder issues and no sleep make for one cranky wife and mom! I just can't find the energy for anything and when I did, I'm either in too much pain or I know doing something will cause me pain. I've recently tried getting better with vitamins. I listen to my ipad in bed at night so the hubby's snoring doesn't drive me crazy and pray every night for a good nights sleep. I'm only 40 but I feel 50.

TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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10/28/13 8:14 P

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emoticon

"The greatest thrill in life is doing what people say you cannot do."


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LBJNIC's Photo LBJNIC Posts: 541
10/26/13 9:42 P

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today they didn't seem to help. emoticon

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TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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10/8/13 6:05 P

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emoticon

"The greatest thrill in life is doing what people say you cannot do."


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10/5/13 12:02 P

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Hi, I am new to SP. I also have been diagnosed with fibro, but I do wonder if that is a correct diagnosis. I have a problem with exercising. I work full time, and I am very weak by the end of the day. I usually have to lay in bed before I even get up to eat dinner. Also, I am a healthy eater during the day, but my sleeping meds make me so hungry, I end up eating before I go to bed, or even sometimes in bed. This has been going on about 10 years now, my weight has increased. (I'm also menopausal now). I need to break this cycle. I have been to different doctors, but not much help there. I would to take my health into my own hands.

TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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9/25/13 7:36 A

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I have slept well the last few days, fall is here

"The greatest thrill in life is doing what people say you cannot do."


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HAPPYLISA17 Posts: 213
9/24/13 9:42 A

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I am in perimenopause; I am lucky if I get three hours of sleep per night.

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TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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9/14/13 8:25 A

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somewhat, I have to make sure I turn of the TV, and block out all outside noise...

"The greatest thrill in life is doing what people say you cannot do."


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TOCTILE SparkPoints: (38)
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9/13/13 12:26 P

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Has a sleep diary helped?

TIMEHASCOME56's Photo TIMEHASCOME56 SparkPoints: (39,489)
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7/30/13 5:08 P

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menopause, I am dealing with that now. I have restless sleep

"The greatest thrill in life is doing what people say you cannot do."


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CJEANIEB SparkPoints: (2,235)
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6/18/13 2:38 P

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I have had fibromyalgia for almost 40 years, but was only diagnosed about 15 years ago. Have restless leg syndrome, too--just as you do. I have gotten so used to not sleeping it's unreal. I also have an intense aversion to taking anything that makes me feel out of control or not able to instantly wake up. Part of this is due to my husband's health, (disabled), but also stems from things I don't want to go into. The more years I go without adequate sleep the more muscle knots I get. Do you get those, too? They are small, hard knots usually in the thighs. Your muscles "knot" up, Anyway, you are not alone.....lots of us out there.

KERENCHAYA1's Photo KERENCHAYA1 Posts: 10
5/10/13 2:50 A

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omg - I finally feel like i've found heaven. Are you kidding me? There are others who aren't sleeping throught their Fibromyaligia.

Mine is linked to being rear-ended 18 months ago and yes... the very beginnings of pre-menopause. Thankfully, in the small town of Chico, CA, I can get away with saying "ok, now I need 2 hours of down time pronto, and I'll be back soon." And come back to work refreshed. I'm averaging 5 hours and had thought that I still needed 9 to get over the head-injury-migraine issues. Guess not. Migraines lessening with Myofascial Release techniques from my chiropractor (who doesn't do the harsh manipulations that most chiropractors do! yay!)

Also, ramping up on Topomax - not certain I liked it. Elavil caused me never to wake up and I hated it. Cymbalta was wonderful until at the exact moment when it finally caused all my tight neck and shoulder muscles to relax, it also relaxed my ability to have an orgasm (not cool - but is a hilarious story).

I can't believe - I am suddenly not crazy. I am just like the many who are here. Thank you
May we all heal and share what works.

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GOGOBOOTS's Photo GOGOBOOTS SparkPoints: (98)
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4/10/13 6:01 P

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I have not been able to stay asleep since I began menopause. A sleep diary sounds interesting. I will check it out. I have no doubt that the extra layer of fat I am carrying on my body has a lot to do with lack of sleep.

Jules


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ASHAIXIM's Photo ASHAIXIM Posts: 2,611
4/3/13 9:46 A

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I read that fibro can make people have disturbed deep (or slow) delta sleep ... what used to be stage 4 and is now stage 3 part 2. (REM used to be 5 but they moved it to 4 and made 3 and 4 both 3).

Anyways, I went to have a sleep study done and they went on and on about apnea and made me watch a video etc. and told me that people were misdiagnosed with fibro when they really had sleep apnea. So... I don't have apnea. I have interrupted delta sleep. Exactly what I expected. They basically said, oh, well, see ya. Don't expect any help from them.

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3/27/13 1:12 A

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Hi,new here I've had fibro my whole life just didn't get diagnosed till 9 years ago.I've tried alot of the medicines and herbs.It would work for awhile then I build a tolerence for it and have to change it.I have nights where I fall alseep no problem but can't sleep longer then 1-2hrs at a time.I also have rls so that doesn't help,lol.Then other nights I sleep a couple hours and I'm up till the morning.Very frustrating,the only thing that helps alittle is listening to my body when it says its time to sleep I lay down.Most of the time,lol.

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MYNEWPATH2 Posts: 6
3/7/13 8:12 P

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I'm going through menopause several years now. I was not able to sleep at night, I would get anywhere from 1 hr to 4 hrs at the most, I had night sweats, restless legs and migraines most every night. I finally went to a doctor because it felt like I was going to lose my mind. I was depressed, moody, mean to everyone, and crying all the time. My doctor put me on progesterone 100 mg every night 1 hr before bed, All is good now, I finally sleep at night, it didn't happen overnight it took a few months of the progesterone but I'm not depressed any more, I'm almost back to being me again. No more night sweats or restless legs and the migraines are almost extinct.

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GOLDIES1's Photo GOLDIES1 SparkPoints: (27,569)
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2/20/13 7:16 P

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I have fibro and found that using my Apple Ipad and an app for audible books helps me to fall asleep a little easier. I put the book on and set the timer for 1 hour and most time I fall asleep fairly fast. I do not however go into rem sleep. Perhaps this will happen in the future, I just started the past couple of weeks.

You get credit for what you finish, not what you start.


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CHERIJ16's Photo CHERIJ16 SparkPoints: (56,705)
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2/18/13 10:15 A

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I have had fibromyalgia for many years. I really suffered until I found a doctor who could diagnose me and that made a big difference. He explained that part of my problem with the aching and sore muscles was that I didn't get enough REM stage sleep to fully rest and restore my body. He prescribed a low dose of Elavil which is a tricyclic antidepressant that can be used to aid in sleep. I felt like a new person! I still use this same regimen and without it I wouldn't sleep at all. Perhaps you should check with your doctor about this treatment to see if it works for you. I still have problems sleeping especially when I take it too late at night. I try to take my pill before 10:30 PM. However, the difference between then and now is tremendous. If anyone else has suggestions please share. I hope this helps.

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BRANTLEY55 SparkPoints: (813)
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2/16/13 9:28 A

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I'm new here. I just signed up with SP yesterday and was glad to find this group.

I started getting insomnia when I entered menopause. I use natural remedies to help. My very favorite thing is an herb called Valerian. It's only side effect is weird dreams and you can get it at any drug store or Target or someplace like that. My second favorite is 100% tart cherry juice. Make sure you use the tart cherry juice. You can mix it with apple juice or something, if it's too tart for you. Melatonin is good, but it doesn't work very well for me any more. And once in awhile, just a hot glass of milk before bed will do the trick for me.

I've noticed that I have to use this variety. If I start using just one thing, it will stop working. So, I move on to something else and then I get some sleep.

Be sure to stay off the computer about two hours before bedtime. The lighting in the computers increase your serotonin levels, so that will keep you awake.

So, those are things I do to help me sleep. I hope someone finds it helpful. emoticon

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1/17/13 7:17 P

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Every since I got fibromyalgia, I have had insomnia. Some nights aren't a proble, but others are just horrible. Since I have fibro, I'm always tired, so if I take a nap during the day, I'll have no prob going to sleep, but once it's night time, I can't go to sleep. But there are some nights that I'm super tired and I actually get to sleep before midnight, but then I wake up an hour or two after I fall asleep, and then can't go back to sleep until the sun comes back up. I really wish I could find a find a way to fall asleep and stay asleep during the "normal" sleeping hours of the night.

Edited by: EVASTANKIEWICZ at: 1/17/2013 (19:19)
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RMOHR64 SparkPoints: (3)
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1/14/13 6:14 P

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I am 48 now and had a total hysterectomy 10 years ago. I have been taking estrogen since then but continue to have the hot flashes. I am on the lowest dose patch due to the fact that my dad died of cancer at 49 and my mother had her first heart attack at 60. The estrogen patch helps a little but not so much at night. Ambien is what has helped me stay sane. I take a half a pill for 4 hours sleep and a whole 10mg for 6 hours sleep. I have tried Melatonin but it knocks me out and I am lethargic in the a.m. and Benadryl keeps me awake through the night.
I know people may nay say it but it has been the best thing for me.

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1/6/13 2:33 A

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I also suffer from anxiety but as a rule if I'm worried about any health problems I go to my doctor and have them checked out this lessens the anxiety for me.

TBROBERG's Photo TBROBERG Posts: 55
1/4/13 11:47 A

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Hi SparkPals! I'm new here too. I started having sleep issues when I entered menopause. I am currently on medication for depression and I have Xanax for anxiety attacks. My psychiatrist has approved of me using the Xanax as a sleep aid if I need it. I try not to take it too often because I don't want to become dependent on it for getting to sleep.

Terry from Fort Wayne, Indiana.


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SUZZB282 SparkPoints: (1,279)
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12/7/12 11:01 A

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Hi there well this is my first time on this message board.. so wish me luck.. i have had sleep issues for on and off for 5 years. my hubby has been ill and i have slept with one eye open for so long that you think you will be fine.. well it is time to take care of me.. he is doing better and does not need the constant watch 7-24. i have found that taking chamomile tea, sleepytime tea and melatonin some nites help.. but then i am up going to the bathroom.. but i do also fall back to sleep easier.. also have tried calms forte.. now i saw a team person using magnesium and the calcium.. so i m going to try this also.... thanks for letting me share. emoticon

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11/19/12 9:54 A

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I hear you!! feel crummy and irritable. my husb. said I snore too. Didn't realize it until it woke me up!!! Am SO tired every day.

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DJGERRITS Posts: 4
10/22/12 4:14 P

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I too thought i was over menopause. I had it very early - 40 ish, i hadn't had symptoms for 5 years, i'm 55 now and getting the hot flashes again. The really don't want to take anything, but natural products, vitamin B complex does make them seem to be less. Hope that helps you.

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9/29/12 3:57 P

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Don't think I'm insane here but here's the deal. I went through menopause at 45 years old. That is some time ago. Now I am 65 and have all the classic symptoms again - night sweats, hot flashes, adult acne and heart palpitations. Is it possible to go through this goofy thing twice?

Women and cats will do as they please. Men and dogs
should relax and get used to the idea.


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TWINGLESJJC's Photo TWINGLESJJC SparkPoints: (734)
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8/19/12 10:03 P

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You sound a lot like me! Its amazing how quick the symptoms have progressed it really continues to be a vicious cycle. Its a little calming knowing i'm not alone and hope we all can support and learn from eachother

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8/19/12 9:59 P

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I am 37 and had a full hysterectomy 2 years ago along with many other physical ailments. I suffer from carpal tunnel in both hands with permanent nerve damage and plantar facsitis in both feet. I used to be so active and hyper and now I never know what the day will bring. I thought my hot flashes were out of control and did not understand why I was having so many and my doctor had mentioned it may be my anxiety. I get so hot I become nauseous! I freak out at the littlest things and have become so depressed from not working and gaining weight. I have also developed arthritis in my left knee and hip. I feel like im 37 going on 73 and its hurting me and my family. I am so happy to find a place to find help, guidance and support. I need to make a change and seeing others with the same problems really helps with support. I would like to sleep atleast 4 straight hours a night. I've tried nyquil zzzz, calming teas, melatonin, st johns wart etc. even meditation and soothing sounds. I hurt everyday and I need to get past it killing my spirit. Any suggestion would be greatfully appreciated.

ENDUROVET's Photo ENDUROVET Posts: 163
8/13/12 5:00 P

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GDM, thanks for your input...

I, too, have been on a magnesium supplement rec by my chiro & have been taking supplemental D3. It does seem to be helpful, although I am still troubled by weak bladder & night sweats (perimenopause).

However, I'm afraid the root of my sleep difficulties may be a husband who snores! It really puts me in an irritable mood & ruins my "goodwill" towards him. A vicious cycle when I try to think charitable thoughts which are spoiled after another restless night. I have already warned him that we may be looking at separate bedrooms. (Of course he replies by saying that I snore too - but I think if I started tracking night by night, how often I am awake vs his attacks of insomnia, mine would be MUCH greater!)

Sorry, didn't mean to get off on a marital rant.

Best wishes,

Val

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8/8/12 12:37 P

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Since I have started taking a large magnesium supplement, my sleep / pains / meno symptoms have improved drastically. I take Natural Calm, and only half the amount they say you can take, and it's awesome. after about a week on it, I combined it with 2000mgs (or IUs or however they measure it ) of Vitamin D and I have more energy during the day, sleep better at night, monthly symptoms have seemed to regulate some, and I have fewer pains in general. Seriously, look it up. It's great!

~~Joanne

"I'm OK when everything is not OK! "

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ARICHT41 SparkPoints: (87)
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6/27/12 10:40 A

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Thank You for your reply. It seems like it's not getting any better yet for me. I still have not lost any weight in 2 1/2 weeks! My belly has clearly dropped though but no scale weight yet and it's depressing me. This is very hard for someone who has a very weak/no will! I can't sleep and that's making it hard for me. I've been having a lot of acid reflux day & night which is very unusual. I guess it may be from the veggies and acidic fruits. I am my own worst enemy!!!! I can no longer go to sleep without dreading the acid/insomnia/anxiety!!!!!! Thank You for contacting me and I wish the best of luck.

LYNNWILK2's Photo LYNNWILK2 Posts: 2,607
6/27/12 9:04 A

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Annette,
I also suffer from severe anxiety ... and my panic used to visit me every night around 9:30, resolving the meaning of that time of the evening has helped a great deal. But I still have problems actually making myself go to bed. I have been working out since January and started with Sparks almost 8 weeks ago. Exercise has definitely helped a great deal, as long as I am in a safe place, like my gym, or at home.
I hope that you are able to stick to your current plan and that you find some relief.
Keep us posted.

be authentically you...
it's journey, not a one day hike.

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6/17/12 5:18 P

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I haven't resolved my sleeplessness. I exercise for 35 minutes every evening from 7:30 to about 8:15 and that you would think would help me sleep better but it hasn't so far. I am still searching ways to sleep better. All in all, I think the only way it's going to get better or resolved is by eliminating stress and therefore reducing or getting rid of anxiety. Keeping my fingers crossed. I just started eating right and exercising for 1 week so maybe it takes time for my brain and body to get used to it and start relaxing. I have to figure out ways to relax because the stress/anxiety is damaging my mind & body. If/when I figure the answer both you and I seek I will certainly shoot you an email. Thanks hope you feel better! Annette

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6/17/12 3:09 A

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What are you taking that resolved your sleeplessnesss?


123ELAINE456 SparkPoints: (143,016)
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6/13/12 7:14 P

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Can not sleep either. On meds for High Blood Pressure, High Cholesterol, Fibro., Pain etc. but nothing for sleep.

GOD BLESSINGS TO EVERYONE. MAY GOD BE WITH YOU ALWAYS. HAVE A WONDERFUL WEEK. TAKE CARE.


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6/13/12 6:43 P

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Hi, My name is Annette and I am new here. I experienced my first panic attack at 35 and now i'm 41 and have worse symptoms. I have been suffering with bad anxiety for the last 6 months and can't shake it. I have been having bad soreness/pains on my shoulders, haven't been sleeping at all, some days feel very fatigued, my legs feel pain/burning when going to my second floor apt. I also find myself out of breath. I chalk this up to GAD (generalized anxiety disorder) but I have no way of knowing if in fact it is that because I cannot afford health insurance so I stress and worry wondering do I have a disease, cancer, or am i about to have a stroke or heart attack????? Well, this in it of it self, makes my anxiety worse so it's just a vicious cycle!!!!!!!!!! I cried at 2 in the morning for about an hour because just a year ago I was no where near in this bad of shape and wish I was my old self again. I hope SPARK people will be able to help in my losing 40 lbs.

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5/17/12 5:24 P

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sound's very similar what i am going thru... i had celiac discovered 1 1/2 years ago and living glutenfree since, but my pain is still the same (Fibro since 1996) Vitamin D was too low too, is up now since i am adding it oral... Vitamin B12 was also to low, needed quick boosting (shot's in my muscle for 10 times, after that oral)...
my dream is to sleep thru at least for 4 hours in one stretch and hope it happens soon !

greetings from good old Germany
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"Love alone can unite living beings so as to complete and fulfill them...
for it alone joins them by what is deepest in
themselves.
All we need is to imagine our ability to love
developing until it embraces the totality of men and the earth."

***Pierre Teilhard de Chardin ***
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Wow can I relate! I became menopausal suddenly at 44 yrs [now 50] and only in the last year have I made some progress with escalating symptoms. I have fibro, forever- but it got Much worse with menopause! So here are some of the things that have helped me [not cured! one day at a time!] I have been getting bioidentical hormones from a compounding pharmacist, and a consult with this same pharmacist who reviewed my bloodwork, I know take 5000U vitamin D and probiotic, and a high Omega 3 oil...Most importantly I have taken a vitamin supplement for Adrenal fatigue [the elevated Cortisol link!] and this has been very helpful with all of my symptoms. I also take small dose Amitriptyline at night and use Melatonin as needed...Lastly I have given up Gluten [with research I have found symptoms and gluten sensitivity may be related.] It has been a journey and I hope this helps others! It sure is nice to know I'm not alone!

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2/7/12 3:29 A

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i am surprised that u are on neurontin for pain! i have been on it for 10 years for my RLS. its a nerve medication not a pain medication. yes it does help wit sleeping issues, but still i have never heard of a dr. prescribe it for back pain... maybe u have another underlining issue thaT THE DR IS TRYING TO FIND...OTHER HAVE TAKEN NEURONTIN for fibro and RLS and parkensons

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2/2/12 6:30 P

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I have trouble sleeping because of hot flashes (night sweats). I have tried different natural supplements haven't found one that works yet. I do have a fan by my bed and the temp in my house at night is 65 but sill wake up off and on sweating. emoticon

Where your mind goes energy flows

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1/28/12 11:08 A

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I know how you feel. I have fibro (12 yrs) and enjoying menopause (I wouldn't recommend it to anyone)lol. My wonderful doctor has tried so many different things and has me on meds at bed time which help me sleep for a few hours but then I'm up again. I don't think on any given night I sleep more than 3-4 hours in a row. I'm hoping once we get through another winter (which is the worse time of year for me) that maybe I'll sleep a little longer.
'

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1/26/12 4:56 A

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Thanks for sharing. Its wonderful to know that there is an end to this exhaustion. And its good to know that we are not alone with this problem. There must be millions of us!

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1/25/12 2:27 P

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It's been so long since I last visited this team. I have good news... I have been sleeping through the night for a couple of months now so I am hoping this is the end of my insomnia! I believe my sleep issues were results of hormonal changes as my body struggled to deal with peri-menopause. I still have some minor problems but with the biggest issue (sleep) squared away, I know everything will get better. Best of luck to you all! Hang in there!

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1/21/12 7:45 A

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You have spoken my story! I just started taking Vit D. Before I found Spark I was using Wine (a time honoured method) to sleep through the hot flashes and partner snoring. Keep me posted as to how you are doing.

CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/20/12 12:42 P

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Hi! My Dhea is low along with my Vit D and Progesterone and my Estrogen is high. I do not sleep well at night at all if any. Basically catnap. It doesn't help that my husband figgets while I am going to sleep and then once he is asleep he starts snoring really loud to the point that it wakes me up. He gets angry at me when I do sleep...he acts like I am doing it on purpose or something. Anyone else have this problem?
Oh, and I finally took 2 3mg of Meletonin last night and that helped a little bit.

Edited by: CWPRAISINJC1 at: 1/20/2012 (12:43)
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1/1/12 11:59 A

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Ciao, sono Donatella. Anche io da diversi anni soffro di dolori diffusi. Non ho una diagnosi di fibromialgia ma penso di esserne affetta. Il mio problema è il dolore diffuso quando sono a riposo, soprattutto di notte e questo non mi fa dormire. Da quando sono in menopausa sto peggio. Dici di eliminare i carboidrati complessi? Possono peggiorare i disturbi di fibromialgia?
Te lo chiedo perchè ho intuito anche io che quando evito di mangiare carboidrati sto meglio!


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11/27/11 10:32 A

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I had my hormones checked and found out my estrogen was fine, but my progesterone and Vitamin D were dangerously low. I take progesterone at night and a cream in the morning. I'm sleeping like a kid again!

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11/19/11 11:02 A

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I have similar problems along with what is called Essential Tremor. They have put me on meds for that which does help with sleep but what works best for me is listening to music with earplugs-not entirely comfortable but works great, I have found that the music of Steven Halpern works best for me. It has made quite a change in my sleep pattern & I feel much better now that I am getting the sleep I need. Good Luck to you.

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We are what we repeatedly do. Excellence then, is not a an act, but a habit - Aristotle

Today is going to be a great day. How do I know? Because I'm going to make it so!

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11/7/11 10:43 P

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I have fibro and Ptsd. The mix makes a very sleepy person. Doctors won't go near sleep meds and have basically left me to sort this out on my own. So I am trying to get my mood under control so I can focus on other positive changes. My partner is getting me a new bed this week to see if that helps. Hopefully it will.


Always do your best. What you plant now, you will harvest later.
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DEBRA123159 Posts: 3
10/13/11 7:45 A

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Ifeel you. ive been in full blown menapause for 6 years now, and fibromyalgia for 12 years, also got lupas, type 2 diabetes, high blood pressure, and failed spinal fusion from last year, i have to sleep in my recliner for the last year, because no matter what ive done to my bed, i have horrible pain from sleeping in it. i sleep from 3 to 4 hours a night, i also have sleep apnea and wear a c-pap mask and oxygen from a concetrator. ive not slept over 4 hours in about 7 years. and its caused a lot of weight gain, and depression, and no energy. the dr.'s have given me every sleep medication there is and nothing puts me to sleep, they cant understand it, and neither do i, i just want to sleep in my bed again, and get a full 8 hours, i pray for that. but it never comes. im overweight severly and tired of it, and the no sleep.

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9/16/11 9:14 A

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I, too am dealing with menopause and I have pain from my degenerative discs. It is hard to get comfortable. I now take neurontin for the pain and it seems to help me stay asleep longer, but I am still only getting about 6 hours of sleep per night. As for the menopause, I keep a cool cloth under my neck at night and it seems to help.

God will not give you anything you can't handle.


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UNCPARTMAJOR's Photo UNCPARTMAJOR SparkPoints: (243)
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9/14/11 3:51 A

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I have ME/CFS and fibromyalgia and between the two I think I've forgotten what a good nights sleep is! My problem is I can fall asleep anytime but its not a restful sleep. No matter how quick a nap or how long a sleep I always wake up feeling I never went to sleep in the first place. I have tried medications but while they were great at first, the "brain fog" was worse durning the day and I ended up feeling like a zombie! Melatonin is great for me on the really bad nights. I also have the hot flashes and I keep a fan on me at night and that helps.

MO2V8EDQ's Photo MO2V8EDQ Posts: 29
8/12/11 1:06 P

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Hi
I was diagnosed about 2yrs ago with fibromyalgia.I've been takingLyrica for a year. They recently increased the milligrams and so far it seems to be helping with the pain. Perhaps you and your doctor may want to discuss that as an option.

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8/9/11 1:41 P

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Hi, I was diagnosed with fibro maybe 5 years ago, I have trouble sleeping and hot flashes are driving me nuts and I can not sleep because of it, in turn I have pain during the day because I can't sleep and so goes my life. I take medication to sleep and it is not working real well lately so I have to go to the dr. and get that changed, I need my sleep!!!! I am tired of this, I just started with the hot flashes and it is just awful I don't like it but I guess I need to figure out something for it. Hope you feel better emoticon

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SHELLYLIN333 SparkPoints: (0)
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7/23/11 12:16 P

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hello!!! i have allegedly have fibromyalgia as well. I've found that staying away from complex carbohydrates really helps! i feel so much better and can sleep better as well!!! oh, the hot flashes are so much better as well!!! i also wear short sleeve shirts year round and dont eat red meat unless i'm going straight home!

RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
7/6/11 5:55 P

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Thank you for the info, Lori. I'm going to try the test and go from there.

Bless you,
Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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LORIAMAR's Photo LORIAMAR SparkPoints: (0)
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7/6/11 11:22 A

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There is no real 'test' for fibro since it is a clinical diagnosis, but you can find a questionaire here: http://drscottrigden.com/?act=fibromyalgia
&sub=cfsTest
One key diagnostic are the 18 tender points, of which extreme tenderness will be present in these spots in a person with fibro. A person may have many of the other symptoms of fibromyalgia, but not the tender point sensitivity - which could be more indicative of cfs/me rather than fibro since there is marked similarity and crossover of symptoms with the two illnesses.

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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
7/1/11 8:32 P

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Where is the test for fibromyalgia?

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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THINLIN07's Photo THINLIN07 Posts: 482
6/28/11 8:58 P

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I have been dealing with hot flashes for almost 20 years off and on. Sometimes I feel like I cant get any air. I keep a window open all year long and a fan in my bedroom. I have arthritis in my right leg and hip that also keeps me a wake or wakes me up. Sometimes the hot flashes make me so thirsty for ice cold water so then I keep waking up to go pee as well. I dont think I have fibro but I may take the test on line to see.



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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
6/21/11 9:17 P

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You are wise to recognise that 'Sleep Window' as a wise choice. One of my brothers and one sister can sleep using the window. I have to use the Sleep Diary method. I had surgery on my sinuses yesterday. I was able to get to sleep without pain pills, just using my Diary. Even I was amazed.

I've never been officially diagnosed with fibro, but suspect it from taking an online test.

Keep experimenting with what works for you.

Goodnight and sleep tight,
Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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PRPLDAISY's Photo PRPLDAISY Posts: 4
6/21/11 7:27 P

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Fibro and sleep is a problem for me too- (Hi I'm Daisy and new to group) I was on and off several meds for sleep. But sleep meds made things worse during the day (fibro fog etc.) I have found that if I am in bed before 10 I am more likely to fall asleep and sleep well then if I go to bed after 10. If I miss the "sleep spot" I'll be awake until 2 or 3 am.

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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
6/15/11 3:09 P

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Lori: Getting your sleep under control should be your first step and then losing weight will follow. Susan can help you with a lot of 'natural remedies' where both are concerned.

Best of luck,
Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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LORIAMAR's Photo LORIAMAR SparkPoints: (0)
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6/15/11 9:16 A

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I too have fibro and have been dealing with hot flashes (among other things) since a partial hysterectomy 25 years ago. The hot flashes have been getting way worse the last couple of years. I have tried many natural remedies with no real success. Any thoughts. Also, Susan, you had mentioned elevated cortisol levels due to chronic pain. Is there a simple and natural way to lower cortisol? As a newbie to Sparkpeople, and frustrated with inability to lose weight, perhaps getting my sleep under control would be a good step in the right direction. emoticon

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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
6/1/11 2:10 P

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Let me guess: The one that caused you to sleepwalk was Ambien or Ambien CR. Am I right? Benadryl does make me drousy, however, it was first created as a diruetic. That means getting up several times to use the bathroom. I also have a sleep hangover with it.

By just using the Sleep Diary method, I am now sleep medication free. It is amazing.

Hugs and sweet dreams,
Renie emoticon

Edited by: RENIESSPARKIN at: 6/1/2011 (14:12)
Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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DLHEMSWORTH's Photo DLHEMSWORTH SparkPoints: (1,762)
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5/31/11 10:06 P

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I am using over the counter ... sleep meds. Benedrill mostly. I had some prescription meds but they gave me nightmares and I would wake up sleepwalking. I stopped them pretty quick.
So I use Benedrill. it takes 4 pills though to give me sleep and keep me there.

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DLHEMSWORTH's Photo DLHEMSWORTH SparkPoints: (1,762)
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5/31/11 10:02 P

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That be me Menapause. I cant fall asleep easy and wake up several times during the night with heat flashes.
Yehaa. Goodby Good night sleeps.

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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
5/24/11 4:30 P

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You may just need some L-Tryptophen in the form of some milk/cheese and multi-grained crackers JUST BEFORE bed.

I've had a friend using this and she was in heaven. Then for some reason she ate them two hours before bed and wondered why it wasn't lasting. emoticon I still luv her, though.

PLEASE use the Sleep Diary. It really can make a huge difference.

Try it and see how it works for you.

Hugs,
Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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CBOWER55 SparkPoints: (5,449)
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5/23/11 6:37 A

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Have not had trouble with hot flashes, but do have trouble staying asleep. Very low dose of Elavil before I go to bed has helped me. Unfortunately, I have to go off it periodically when it eventually becomes ineffective, but it always works again when I go back on. Maybe ask your doctor about this. First started after diagnosed with fibromyalgia.

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5/12/11 11:07 P

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Pele: I saw where you have trouble turning off your mind. A Sleep Diary might help with that. It has made all the difference in the world for me. If you want to know more, check on my (Renie's) SparkPage under blogs and there are some links in there to check out. I did NOT author these but put them in one place for better access.

Best of luck, everyone, and have a good night's sleep.

Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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5/12/11 9:12 P

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Welcome. Try to keep track of your sleep. It may give you insight you an't sleep. Good luck.

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HARMONY2011's Photo HARMONY2011 Posts: 388
5/11/11 10:59 A

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Sleeping "hot"...hot flashes...weakness can all be symptoms connected to the fibro. If you are not on a fibromyalgia support team, I suggest you check them out. The increased stress of chronic pain keeps your cortisol hormones elevated. They are responsible for some of the symptoms, I believe and also weight gain, lack of sleep, etc.

Good luck!
Susan (akaHarmony2011)

"How can I ask someone else to do "it", if I cannot do "it" myself?


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5/11/11 1:54 A

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I do have fibro and not sure if my lack of sleep is due to that or the fact I have trouble turning off my mind

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4/30/11 8:51 P

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I have heard of the hotflashes. However, I must be odd, because I have not experienced them. I hope their is something that can give you relief. Have a great day.

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MSHELEN21's Photo MSHELEN21 SparkPoints: (142,121)
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4/30/11 8:47 P

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I know what your talking about with the night sweats.... emoticon hot flashes!! I am trying a HRT (hormone replacement therapy) and it seems to help, of course I don't want to take them for very long.

My sister has Fibro and some of my friends, that is very hard on them as I'm sure it's the same for you. I sure wish you all the best with your health. emoticon

Edited by: MSHELEN21 at: 5/11/2011 (22:37)




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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
4/30/11 7:43 P

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Dang, but that is miserable, EconLady. My friend who is the same age as I am, really has a tough time with hotflashes. Sometimes she will have to actually change her bedding and jammies a couple of times a night. Maybe it's because of the Fibro? She has it, I don't.

I sure wish I had some suggestions for you. OH! I do: Listen to Susan emoticon

Renie

Edited by: RENIESSPARKIN at: 4/30/2011 (19:44)
Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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ECONLADY's Photo ECONLADY Posts: 5,412
4/30/11 7:14 P

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The hot flashes from my menopause wakes me up at night.

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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,684
4/30/11 6:41 P

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Fortunately I don't have to deal with those problems anymore. However, we are fortunate to have Susan on this team to offer her expertise on many health problems. She's a wise woman and can give you excellent advise.

Best of luck emoticon

Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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HARMONY2011's Photo HARMONY2011 Posts: 388
4/30/11 3:03 P

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Janet, I was diagnosed with fibromyalgia about 5 years prior to menopause. (40 and 45) years of age. Superficial sleep patterns have always been problematic for me and then was diagnosed with sleep apnea around age 56. Sleep hygiene measures (Spark has good resources) and anti-depressants have helped significantly. But every three to five years the anti-depressant seems to lose effectiveness and has to be changed.

As a Nurse Practitioner, I have always embraced complementary medical methods (most recently meditation. I posted a link to Chopra Center's Meditation under this forums thread Medication of Meditation. I have not been into colonic cleanses or "fad" detox programs; however I am beginning to read information that suggests a 10-14 day detox, and elimination of most products with sugar and white flour has been helpful for some. If I try it and have good results, I'll let you know. I am so glad I got through menopause in my early forties and only suffered for four or five years with night sweats.

Wishing you well...
Susan (aka Harmony2011)

"How can I ask someone else to do "it", if I cannot do "it" myself?


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4/30/11 1:50 P

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Hi! I have had some other health problems and Fibro., but I wasn't sleeping either. I started taking melatonin in evenin bout 8 o'clock and I found that it has been helping me I hope you have a good day.

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4/30/11 1:06 P

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Is there anyone dealing with lack of sleep due to fibromyalgia and/or menopause?

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