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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
5/21/12 12:09 P

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REGSHAR, You are in my prayers too. I was told I had sleep apnea just about 1 1/2 years ago now. I have never had such a good night sleep until I was told to wear my mask every night...I had no problem getting used to my mask either. Not when I realized the very first night how much better I was sleeping and not jumping out of bed at 2 am and especially at 4:30 am...My DH even brought me to the emergency room at 4:30 am as I had such irregular heart beat and would stay in the hospital most of the day...Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
5/20/12 11:06 A

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You are in my prayers. Sleep apnea is so dangerous. Have you read any articles on the central apnea?



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REGSHAR's Photo REGSHAR SparkPoints: (35,652)
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5/20/12 10:07 A

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I would like to ask for everyone's prayers, I go for another sleep study on the 29th. Apparently my brain is not telling my body to breathe. These last months I have hardly slept at all and end up sleeping or dropping off to sleep at any given moment without realizing it. I sure would appreciate your support of prayer for this. emoticon emoticon emoticon

http://www.littlesistersofthepoor.org/
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www.preciousbloodinternational.com/
http://www.ourladyofamerica.com/ ourladyofallgraces.org/


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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12/26/10 4:10 P

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Gramsie, I had injections in both Si joint about
4 days ago. It will take a while to help. Hopefully,
I will get relief for 6 months.

Wishing you well.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
12/12/10 3:19 A

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Glad you are starting to see a little relief.

Had a rough day here. I will explain on chat thread.

See you there.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
12/11/10 2:49 P

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Cathy, I had my MRI of my lower back two weeks before the first injections. I am not getting a whole lot of help yet with the gabapentin.

The nurse did say it does take some time tho to help. I do notice tho that my toes on my right foot are getting straighter tho. They aren't cramping as much at all..

I have all of my dectuctable done and my out of pocket done too..so right now everything is totally free for me...I just wish they would work so I can get some relief.

It really only hurts just when I bend so slightly to try and vacuum and make our bed. Or try and do my WII board too...Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
12/10/10 10:51 P

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Good luck with that. I felt better as soon as I got off the table. They took an MRI of my back and then used a scope to pinpoint the problem area. I only received one injection. She said it would be good for 6 months to a year. It lasted three years. Since the process was so expensive, I have found the gabapentin to be a cheaper alternative.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
12/9/10 4:24 P

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Cathy, I got them yesterday and than really took it easy all the rest of the day. Put ice on it twice yesterday too..

But, no resulst yet..darn it anyway...I go back in two weeks for one more injection..I guess then see what the next procedure will be.

I do know my neurologist did say it might take 6 of them..Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
12/9/10 1:36 A

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Well, I hope the two shots get into the right place.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
12/8/10 4:10 P

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Today when I told the dr that maybe I have gotten about 25% relief (I hate to let them know that it didn't work as well as they wanted it to work.) He then gave me two shots, one on each side of the spine this time and wants me back in two weeks for at least one more..

It mostly hurts right where a person has to bend to vacuum, make the bed or get the clothes out of the dryer....Just a slight bend...Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
12/8/10 1:14 P

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Hubby used to get a vitamin B combo shot in his back that really perked him up. The neurologist only did it for a few weeks while he was healing from surgery.

I had one shot of steroid in my back and it last three years. I hope this works as well for you.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
12/8/10 7:07 A

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Oh yes, at 8 am today I get my second epidural shot in my lower back. It does to seem like it is finally helping. My feet are even starting to feel better too..It is all worth it if the pain is so that I can at least tolerate it...Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
12/7/10 7:12 P

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Yes, it comes and goes. Sometimes, even though I sign up for all the e-mail alerts, I don't always get them. I am sure that happens to others too. Guess everyone is out shopping, partying or resting from shopping and partying.

Think I will check out the chat thread to see if anything new is posted.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
12/7/10 5:51 P

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This site here is quit quiet. I just wanted to post on here that I am doing really well with my full face mask on now after about 3 1/2 weeks..Merri

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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/27/10 9:26 A

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Cathy, I have the the ResMed Apap. It only has the white filters...They say that might have to be replace once a month too...So, when I get talking to Mary, I will have to ask what is covered at that time...

It seemed to me like there were 4 things that were going to be replaced...Time will tell...Merri


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/26/10 9:40 P

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Stubborn girl. I am not wild about the full face mask either, but next time she can get a replacement mask she can pick one up for the sinus problem days. It is good to try several masks and lay down and roll over. Sitting up does not expose leak problems. I tried six different masks at home before figuring out the problem was with the way the clinic was fitting me.

As far as mouth breathing goes, a chin strap will help train you to keep your mouth shut as long as you can physically breath through the nose.

Regarding filters. Do you have both the white paper filter and the black sponge filter? If you only have the black sponge, request the white allergy filters too. They will tell you how often you need to wash the black sponge filter and replace the white filter. It is easy to see the dirt when they are used together.

My machine is a ResMed pro M Series. Do you have the ResMed Apap?



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/26/10 8:13 A

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Cathy,ok, now I understand LOL...I clean my mask each morning too and do run water through the hose each day too....I dump the distilled water out of the chamber too each day...

I have to remember the little filter tho...I will have to make it a habit every other week then.

Our DD was telling us yesterday that she goes for her first sleep study test Sat night..She really can't miss work as their is already one lady out on sick leave now..

She does the pay roll for the state and yes, that is important for her to be there. She did say tho that she will NOT wear the full mask..I do think she is making a mistake there.

She is a mouth breather like me...She told our dr that it was hard enough to turn 50 without having to wear the full mask too...

She has a neck and arm problem too from being in an accident with thier truck last Christmas. So she said no way is she going to have an epidural in her neck....

She will if she gets hurting bad enough LOL..Her left arm is almost all numb too...We will wait and see how much pain she can take...

Our pain tolerance is very high, so that is what makes things so bad for us....Take care, Merri emoticon

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/26/10 12:13 A

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Merri,
My ex-sister-in-law had to clean her oven and burners after every meal and run through a check list every night before bed. Her and her husband lived in military housing at Fort Lewis.

Whenever, I go to the docs with my machine, I am prompted to really clean and spruce it up so it looks and smells wonderful at the clinic. Although I do clean my mask daily, they hose weekly and the filters 1 or 2 times monthly, I tend to not dust or scour out the humidifier tank without extra prompting.

Anyway, that is what I meant by a military shine. My Viet Nam Vet husband uses that expression fairly often. If we want something sparkling clean we give it a "military shine".

I am so happy you get your Son for Christmas. How nice for both of you. I am also glad he was moved out of the dangerous area and got two turkeys for his buddies.

Happy for you that the epidural went well. Sorry about the broken window. State Farm has been good to us for over 35 years now. Prices are reasonable too.
We had a lovely Thanksgiving.

Edited by: GRAMMACATHY at: 11/26/2010 (00:16)

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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/25/10 8:19 A

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Happy THANKSgiving to all of my Sparks friends on this day of Thanks...

Our son will be coming home for Christmas on Dec 20th till Jan 8th...

He called two nights ago on his way back to his work as they had taken them out of that area when things started getting to dangerous the ohther day.

He said he was in the air port with a turkey under each arm for his buddies back in Afghanistan...Merri emoticon

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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/25/10 8:09 A

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Ok Cathy, Now you have me stumped...I don't know what you mean bya a militray shine on my machine...All of this is so new to me...

My epidural shot went great yesterday. They did sadate me some and all I did was take one deep breath and it was all over. Now they want me to get one more on Dec 8th..

Why do people enjoy telling you horror stories all of the time? I did have 8 nerve blocks back in 1992 and they didn't sedate you back then...

When we took our Land Rover out of the garage to go yesterday, we noticed that the back window looked like it had frost on the inside of the window.

But my DH knew right away that the window had shattered..Maybe with us coming home right before the tornado and the rain and wind was so bad...

Our ins said we have full coverage for that and then man will be coming already Fri afternoon to install a new one...

That is nice fast service and then to even come right to your house too..We have State Farm ins...Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/25/10 12:47 A

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Take the machine. Most the time they won't want it, but as sure as you don't bring it they will want to check the pressure or see why your mask is leaking or some such thing and you will wish you had brought the machine. It is also a good reminder to put a military shine on the machine.

Prayers for your son overseas during this Holiday season. I hope that they have some kind of a cease fire going if that is possible.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/23/10 7:45 P

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Cathy, Every time that we go back for our dr visit, do I take whole machine with me or just the smart card? I do know the man that told us all about the machine did say to mail it to him around Christmas so he can I guess read it or send it some place else too...

Alot to remember when I do take over all of the responsibilities for our son over in Afghanistan too..Merri

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/23/10 3:30 P

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emoticon emoticon

Glad they aren't waiting for the injection. I walked out of the clinic feeling better after my one and only injection in the lower back. Hope it works that well for you too.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/23/10 8:42 A

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Cathy, Last night was SO much better. I went to the pain clinic and they told me there to take the Tramadol at night too...

It did help so much. Also I took my pillow and wrapped a towel around the middle of it ande pulled it really tight and that way I could sleep on my side almost all night and it did take the pressure off of my lower back.

Tomorrow I am going back to the pain clinic for my first epidurel shot in my lower back. They didn't even want to wait unti after THANKSgiving...Merri

Edited by: GRAMSIECAKES2 at: 11/23/2010 (08:43)
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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/23/10 2:13 A

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Sorry you had such a rough night. I am afraid I jinxed you with my horror stories.

Are you allowed to experiment with different masks?



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/22/10 8:47 A

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I had one terrible night last night. We had the mask on me twice and I just couldn't get rid of the leaks. I did so well the night before tho.

But, I do know I did too much sitting yesterday and forgot my Tramadol yesterday afternoon. So, my legs/feet were so sore that I just couldn't tolerate that mask on my poor sore nose too.

I do know that Medicare requires us to wear the mask so many days in month too.

Today I am going to the pain clinic so they can see what one earth to do with my bottom half LOL..

I do have RSD reflex sympathetic dystrophy in my right leg and I know I did one big chance having this total knee done almost a year ago now.

They did tell me that this wicked disease could travel in my body...Today maybe I can get some answers and some sleep....Merri emoticon

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/22/10 1:58 A

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It certainly is more comfortable than wearing underwire under garments or high heels.

I woke up six or seven times the first night to find the mask on the floor. I slapped it back on immediately, and that night I got the best night of sleep in years. It took me six months to stop taking the mask off. A chin strap that I wrapped all the way around my head helped me to keep from taking it off in my sleep and also kept my mouth shut. I also wrapped the cord around my neck a few times and yanked the machine onto the floor several times. Eventually I learned the tricks. I also went through five masks trying to get a fit that would not leak. I also ended up with a divot in my forehead. It eventually reshaped itself, but I still have a bit of reshaping from my current mask. It was all worth it.

I finished another pair of slippers tonight.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/21/10 9:16 A

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Cathy, I just put my mind to it and knew I was going to have to get used to this new situation right away. I had to wear big leg brace for 17 years and I took the same attitude with that too...

If it is going to help me, I will except it and learn as much as I can about it and use it as much as I can...Merri emoticon

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
11/21/10 3:26 A

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I am so glad you had immediate success with your machine. It really makes it so much easier to be compliant when you get health benefits right away.



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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,627
11/20/10 8:56 A

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Hi to all of you on this site. I have just found this site this morning. I have read so many interesting things on here.

I am new too all of this as I just got me new machine and full face mask on Nov 12th.

So, now I have to learn everything too. I just went back to the neurologist after using my machine for one week.

He did take the smart card out and read it. He said I am doing very well with my sleeping even tho it has only been one week...No leakage at all and sleeping most of the time.

He said in one week, it has even brought my blood pressure down. How nice it is to not wake up three times a night and then mostly at about 4 am when my PJ top is soaking wet and my pulse was going so fast we couldn't even count it..

What a God send this has been. My pressure goes from 5-14 during the night...I might have a very slight leakage by my chin once or twice during the night.

I am going to look into getting the cool pillow you have been talking about too...thanks for sharing so much info on here...Merri

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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8/22/10 4:53 P

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Corrine, I think Val is talking about the Smart card in the machine. My provider where I get my supplies, reads the card every month or two and sends the read out to my doctor. He then mails it back to me, to insert back into my bipap. The Smart card shows everything about your sleep, leakages, breathing pattern and etc.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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CORINNE007's Photo CORINNE007 Posts: 17
8/19/10 7:53 P

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So you brought the card to the doctor's office?
Thanks! emoticon

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SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,427
8/19/10 7:51 P

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they did read mine once already at the dr. office, so i go back in november, i guess they will read it again, im not sure what they see or do with the information

CORINNE007's Photo CORINNE007 Posts: 17
8/19/10 6:45 P

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Val,
When are they supposed to read your card? After I had the sleep studies and the company brought out the machine, they gave me a dvd and left.
Who reads the card?
Thanks,
Corinne emoticon

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SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,427
8/19/10 6:10 P

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my hair gets in the way of the velcro on the straps and it comes loose, but mostly its just air leaking from the chin area.
i cannot adjust the mask so this doesnt occur, i wonder if you just let it leak if it makes a big difference, it has to, because then your not breathing the air you need.
does that show up on your reading? when they read your card? air leakage?

CORINNE007's Photo CORINNE007 Posts: 17
8/19/10 5:50 P

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I am so frustrated that my quality of sleep has only improved a little. Actually, I am on a nasal Bi-pap. The nose pillows seem to fit fine but I have a tendency to sleep with my mouth open so the Dr gave me a chin strap. It was so uncomfortable that I went out and bought a hockey mouthguard and that has helped a lot. I think one of the issues is the mask bands losening in the middle of the night and the straps moving all over the place. I know I need to go back to the Dr but have been putting it off. The thought of another sleep study is driving me buggy!

Edited by: CORINNE007 at: 8/19/2010 (17:51)
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SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,427
8/19/10 4:25 P

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i had the pressure turned down on my cpap machine on tuesday and it has made a difference, tuesday night i slept a full 8 hours with the mask on, and only had one or two small occurances where i had to adjust the straps on the mask...
last night, i wasnt as lucky, i got maybe 4 to 5 with the mask, but several times, i noticed air leaking in the same area around the chin.
im just hoping soon i will solve this small problem.
but i have had to pull it so tight, i wake up looking like someone from a slasher film, with big deep red grooves in my face.

BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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8/19/10 12:19 P

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Corrine, yes, I do sleep all night without waking up, except having to use the bathroom. Most of the time, I don't wake up for that until about 5-6 am or later. I was using a cpap for about two years, but I felt drained and so sleepy throughout the day, no energy at all. My doctor finally ordered a bipap and I am doing so much better. Recently, he increased the pressure and I am doing much better. How long do you stay awake, when you wake up? It seems to me that your pressure needs to be increased or you may need a bipap. I would suggest that you make an appointment with your doctor and let them know exactly how you are doing.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,427
8/17/10 9:18 A

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i go today to have my pressure turned down on mine, the doc is cutting me back from 14 to 10, i will be hopeful that this will allow me to keep the mask i have, because, the leaking only starts when the pressure in on high, maybe with a lower pressure the problem will cease, and i will be able to start wearing the mask all night.
last night i made it about an hour....
its more of a nuisance and a pain right now than a help, but hopefully i can get it on the right track, i am so glad i didnt have that surgery, the doc showed me some old old film, for children, explaining having your tonsils taken out, but he never gave me any idea what the other surgery was, and i guess its because he knew i would say no right there on the spot...
i talked to a friend who is a nurse and she told me, have this surgery at your risk, there is such a huge risk of bleeding in adults with this surgery.

GOLDDUSTTWIN's Photo GOLDDUSTTWIN SparkPoints: (78,377)
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8/17/10 8:55 A

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I now sleep the whole night thru...since I started with my sleep pillow this month! IT helps to keep the mask in alignment no pressure on my face or head, no flubbering and I sleep. And I have a full face ultra mirage.

)) -::-
. .))May you have Butterfly Mornings and Wildflower Afternoons!
((. . -::-
-::- ((.* Dusty



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CORINNE007's Photo CORINNE007 Posts: 17
8/16/10 11:41 P

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Hi BraveOne
I would never have the surgery either. This is what I would like to know for cpap or bi-pap machine users out there. Does anyone ever sleep the whole night through? If I go to bed 7 hours before I get up, I usually wake up once or twice, so the most sleep I get will be in 2 or 3 parts, but I never sleep 7 hours straight through. Sometimes I think it's the stress of "hoping" to sleep through the night. I am tired but not like I was before when I didn't sleep at all. I go to work and sit for 8 hours and 30 minutes for lunch and then come home too exhausted to work out. It's a vicious circle. I've lost 15 pounds since May but I need to work out. It would help if I could feel really refreshed. Anyone going through the same thing and conquered it?
Thanks Corinne

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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8/16/10 11:12 P

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Corrine, in 1997 my DH was sent for a sleep study. During the night they put a mask on him, but he couldn't tolerate it. He later went back to his doctor, the doctor gave him two choices, wear the mask or have surgery. My DH chose the surgery. It is an extremely painful surgery to go through. They took out his tonsils, adenoids, uvula, probably did something to his tongue, and removed a lot of throat tissue. I have never seen anyone suffer more and he was so long in healing. He did stop snoring. However,
8-9 years later, problems again. Another sleep study and now he wears a mask every night. I can tell you for fact, from several people who had the surgery, eventually they had to go on a mask. My ear,nose & throat, will not do this surgery. I asked him why, he told me because the surgery was too painful for the patient. He didn't add, that it is only a temporary fix.

Val, it is a good thing that you refused to have the surgery. By the way, regarding your mask, if you can't stand it, you might be able to get a new prescription from your doctor and go to the mask store and get some help in choosing a mask to fit you better. Also, most of the stores in the area, will let you take a mask home and wear it a week, and if it doesn't work, you can go back and exchange it for a different one. However, it absolutely has to be back to their store before the day,it is due for return. I've returned several for exchange. Best wishes.

Edited by: BRAVEONE92 at: 8/16/2010 (23:16)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
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they wanted to do that to me, i went in to have my tonsils checked and the doc said they should come out and he said, while he was in there, he was going to do a palatal split, which, when i later looked up online, was just splitting open the roof of the soft palate and scraping it all out and maybe removing the uvula, i said, heck no, i aint going thru that mess....
so i chickened out and had nothing done...

CORINNE007's Photo CORINNE007 Posts: 17
8/15/10 2:17 P

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Hi Rita,

some people just have sleep apnea and weight doesn't figure into it. I was diagnosed with it in 2006 a age 56. I have a lot of weight to lose but in the 2 years previous to being diagnosed, I packed 50 pounds which the dr said could be attributed to the apnea. So what comes first the weight or the apnea?
My nephew was diagnosed with sleep apnea at age 25. He is 6'1" and weighed about 170lbs. Thin and never did gain any weight. He had surgery on his deviated septum and had his tonsils and adenoids removed and the apnea went away.
A fellow worker, age 54 had his tongue shaved and part of throat fat removed ( I think maybe even the uvula but I am not sure on that one) and he said he is cured but he looks tired to me all the time.
Everyone is different so you really never know.
I have Resperonics, what nasal gel pac are you talking about? Can you send me a pic of it? I would be interested in that... Thanks!
Corinne emoticon

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I have a Respronics small nose gel mask now. I've been more satisfied with it than all the other nose pads, etc. they have tried for me. I did't think I had very bad Apnea but after seeing what some of you have said about your settings I must really need this treatment. I had surgery on my throat hoping to cure the Apnea. . . no didn't do it! After that the doctor said that on another sleep test I stopped breathing/or came out of the sleep stage 292 times in 8 hours!!! I am 25-30 lbs overweight so I don't figure if I lose weight I'll be able to live without my machine. I like my bedroom very cool and the water in my CPap warmed to about body temperature. Rita

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i have seen those pillows, will have to see if anyplace around here has them and try one out

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GramCathy is right! I am at 13 also Cathy but since I use the nose pillows I had to really find the correct size; too big would hurt and too small would leak air.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
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I am happy the pillow is working so well. Maybe, I can put it on a wish list for Christmas.



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For the last 5 nights I have slept with my cpap pillow which is cut away to allow for the mask to sit comfortably on your face and not leak or apply undue pressure. This is the best sleep I have had in years with my cpap. You might want to check this out so you dont have flubbering or pain on your face or head or undue noise that wakes you up.

)) -::-
. .))May you have Butterfly Mornings and Wildflower Afternoons!
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yes, and he seemed to think that the air leakage was caused maybe by the air pressure...which for all the people who have pressures much higher than mine, doesnt make much sense, but, he wanted to lower the pressure and see if that makes a difference, if not, he will try some new masks for me....thanks for the positive feedback....i cant remember how many hours total i was monitored...he said i awoke 11 times that night, he didnt say an hour, so, hmm, may have to ask him about that next visit...

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I am at 13 and I woke 60x in 60 minutes.

However, the pressure is not determined by frequency of waking. It is determined by how much pressure it takes to keep the pallate from dropping while breathing.

I hope the new pressure works better for you. Ten was pretty comfortable. Thirteen sometimes causes air to get in my belly.

Did you talk to him about the leaking air with your mask? I wonder if the mask is too big for your face?



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when i had my sleep study done in late may, the tech there set my pressure at 4 to 14, i have been having considerable trouble with leaking under the chin of my mask, and have been struggling to use it thru the entire night.
today i went back to my doctor for the first time, other health issues made me have to postpone this visit, and today, he told me that during the study, i stopped breathing 11 times....i had very little leg jerking and my snoring was not loud and not continuous thru the night.
he wrote out an order for me to have my pressure lowered on the machine to 10....
i dont know alot about these machines or the pressure settings...so anyone know if this sounds like its good?
he said i had a mild case of sleep apnea, and weight loss might eventually help me to stop needing the machine altogether....
can anyone else share their numbers? and if this is good?

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We have had such a mild winter, spring and summer this year. I am still upstairs using the fan and feeling comfortable.

Last summer, when I moved downstairs I discovered a slow leak in the air mattress. I will have to come up with a better system if we get that hot this summer.



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Cathy, I notice if my bedroom is over 75 degrees, that I feel smothery. We leave our thermastat on 75 and use a ceiling fan.

I hope that you rest better downstairs.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
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Even though I live off the pacific coast, we are hitting triple digits tomorrow. There is no humidity in the air. I think I am going to have to sleep downstairs tonight on the air mattress. I just cannot handle the bedroom if it get over 80 degrees. It is 89 degrees in the bedroom as I type. I think I will pack the computer downstairs now too. I keep my old cpap downstairs. It has a really big water tank, so it won't dry up no matter how high I turn up the humidity.

Drink water..
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Cathy, I hope that you had a good night sleep. There sure is a difference in how we feel every day, whether we sleep well or not. If I don't sleep well, I don't feel like doing anything.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
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For the good news! I am so happy for you. I hope the other eye did as well. I am glad the chin strap is working too.

I had a great nights sleep last night, except the sinuses were sore. I checked the water tank and it was bone dry. I had cranked the humidity up, but I can't remember if I filled the tank last night or not. It is filled now, so we will see if it lasts all night.



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Thanks Cathy,
I had surgery Wednesday on my left eye. It is doing well. I tested 20/30 and it has not even healed yet. Doctor advised that it took two weeks. I have the other one done next Wednesday. I sure will be glad when both are healthy and healed. I will be most happy because I want have to wear eyeglasses anymore.

Also, my old nasal pillow mask is doing real well with the new chin headgear.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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I will keep you in my thoughts and prayers. Both my parents were very happy with their cataract surgeries and were back to normal with better vision in just a few days.

The next time I can get a mask will be over Christmas Break. I need to print a picture of the Swift or make a note in my day planner to remember to try on a variety of masks.



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7/14/09 11:52 P

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Cathy, Re: Swift. I liked it okay but when I compared it to my old one, they were identical except the nasal pillows. I liked the nasal pillows on the old one better. It seems more sturdy. I still had new pillows for the old one, so I slept with it last night. With the new chin headgear, it kept me from breathing through my mouth. I think you might like the Swift. It is lightweight and the color is a light blue. Prettiest one that I have seen. I took it back today.

NOTE: I am having cataract surgery tomorrow morning. I don't know how long it will be before I will get back on my computer.

Edited by: BRAVEONE92 at: 7/14/2009 (23:54)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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Braveone,
Mixing things up is a sign of having a very full life with lots of better things to remember.

I still have to look everything up and I have been on a cpap for several years.

Why did you not like the Swift? I am thinking of switching out masks next time, just to see what is out there.



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Cathy, you are correct re: name of my new mask. Please read the message I wrote to Rivermack. My machine does have a C-flex setting on it. When you get to be my age, it is mighty easy to get a lot of things mixed up.
lol!

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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Rivermack, I stand to be corrected, the name is LT Swift Marage for Her. I got the name confused with the mask I have been using. It was displayed in my provider's showroom. I thought I would try it. It is nasal pillows, real lightweight, light blue in color. At first I liked it but after two nights, I was having trouble with it. I am returning it tomorrow and exchanging it for a new mask, like my old one I have been using. I give up on finding something real comfortable, but my old one does pretty well. My insurance co. pays for a new one every 6 months. The name of my old one is Flexifit 431 by Fisher & Paykel. I also have an older nasal pillows mask, a lot like the new one I am taking back, except the pillows on the old one seems much more sturdy. I am going to try it again tonight with my new chin headgear. I had two nose surgeries about two years ago and my nose inside is still very sensitive.

Edited by: BRAVEONE92 at: 7/14/2009 (01:06)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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I was curious about your question, so looked it up on www.cpap.com.

The Mirage Swift LT for Her sounds like the mask that was described. I like the looks of it. It is light weight and suppose to be quiet.

The site FAQ defined the C-flex. The C-flex is a function that allows decreased pressure during exhalation in some of the Respironic cpap machines.

I have it on mine. I just never thought about what it was called. The machine sounds like it is wheezing. I liked the fan like drone of my old machine better for white noise, but I do think the C-flex helps prevent swallowing air at the higher pressures.



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RIVERMAC Posts: 22
7/13/09 11:52 A

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I never heard of a c-flex for her mask. Is that the correct name?

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Cathy, it is hard to renovate a house but I love doing it. Summer is such a hot time to do it but I hope that your son enjoys it as much as I have in the years past. You need to take him a fan over to cool him off when he sheds his protective suit. Poor guy.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
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7/12/09 2:21 A

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What a blessing. I am glad you found something that is working.

My son bought a house to renovate, and tonight I found him under it, vacuuming, dressed head to toe in a protective suit with a gas mask. When he crawled out he was sweating like crazy and could hardly breathe. I suggested he needed my old cpap machine down there. At least he would have a steady supply of clean air.
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7/11/09 3:29 P

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Cathy & other Members,

I have tried my new nasal pillows mask for two nights, it is a C-Flex For Her. I use the XS pillow. I have slept good two nights thus far. The new chin strap is actually called a head gear and is wonderful, comfortable and no hassel at all.

The first night I used it, I didn't use the humidifier. I did use saline and Afrin though. The second night I used the humidifier on setting of 1. I did much better last night. I think this one is a keeper.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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I feel the same way about a custom fit. I don't think that is going to happen to me, that is for sure. I worked on getting a fit for C-Flex For Her (my new mask today) and discovered by looking into a magnified mirror and hold the different sizes of nasal pillows up to my nose, I was able to judge for the very first time, what fit and what didn't fit. I had a perfect fit with the X small. I always used small because that is what comes with every mask I have owned. I don't know if I will be able to tolerate the pillows or not. As I stated before I get congested and can't breathe well at times. I have a remedy that my doctor prescribed for me but during the wee morning hours, sometimes it doesn't work. I use saline first (lots) then wipe my nose and use no drip Afrin only at nights, no other time. He advised using it only once that I would not become addicted to it. So far it has worked.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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7/9/09 11:56 P

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Yes, it is the respironics comfort gel nasal. I am pretty happy with it. The thing I don't like is the straps that ride up and rub my ear lobes. It isn't a big complaint. I just keep looking for new and improved. I think all masks should be custom made for each face, but that probably is unrealistic. I have always wanted a custom made pair of shoes too.
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Cathy,
Is your mask a Respronics? My provider showed me one today, when I returned the Hybrid. He showed me a new one that was showing deterioration already. He stated that Respronics has come out with a new gel mask and that the old one would be discontinued. He showed me the new one on the computer. It was a full face and it is supposed to be much improved. If you don't like yours, I am sure that you have the option of taking it back. Everyone switches them out because they can't tolerate certain ones.

I got a nasal mask, C-Flex for Her. I also got a chin strap, that is called a head gear. It is new and looks as though it will do the job of keeping my mouth closed.

By the way, I stated that I used a full face mask, the way it was made, the mask covered only the width of the mouth and width of nose and held together with bands on the forehead and bands on bottom. I didn't feel I had enough room a long side of my nose & I do have a small nose. But I get congested real easy. Otherwise, I liked my old mask.

Edited by: BRAVEONE92 at: 7/9/2009 (22:07)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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7/9/09 9:42 P

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ok I am learning thanks guys

DEE Southern New Jersey
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Let your life be like Angel Food Cake...sweet and Light---




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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
7/8/09 11:13 P

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I have never even tried a full face mask. I just got a new gel mask, so I will have to wait six months before insurance will pay for another one. I don't know if I can just try something new, or if the doctor has to prescribe it. Up until last year, I got all my equipment from the doctors office, so there was not much of a choice. Now I am realizing that a little research and self advocacy will provide me with many options.



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I asked my provider for that one and he told me that he would sell me one but most of his customers brought them back or complained that the gel caused wrinkles in the mask and was uncomfortable. He definitely did not recommend it at all. That is when I decided on the Hybrid-big mistake!!! Right now I am using a Flexifit 431 full face by Fisher & Paykel. It is pretty comfortable. If I keep the mask clean, I hardly have any leaks. It's just that it is full face and seems to fit too close to my nose at times, it doesn't take much to close off breathing through my nose. I might go back to my old mask, nasal pillows. I will try the ace bandage to keep my mouth closed. We'll see.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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no But I will check it out thanks for the tip

DEE Southern New Jersey
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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,238
7/8/09 2:33 A

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I use a Respironics Comfort gel mask. It is pretty good, but I am always on the lookout for something less cumbersome. The Comfort curve mask looks fascinating. It has some good reviews. Does anyone here use it?



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oh wow i know now not to get that one,, hugs

DEE Southern New Jersey
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God is Good all the time. All the time GOD is good.

Let your life be like Angel Food Cake...sweet and Light---




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7/7/09 10:10 P

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RE: The Hybrid mask, I could not tolerate it at all. I tried all sizes that were included, and I would try using it during day so that I would be ready for night. It just did not fit me at all. I am returning it. Meanwhile, I will stay with my old one.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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6/19/09 10:47 P

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URSYL, I am glad that I found someone who has a Hybrid mask. I have done research on this one and everything looked good to me. I ordered one today. Please write and tell me everything positive or negative on yours. I need to be informed before I start wearing mine. I sure hope I will like it a lot.
Thanks.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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6/19/09 3:26 A

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Ursyl,
Someone on a different thread was asking about the hybrids last week. I mentioned you, but at this moment I can't think which thread it was.

Glad to have you back.
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sounds good .. good luck

DEE Southern New Jersey
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SP Class of Oct 12-18 2008.
Losing Weight & Disabled
Menopause & Losing
Secrets of Life
Grandpas & Grandmas Are Special
40s & up...Sculpting a new U

Faith makes all thing possible
Love makes all things happen
Hope makes all things work

God is Good all the time. All the time GOD is good.

Let your life be like Angel Food Cake...sweet and Light---




 current weight: 195.0 
 
235
213.75
192.5
171.25
150
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