Author: Sorting Last Post on Top ↓ Message:
ANDILH Posts: 1,197
6/3/12 11:22 A

My SparkPage
Send Private Message
Reply
I'm not taking Lyrica right now, but my brother (who has worse nerve/back problems than I do) is swearing by it right now. He insists that I should be taking it, I have herniation at L4/L5 and L5/S1 with pinched nerves going down each leg. I will be having a discectemy over the summer, but am reluctant to take Lyrica based on side effects I've read about online. I know that each person is effected by medications differently and sometimes the positive effects of the medications outweigh the negative side effects. Medications are definitely a personal, case by case thing with each person having to decide for themselves if it's worth it.

JOCKO56BEER11 SparkPoints: (1,570)
Fitness Minutes: (1,040)
Posts: 267
5/23/12 5:04 P

My SparkPage
Send Private Message
Reply
Hello Aggie, my name is John, I live in New York's lower Westchester county. A stones throw to the Bronx,literally. I take it to try and kill , well, at least some of my nerve pain. I went a day without taking any and boy did I feel it. I continue to take it still. I had a serious radiculopathy to my right leg. On occasion My spondylolithesis to my lower lumbar at L5- S-1 which causes my to not be able to stand up nor sit down. I have to lay on my side until it passes. Sometimes I have it all day. I use two canes to get around, and on a good day I can go outside with just one cane.
I've another problem to my neck,four herniations there. That pain goes from the neck to both of my arms(ulna neropathies there) to hands/ fingers with an electric shock and numbness. I use ice there to calm down the nerve pain, I do the same for my lumbar. I also have four to five herniations to my upper back also know as the thoracic spine,those spasms are brutal. I get them daily.
John/ NY

EMBERSIDHE's Photo EMBERSIDHE Posts: 383
7/6/10 1:02 A

Send Private Message
Reply
Hi LilSunflower

I've heard much about lyrica and in all honesty, and I hate to rain on anything, I don't like what I have heard. One friend got a drunk feeling, but it did work for her nerve pain, however she discontinued it as she was unable to drive.
Others have been sick to their stomach, and gained weight yes.
I do think it's a very personal issue no matter what medication one uses, and really if it's working you have to weigh the benefits against the odds of the negatives of any medications. Many medications have side effects and lyrica has some too.

I hope if it's working you can somehow stick with what is best for you. All the best,
Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
SANDYJAS's Photo SANDYJAS Posts: 1,238
6/29/10 9:18 A

My SparkPage
Send Private Message
Reply
Hey Aggie,
Sounds like you have been through the wringer. I had much the same treatment from my pain specialist. He tried amphetamine (dexedrine), Lyrica, Cymbalta, Savella, and a bunch of stuff I can't remember. All those are psychiatric drugs, but the pain management doctors are trying them for fibromyalgia now. I don't have fibro, but I do have pain in different places in my back. I have a bulging disc, spondylosis/degenerative disc disease/arthritis (all the same thing), and facet joint arthritis in L4-L5 and L5-S1.

Right now I am off all the meds because they had horrible side effects. I only take 2 Aleve twice a day, and I use my Interferential Unit, which is like a TENS, but the TENS did not work. The Interferential goes deeper in the muscle than the TENS.

My doctor told me to stop doing yoga! LOL. I had a lot more flexibility when I did yoga, now that I stopped, I lost a lot of the flexibility. The pain management doctor says walking is good, but every time I walk more than 2 miles, I get pain. But I am doing aquatic exercises in the pool. A physical therapist gave me a sheet of exercises to do, and they are really helping my back, a lot. I feel better after the pool and standing under a hot shower, letting the hot water run over my back.

Sandy

Edited by: SANDYJAS at: 6/29/2010 (09:20)
 current weight: 156.8 
 
173
166
159
152
145
AGGIEB1960's Photo AGGIEB1960 Posts: 7
6/29/10 12:56 A

My SparkPage
Send Private Message
Reply
Hi all, my name is Aggie. I was on Lyrica for several months to see if it would relieve my fibromyalgia pain. I didn't have any luck with it, but I have heard that it works great for some people. My rheumatologist has tried lots of things - I have fibromyalgia, multiple levels of degenerative disc disease in my cervical and lumbar spine, and multiple levels of osteoarthritis in my spine, right shoulder, and both hips. I've taken amytryptiline (elavil) which is an antidepressant that is supposed to help with pain - but no relief. I've tried a million different prescription anti-inflammatories and none of them really help. The only thing that provides any relief is percocet, which I have to get from my regular doctor because my rheumatologist is a "non-narcotic" doctor. I'm on a pain management contract so that I can only take so many pills per day - if I run out early, I have to wait until the right refill day. My rheumatologist is adamant that I walk at least 4 days a week - he swears that it will diminish the flare-ups and pain. I have a hard time getting motivated to get out the door, but I have managed to walk one mile two times in the last week. The other thing he recommended, and I found that it actually does help if I do it slowly and gently, is Yoga. I took it two different terms in college (I just graduated on 6/12...I'm 49 years old), and as long as I modify the poses, or back off when it gets too hard, I did find some pain relieve. Guided Meditation for dealing with pain is also helpful...there are lots of free guided meditation sessions out there on the web. I use meditation oasis podcasts www.meditationoasis.com/podcast/list
en
-to-podcast/
. There are at least a few dozen meditations on different topics...the one I use for pain is called "beyond pain."

I hope this helps someone...
Aggie

 current weight: 208.0 
 
222
204
186
168
150
JOCKO56BEER Posts: 2,093
6/21/10 5:38 P

My SparkPage
Send Private Message
Reply
You mean, I'll have feet like a Hobbit?

Take care and be well. John/New York


 
222
204
186
168
150
JOCKO56BEER Posts: 2,093
1/30/10 1:47 P

My SparkPage
Send Private Message
Reply
feet swelling, that explains why the Cardiologist didn't say anything about my feet/lower legs too.
Does Lyrica do that too?
John

Take care and be well. John/New York


 
222
204
186
168
150
JOCKO56BEER Posts: 2,093
1/18/10 8:46 P

My SparkPage
Send Private Message
Reply
Hello all,
I was prescribed 100MG's of Lyrica to be taken three times a day.
All I can say is, if I didn't have the Lyrica my nerves would be extremely painful. I don't know about break through pain,
but it kicks the nerve pain in the butt,lol. I'm very satisfied with Lyrica.
John
PS, I also think my swollen tongue may be one of the side effects they didn't tell me about. I'm biting my tongue on a regular basis now.
John... I'm not that hungry either. John

Edited by: JOCKO56BEER at: 1/22/2010 (19:42)
Take care and be well. John/New York


 
222
204
186
168
150
EMBERSIDHE's Photo EMBERSIDHE Posts: 383
1/3/10 2:32 A

Send Private Message
Reply
I have a yahoo group and well, 6 out of 8 have taken lyrica but have had to come off.
Now, that Fibromyalgia and chronic fatigue have been linked with the XMRV virus, perhaps a better solution with testing can be found - let's hope.

Apparantly, Lyrica can make ones feet swell, weight gain, but having not taken it myself, I am not going by experience, but rather knowledge of others.

HUGS Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
ROBINFAITH's Photo ROBINFAITH Posts: 1,322
12/31/09 7:39 P

My SparkPage
Send Private Message
Reply
Savella is also used for fibromyalgia pain. have you been diagnosed with fibro? Often doctors who can't find something right off, label everything fibromyalgia.
I have severe memory problems from the meds I am on. It gets scary sometimes ): I had a conversation with my son yesterday and don't remember it!!!!!!!!!!!!!!! I have tried so many meds and some are worse with my memory and not as good as what I am on. I am missing so much, but w/o these meds my quality of life would be close to 0. I hate this.
Robin

 current weight: 241.3 
 
268.8
234.1
199.4
164.7
130
ROBINFAITH's Photo ROBINFAITH Posts: 1,322
12/31/09 7:33 P

My SparkPage
Send Private Message
Reply
I am on a lot of pain meds, morphine, oxycodone, and zanaflex........... I was given lyrica for breakthrough pain. All it did was make me sleep. As far as weight gain I honestly can't remember. I was on it maybe a month or so. Lyrica is usually given for fibromyalgia. It helps "some" unbelievably according to my pain mgt doctor with sciatic pain. I have a spinal cord injury that is at my neck level. It isn't complete (I can walk some) but the pain effects me all the way down to my knee's at times.
so for some Lyrica is a wonder med. I was on Neurontin and all it did was make me sleep and bleed. Yup over a year , no help with nerve pain. Again for some it works wonders. Have you just started in pain mgt.??? I would write down every bite you eat for 2 or so weeks on Lyrica, and see if you lose/gain according to what you are eating.
Robin

 current weight: 241.3 
 
268.8
234.1
199.4
164.7
130
SANDYJAS's Photo SANDYJAS Posts: 1,238
12/31/09 1:50 P

My SparkPage
Send Private Message
Reply
Hi Sunflower. I was on Lyrica for about 6 months. It may have caused weight gain, and after I was off of it for a few months, I realized that my memory was fine. I had such bad memory problems (leaving the stove on, etc.) that I went to a psychologist to get it tested. Nobody attributed it to Lyrica, but now that my memory is fine, I assume getting off the Lyrica is what helped it.

The doctor took me off of Lyrica because of weight gain, and that it didn't really help my back pain. He tried Cymbalta and Savella on me, but personally I think they all have bad psychological effects. I am on nothing like that now, just Aleve and Ultram for pain. Psychologically I feel great!

Regarding weight, I noticed that I did lost a few pounds after stopping Lyrica, but I gained them all back by myself. I am not so sure that Lyrica is the culprit.

If Lyrica is helping you for nerve pain (sciatica), I personally would stay on it.

Sandy

Edited by: SANDYJAS at: 12/31/2009 (13:50)
 current weight: 156.8 
 
173
166
159
152
145
LADISHEETS Posts: 76
12/31/09 12:43 P

Send Private Message
Reply
i was given neurontin in place of lyrica because it was cheaper.

i have also noticed a weight gain. I am also starting over. I have radiculopathy also from a cervical disc bulge. i have not had any surgery because i do not insurance.

i have never had diabetes but i have degenerative disc disease and faucet arthritis along with sciatica from all the out of place disc i guess.

i take amatriptyline for my nerve pain and its cheap and helps me more than anything right now. also helps me sleep.

i feel for you. i know peripheral neuropathy is no fun. i am 46 and at times get very depressed over the fact i cant do a lot of things.

i wish you best of luck in 2010

LILSUNFLOWER's Photo LILSUNFLOWER Posts: 2,234
12/31/09 7:08 A

My SparkPage
Send Private Message
Reply
I checked the search engine - found 4 references about Lyrica, but couldn't identify who wrote those blogs...
I've been on Lyrica for one month - have a month to go before being re-evaluated by my pain management doctor...
I have gained weight. BUT I had gained back 11 pounds of the 21 pounds I had lost since starting SP. So I don't want to blame Lyrica alone for the gain. I want to start over - New Year's seems a great time to re-commit. I just need to decide if my pain level is "better" enough.
I've had 4 epidurals, I still limp (I've spinal stenosis and sciatica) I have muscle pain of my upper thighs - but I do feel better, maybe because I'm sleeping well.
I'd just like to talk with others who are on this med - or who stopped it because of the side effects.

Have a Happy New Year.
LilSunFlower

You cant start the next chapter of your life if you keep re-reading the last one.


 current weight: 126.5 
 
160
151.25
142.5
133.75
125
Page: 1 of (1)  

Report Innappropriate Post

Other Spine Injuries And General Back Pain Excercise and limitations Posts

Topics: Last Post:
cauda equina syndrome anyone? 9/19/2013 8:57:43 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=8375x10300x30625010

Review our Community Guidelines