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CAMMYJONES's Photo CAMMYJONES Posts: 7
2/26/11 1:30 A

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Congratulations on the weight loss! Keep up the good work. For myself, I found that the less sugar I ate (which unfortunately includes eating less fruit and breads) the less inflammation I have, the less pain I seem to have. That simple (but sometimes hard to follow) strategy, helped keep the weight from piling on too fast.
I gained 22 lbs in the 2 years I was living in absolute pain, and now 7 months since my back surgery, I have lost it all plus an additional lb and a half, using Bodymedia, GoWeat Fit arm band. Whoot whoot.
Keep up the good work and keep posting your progress.

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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2/24/11 11:35 P

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It is so hard to even get the nerve up to even try to exercise. It
seems to take everything out of you, plus the pain suffering.
I still think if you can walk at all, you ought to try. I don't know
if others are like me, but I could strave and not lose a pound,
unless I add exercise to it. Even then, weight is hard to lose.
However, it is damaging to our joints and our bodies to keep
the weight on. I just try to do all I can to eat healthy foods,
stay within my calorie range and exercise someway every
day. It really is worth the suffering to do it. You suffer either
way, or that is the way it is for me. Strength training will
actually help lessen my pain, doing it 3 times weekly.

Edited by: BRAVEONE92 at: 2/28/2011 (23:06)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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PURPLEVALENTINE's Photo PURPLEVALENTINE Posts: 5,033
2/21/11 7:45 P

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I have noticed a lot more pain in my back since I have gained weight. I lost weight for my wedding last July and then packed on 20 lbs. My poor back is not used to this weight and is hurting. I am 25 pounds lighter than my all time heaviest but I can really tell the difference. I need to get this weight off!!

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SNUGGLYDUCKLING Posts: 2
1/1/11 4:24 P

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Back pain can definitely derail you when it comes to fitness. I had lost about fifty pounds five years ago, but after a back injury, I gained about 30 of it back. It's particularly hard when you feel good enough to walk, but then after doing so, the pain flares up again. Hard for me, because I really liked pushing exercise as hard as I could, so the setbacks were very disheartening. However, I am going to try again, taking it slow and steady. Happy New Year and best wishes to all for a healthier back in 2011!

JOCKO56BEER Posts: 2,093
11/9/10 7:55 A

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I've been taking Lyrica for more than a year now and I've managed to loose weight while on Lyrica.
But, that's because I knew Lyrica can make me gain weight. I purposely went on a diet because of the weight gain problem. John

Take care and be well. John/New York


 
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MARTHA_JEAN's Photo MARTHA_JEAN Posts: 407
10/27/10 12:22 A

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Just wondering if anyone else on the forum has encountered the side effect of weight gain from taking Lyrica.

From my research, it is a common side effect. That's all well and good but I haven't found any good strategies for dealing with it or get it off!!

So if you've experienced weight gain and/or know ways to deal with it/get it off, please let me know!

I have been working out 30 minutes a day and eating well. I was going down but noticed weight gain after I started taking Lyrica.

Thanks - Martha

p.s. John I hope things go better, and I wish I had some sort of suggestion!!

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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
10/9/10 10:27 P

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LILOATS, emoticon emoticon emoticon on the weight loss so far.

John, you described heavy legs in your post, is this due to the back? Since my unfortunate appointment with the PT that is a symptom I have complained of, but never before with the five other back surgeries. It is just a new description for a symptom I've never had. In the past, I would just have had enough pain to make walking impossible. So this is just curiosity.

Kimberly

JOCKO56BEER Posts: 2,093
10/9/10 9:14 P

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Good evening all,
I've been having numb and tingly legs for the past week. I just ignored the pain while I was walking. I managed to walk 3 miles today with that leg(s) pain,
And after I finished (I stopped often to rest the legs by sitting at any and all rest spots. There were six of them,and all of them were used,lol.)
I get heavy legs during the walk that took me uphill. I noticed how much I felt my legs becoming heavy,I'd stop and sit where ever I could.
I hope to walk tomorrow but I'll have to see how bad they are tomorrow. Take care and be well. John
PS. I stalled the pain by doing a "walking meditation". It was the "mindfulness meditation. It makes me feel good when I say all the directions for all beings(both human and other, The "other") would be the animals of the world. I wouldn't name them all just 'bunch' them together,to the North Those critters, to the east.., to the south..., and to the west.. John

Edited by: JOCKO56BEER at: 10/9/2010 (21:28)
Take care and be well. John/New York


 
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LILOATS's Photo LILOATS SparkPoints: (26,394)
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10/9/10 4:28 P

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I injured my back at work February 25th in 2008 and I gained 67 lbs. all together because of lack of activity. To dat I have lost 17 of it. Woo Hoo

Co-Leader for The Cat Lovers Team
Co-Leader for the Spine Injuries And General Back Pain Team
Leader For The Love of Maine Coon's Team
Leader for The Cats Forever Team
What Ever You Do, Do It With A Smile On Your Face & A Song In Your Heart


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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8/10/10 11:16 P

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I hope all are doing fairly well on this team. I don't check in here as often as I should. I will try to check in more often.

John, I hope that you are doing okay.


Edited by: BRAVEONE92 at: 8/10/2010 (23:16)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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JOCKO56BEER Posts: 2,093
8/2/10 11:07 A

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Today was a washout. My legs and feet swelled to a larger size than before.
I just kept them elevated and took Furosemide 40mg's.
twice a day, and just one of the metolazone 2.5mgs'
Ad there off to the restroom very fast after ingesting,lol.
I timed it right this time around. I have an appointment at the Dr's office at 2 today and the urination's are slowing down now. I'd hate to be on a train or walking to the train(all down hill)when the "urge" would come upon me,lmao
John/New York

Take care and be well. John/New York


 
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JOCKO56BEER Posts: 2,093
7/30/10 9:41 A

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Yesterday, I felt OK,so I vaccumned the living room/ computer room and cleaned out the freezer from an over abundance of ice. Well, after both chores were finished I felt my back tightening up. I then just did my lumbar exercises and no more back ache.
All it was,was a stretching routine, you know, sit on floor, grab your toes while keeping your back straight for a count of ten(each leg). Knee's to chest for a count of five and I did those for twenty minutes total. That did it, no more back pain,and I felt OK all day/night.
Today, I'll be taking a long walk with my canes. Better to be safe than sorry. John

Edited by: JOCKO56BEER at: 7/30/2010 (09:42)
Take care and be well. John/New York


 
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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
7/29/10 4:38 P

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Good to hear.

JOCKO56BEER Posts: 2,093
7/29/10 7:41 A

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A week later and no more numbness, nor tingling for the past three days. I use an ice pack on my lower neck to kill that pain,it seems to work well on killing the numbness too!
John

Take care and be well. John/New York


 
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JOCKO56BEER Posts: 2,093
7/22/10 6:45 P

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I wish my leg problems were done with,but my legs still go numb in the morning and all day. My balance is off too I didn't trust myself taking a shower so I did the next best thing,bath,lol.
I had some dizziness then but over came it quickly by focusing on a single,anything in front of me.
I've got to lay down now, my feet has begun to swell,time to get them above my heart. trying to get the swelling down by dinner time, lol, I have to make it. John

Edited by: JOCKO56BEER at: 7/22/2010 (18:46)
Take care and be well. John/New York


 
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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
7/22/10 4:29 P

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Thannks for the info John. Hopefully, I will never have my legs fail me again but I will keep an eye out for numbness if it were to happen.

I hope all in all you are feeling well. That sounds like a lot to go through.


Kimberly

JOCKO56BEER Posts: 2,093
7/21/10 11:13 P

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Hello Kimberly,
The dizziness is new to me since I had my brain operation in 2000.
The legs loosing balance my be due to PAD with me,it's perifrial Artery Disease, their are clogged ateries in the lower leg's. You should check out my your legs get numb. It may not be P.A.D.at all,but just getting it checked out may save you big bucks in the future. John

Edited by: JOCKO56BEER at: 7/21/2010 (23:13)
Take care and be well. John/New York


 
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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
7/21/10 10:30 P

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Do you have any specific cause of both the dizziness and the loss of leg function? I hope you have at least checked it out with your doctor.

I have had my legs fall out from under me only three seperate times in my life and it was very scary.

Keep us up on how you are doing.

Kimberly

JOCKO56BEER Posts: 2,093
7/21/10 8:55 P

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Hello Ruth aND FRIENDS,oops chubby fingers,lol.
Two days ago I had nothing the celebrate though, I awoke with both legs asleep,when I tried to get up my
Legs didn't, I was a weeble( Weebles wobbly but they aren't supposed to loose my balance and fall down), I was both dizzy and my legs went numb,a combination no one should have. I fell so many times I lost count,I do know how many bruises I have.
John/New York

Take care and be well. John/New York


 
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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
7/19/10 12:16 A

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You'll have to do some sit up John - just kidding. I think for the most part many of us, women too have tummy issues, and it's truly the hardest part to lose...



~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
JOCKO56BEER Posts: 2,093
2/19/10 5:49 P

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I think I know what you mean. It seems I gained more than I knew,I'm pushing 290 now but didn't notice it until someone at the PT(physical therapy) place said so. I hadn'tnoticed my arms getting muscular,along with my legs. The Doctor said I should loose thirty pounds but not to worry about loosing more weight because he believes I've gained muscle weight to the upper body. I can feel it too,lol. John
PS, I do have a big gut and that's the weight he wants me to loose.
John

Edited by: JOCKO56BEER at: 2/19/2010 (17:50)
Take care and be well. John/New York


 
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SCRAPPY102 Posts: 10
1/30/10 4:31 P

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i was planning on getting a sleep number bed, but now i dont think i will. continued weight loss and exercise in the water is my plan. i bought a hot tub and that really helps while i am in it. it is only 19 degrees today, but i am going in it. also have just started getting terrible knee pain from arthiritis. carrying all these extra pounds for all these years has taken its toll.

MOMOFPRE's Photo MOMOFPRE SparkPoints: (12,209)
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1/22/10 7:57 P

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I have a lot of spine problems and have come a long way.I still always have pain and have thrown away the pain medication s daily and only use them P.R.N. but before all that I went to the YWCA and would do water exercises which helped. Another thing that helps me are the New sketcher sneakers--they help keep you in balance and when you walk it's like walking in sand-- soft and burns more calories.Sometimes you hurt even more if your unbalanced and have poor posture which causes more problems. I understand how you feel been there and still have some really bad days.I will keep you in my prayers and hope you can accomplish your goals and get some pain releif.Oh! by the way if your on steroids they add weight and it took me a long time to lose the weight i put on from them so just be patient and re-evaluate medical plan.
Nancy emoticon

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SCRAPPY102 Posts: 10
1/21/10 1:46 P

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I am in constant pain. i take a lot of prescribed narcotics and they dont even work. i have faithfully been eating only fresh fruits and vegs and protein, started jan 2 and will weigh in at doctor feb 1. i wish i could go for a walk, but that throws me in severe pain. i have been using recumbant bike, but that also hurts but i have to exercise. i weigh 222, started at 234 a yeAR AGO. i needd to speed things up. good luck to you. shannon

MOMOFPRE's Photo MOMOFPRE SparkPoints: (12,209)
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1/5/10 3:50 P

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I only put on 2-3 lbs. over the holiday and there gone now but the pain is still there and most likely will always be there in different degrees and I can handle that as long as I can function ---so thank God for that.
Nan

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JOCKO56BEER Posts: 2,093
12/29/09 2:38 P

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All the weight I gained during the holiday season is gone! I gained fourteen pounds and lost fourteen pounds. I will never give up the quest to loose more though.
John

Take care and be well. John/New York


 
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JOCKO56BEER Posts: 2,093
12/6/09 4:17 P

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Hello Ruth,
I have the same problem with the only difference , I was diagnosed with an Ulna Neuropathy(both arms,elbows). I have nerve damage from my elbows up to my hand.
Only one of several neuropathies on/in my body
John

Edited by: JOCKO56BEER at: 12/6/2009 (16:18)
Take care and be well. John/New York


 
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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
8/25/09 9:42 P

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Thanks JUDYMCK1 for the info. emoticon

JUDYMCK1's Photo JUDYMCK1 Posts: 101
8/25/09 10:25 A

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Have you seen your regular family doctor for the numbness? I have circulatory problems (vascular) and you can get numbness from that also. That being said, carpal tunnel does cause numbness and pain in the elbow. I have it in my right hand which is weird since I am left handed. I also worked for my ortho for 12 years before retiring and yes the elbow hurts. I won't have surgery until I absolutely have to either. Check out both since the circulatory problem (if you have it) could be bad news. You don't want to let that go. I do think it is probably carpal tunnel though.

emoticon

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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
8/24/09 7:11 P

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Embersidhe,

I do not know if I have carpel tunnel syndrome or not. I talked to the local ortho and he told me to see a hand surgeon if it continues. I have my doubts that it is carpel tunnel because I will get it even if my wrists are straight, I believe it is in the elbows. The hands will go numb if I hold the phone, tuck my hands under my head while sleeping, etc. I figure I will just keep on truckin until I can't.

I am sorry to see you are not feeling great with the dizziness, etc. Take care of yourself.

JUDYMCK1's Photo JUDYMCK1 Posts: 101
8/24/09 11:54 A

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Thank you for the info...I have used a body pillow in the past but they flatten out and for me it doesn't seem to matter if I have one or not. Right now my house is on the market so everything has to be just so and therefore I have nowhere to keep the extra pillows and still keep the room "showroom" ready. If you have ever sold a house you know it is like living in a hotel until it sells...a real pain in the a--! LOL So for now I am doing without the extras.

Thanks for caring....Judy emoticon

Edited by: JUDYMCK1 at: 8/24/2009 (11:55)
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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
8/24/09 3:51 A

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Hi Judy
Have you tried using a body pillow at all?
After each of my surgeries I added another pillow - one for this, and one for that. LOL My bed is covered in pillows. HA HA
A body pillow might help you though, as you can relax into it, rather than onto it, and it may help with your limbs staying 'awake' - no punn intended either

HUGS Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
EMBERSIDHE's Photo EMBERSIDHE Posts: 383
8/24/09 3:49 A

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Hi ATTHEINLET
Do you have carpul tunnel?
I had surgery back in 97, it half worked for me. I have a little plastic tube insterted in my hand actually, and it stops the nerve from swelling again, I had it done by a plastic surgeon. Although, my other hand should have been done as well.

I hope yours gets better. What I found really helped was ultrasound therapy.
HUGS Embersidhe


~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
ATTHEINLET's Photo ATTHEINLET Posts: 5,908
8/9/09 4:31 P

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I sort of feel the same way. I can puff up or let out the air , so I do not have any plans to try a different bed.

I too wake up with hands that are completely numb, but they do not hurt they just are until they come back.

Thanks for your thoughts.

JUDYMCK1's Photo JUDYMCK1 Posts: 101
8/9/09 2:16 P

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I go to bed feeling okay but wake up in horrible pain. My arms and legs also wake me during the night since they fall asleep (no pun intended) while I am sleeping. Getting up and starting my day is the worse part of my day! I am useless until I have had breakfast and can then take my pain medication.

I also have a Sleep Number bed and I still have the pain but it is better with the sleep number than with the standard mattress (at least for me). I do think that as I age sleeping will become worse and worse since the degenerative disk disease I have will keep on getting worse! The Sleep Number bed allows me to somewhat compensate by adjusting the air in the bed....sometimes more and sometimes less...depending on how I feel. I also wake up with extreme pain in my feet (feel like they are broken) and it is very difficult to move them. I guess that is from lying in the same position for too long. I am very bad about that. Once asleep I just stay that way until I wake up with one pain or the other.



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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
8/7/09 11:18 A

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I have had a sleep number bed for twenty years and I have just as much difficulty with pain at night as I had before. I was actually wondering if others have as much problems lying in bed as I do.

I have a towel rolled up to fill in the waist area when I go to bed and I have a pillow shoved under my back to the side. I have had some relief from the PT, but unfortunately insurance will not pay for maintenance. So, I will improve for a month and then the slide goes again.

So, do others find nighttime to be harder than the day or the other way around?

LARAE329's Photo LARAE329 Posts: 2,908
8/7/09 9:05 A

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I rarely sleep straight through the night and the bed has a lot to do with it also. I have always loved a firm bed but now that I have the back pain the firm beds hurt my back.

Know God Know Peace; No God No Peace


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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
8/7/09 2:34 A

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I don't need a sleep number bed, I just need sleep LOL

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
CANDYSMOM1 Posts: 1,053
5/15/09 7:25 P

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I would have liked one that we could elevate the head of the bed or gatch the knees on but we just could not swing the extra cost. The only reason we went for what we got was because we got the lump sum of my back pay of social security. It was a good thing we got it when we did. Hopefully we will continue to have a house to keep it in. We got a call from the bank today that our application for altered mortgage payments has finally been given to a negogiator.

Michelle

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LARAE329's Photo LARAE329 Posts: 2,908
5/13/09 11:58 P

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Those sleep number beds are great! I stayed at the Radisson hotel last year and all their rooms have them. I am trying to save up for one. My back felt great after sleeping in one of those beds.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
5/13/09 7:38 P

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When I first got on to social security and got the big check of back pay, we went out and purchased a sleep number mattress. My husband keeps his rather firm but I have mine pretty soft. It (at least) barely puts any pressure on my spine. I find that some days heat is good and other days cold. I also use lidoderm patches but they are very expensive depending on your insurance. A couple years ago I had to get a box while I was in the medicare "donut hole" and they cost over 300.00.

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BLUESCOOT Posts: 21
5/13/09 6:01 P

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WOW *hugs* for each and everyone of you living with back pain impacts every single minute of everyday. I know that there are days I would rather go back to sleep then try to move. I truly believe the spirit and the mental strength is what gets us through the days.
I have found that heat is the one thing that makes life work for me I spend many hours in a day sitting with a heating pad on my back. I am also struggling with money being that for the most part I am unable to work. The one thing I was given is for Christmas my parents bought me and heating pad matrices cover. I keep it on low all night it helps to keep me warm at nights and also makes it so I can get up in the morning.
Good Luck with your continuing strategies!
Together we will make it :):)
~J

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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
4/1/09 3:21 A

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Hi Michelle
I came here tonight to look for you, and here you are.
I will write to Oprah, I know you have tried, but it's worth another. I will explain your situation ok and see if Peter Walsh can pay you a visit.
Now I am going to figure out how to do the buddy thing. See I was sreious. Love ya
HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
CANDYSMOM1 Posts: 1,053
3/31/09 9:43 P

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We have been trying to find an organization that would come help use sort thru things; to decide what we want to keep or get rid of and get what we are keeping but don't need right now packed up. We can't pay anything because we don't have it. As of yet we haven't been able to find any volunteer groups.

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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
3/30/09 11:17 P

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CANDYSMOM AND LAERAE,
I feel for both of you. I very rarely take help when offered, yet, I always tell others to accept help. It is very difficult to admit an inability. I never want to admit I can't do it. I do things and hope that I will recover. I pulled some white birds of paradise from the garden and it took me three weeks to get back to stable.
I don't know if you are aware of a PT technique called "the Paris Method". It was a type of PT I had never seen in all my years. I only learned of it two years ago when my Mom woke up in severe pain and could barely move. She went to an Orthopod and he was prepared to put in screws. But first he suggested epidural injections. At first we thought they were not working but after the third she felt better. He told her to go to PT to be stretched (she could not stretch herself). This therapy has kept her out of surgery and living a moderately normal life.

I asked the therapist if she could help me, I had my right hip way out and was bent forward. I had been this way since my last fusion at 21. My doctors said I just got fused in this position. However, after three months of the Paris Method treatments my posture was corrected. As she pointed out when you are fused there is absolutely no way for me to stretch the lower back muscles. So if possible, I suggest finding a PT trained in this. Unfortunately, my insurance refused to pay for maintenance so I have to wait until it goes bad and then I go back for months more treatment. My pain lessens some for a while. It actually helped for a few months particularly with sleeping.

Do what you have to do, but if you can, take some help since it sounds as if you both are not in a stable position. As we are all aware the stress of moving and possibly losing a home can impact your pain level.

Take care and be as good to yourselves as you can.
emoticon

CANDYSMOM1 Posts: 1,053
3/30/09 11:03 P

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I have my back and my husband is missing a leg. He has a prosthesis but he can't do alot of this kind of stuff. And my son goes to school full time and works full time and needs time for homework.

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LARAE329's Photo LARAE329 Posts: 2,908
3/30/09 10:43 P

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I am in the same situation. I have to move by April 15th but with my back pain it is so hard to pack and move boxes around. I am alone in this move and have to do it all by myself. I have no family close enough to help and friends have offered to help but they make things take even longer and do more talking than packing.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
3/30/09 10:38 P

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I am getting to a point where it isn't going to matter how much pain I am in. We have to get this house cleaned up and ready to sell. I have been doing what I can tolerate but am getting no where. I don't know how I will sort thru things and pack things up. There is alot I don't want to part with but we are going to have to down size dramatically. We currently have a large house and would probably go to a two bedroom apartment so there won't be room. My husband is about to part with a valuable collectable to give us some more time(moneywise)We are dangerously close to losing the house. We are waiting on the bank to make a decision on our application for a change in our mortgage.

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ATTHEINLET's Photo ATTHEINLET Posts: 5,908
3/30/09 9:35 P

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I find it interesting how doctors treated me for my back with my weight. When I first complained of pain at 14, the doctors told my parents I was obese and it was in my head. Eventually, I proved them wrong the hard way - emergency surgery to keep walking.
However, In my early 20's when I was thin, my doctors just said I did all I could do (being thin) and so he had no problems with the pain meds.
When I got to my heaviest, ironically, I had far less pain. I believe this was because I did nothing.
The thinner I get, the more active I am, the higher the pain level. So, it is a balancing act of pain and weight and which is more important and can it be managed...

CANDYSMOM1 Posts: 1,053
3/19/09 6:05 P

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I guess it's all due to the liver damage. Weare rearranging the doses and times that I take my meds to try to let my liver handle them better and regenerate itself. Bloodwork will be redone in 3 months.

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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
3/19/09 3:58 A

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HI Michelle
How long have you had this rash hun? Write me about it ok. I have pscoriatic arthritis, although at the moment it is in remission. Mine acts up worst in Summer actually, I think the heat brings it out more. Can't even see my fingers then or get my rings on due to swelling. Tell me more about you though ok

HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
CANDYSMOM1 Posts: 1,053
3/8/09 9:31 P

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I may be in for a complete redo of my medications. I developed this rash on my hands, arms tummy, thighs and calves that looks like psoriasis(which is related to rheumatoid arthritis) along with increased joint pain. My hands hurt which never did before. Typing is even hard. I also have some abdominal pain. Bloodwork showed my liver function was elevated. I won't have the results from the ultrasound for another day or two. Gall bladder has been gone since 1992. I'm more than a little scared. I've had trouble waking up until well into the day and that could mean that my liver isn't clearing my HS (bedtime)meds the way it should. I'm afraid at the thought of having to go without my pain meds for my back.

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2009GETINLINE's Photo 2009GETINLINE SparkPoints: (15,134)
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3/8/09 7:13 P

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Going through pre op tests for a newer Nuro Stimulator implant. Battery is completely depleted.
It's been 10 years since I had a new one. It takes away the every day pain....except for going food shopping and doing 10 loads of clothes the same day and do regular chores is really foolish. The implant allows you to pace your day and do other things except cleaning house all day.

Recovery is 3-4 months..so I'll be with you peeps until mid summer.

Yo ticker! Thank you for moving down:)
Turtle take 2 steps down...ugh! ugh!


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JOCO50 Posts: 486
2/20/09 9:27 A

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I've begun a new diet, I was "stuck" for two month's on my 'old' diet, & I can already feel the lower back is not as painful as it usually is.
Slim Fast is the diet, and I haven't cheated at all, which surprises even me!
The power bars I buy to thwart off hunger are working great too and they are only 120 calories each
I had only 1150 calories eaten yesterday including dinner (salad with carrots, and steamed zucchini.)
John/Joco50

"Tis better to have loved and lost than to live with the psycho the rest of your life"


 
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CCLARK1143's Photo CCLARK1143 Posts: 689
2/2/09 2:37 P

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Marion,
I was told to sleep on my side with a small pillow between my knees. It really relieves the back pain and is not that hard to get used to. In physical therapy, I was taught several exercises to handle the pain and make the back stronger. Perhaps your Doc can refer you for a few weeks to get training. Also, using a stability ball really helps. My daughter sits on hers at the dinner table and rolls it in to the computer room to use during that time. She also uses it while watching tv and it all helps her back. Good luck.

Chronic Knitter~~~~~~~
-::-..) .*)
(. . .`-::
Griffyndor House Seeker
-::- ♥.*)
♥.*

Never give up. Never. Never. Never.............
Winston Churchil

May your troubles be less, may your blessings be more, and may nothing but happiness
come through your door!



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CANDYSMOM1 Posts: 1,053
12/31/08 5:46 P

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We have been through all KINDS OF COMBINATIONS. The duragesic worked for years but slowly we were increasing the dose until we couldn't do that anymore. So we switched to the methadone which does pretty well as long as I remember to take it. And right now I am getting over a stomach flu. I've been without all po meds for 5 days. just starting to be able to keep them down.

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DEBBIEZ56 SparkPoints: (0)
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12/29/08 11:58 P

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emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon
CandiesMom, Have you tried other med combinations? I have to say that what I am doing works for me and while I know that each person and situation is unique, I believe that there is something that can be done to help you live without the constant pain. I take MS Contin every 12 hours, Diclofenac every 12 hours with Pepcid to protect my stomach, Lyrica for the nerve pain, Elavil at bedtime, Celexa for depression, Blood Pressure and Cholesterol meds, vitamins and calcium. I objected to the calcium because I have lots of bone spurring and boney overgrowth, but the rheumatologist and endocrinologist insisted I should take it. I had thyroid cancer diagnosed and then had surgery to remove it in 2006. Then I had two carpal tunnel surgeries, my neck surgery and then finally my lower back surgery. Like you I have both central and foraminal stenosis at multiple levels throughout my spine. They wanted to fuse all levels of my L-spine, but my blood pressure dropped and I ended up in ICU. I have been blessed with warm water physical therapy, but since I don't drive anymore and my therapy sessions are finished, I don't have much opportunity for that now.
Anyway, sorry about being so long winded. The point is I think if you work with your doctors they will find a more comforting medication regimen. I'm keeping you in my prayers.

Edited by: DEBBIEZ56 at: 12/30/2008 (00:39)
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CANDYSMOM1 Posts: 1,053
12/25/08 11:57 P

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I see a pain specialist usually monthly and we're woring on the meds. My surgeon says there is nothing more he can to at this time unless some new microsurgery techniques come up. There's just no way to separate the nerves from the bone. He is one of the best and they fly him all over the country to do surgery on people. He knows what is out there. So for now I'm in the hands of the Pain specialist and the psychologist.

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LMANNE's Photo LMANNE Posts: 502
12/25/08 2:19 A

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Larae is right. We are here for you. I try not to take my pain pills, and I'm probably not in my right mind not to take one now. We went off our island to finish our Christmas shopping, and the roads were so awful that I was bumped up and down all day. The snow and ice made my back jolt way too many times. We barely made it up our hill to come home tonight. At least the ferry trip was smooth.

Have a great Christmas everyone!!!
emoticon

Leila

Have a happy, and excuse me while I be strange!


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LARAE329's Photo LARAE329 Posts: 2,908
12/24/08 1:57 P

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You have so much going on, WOW! I hope you keep looking for a doctor that can find something that helps with your pain. We are all here for you, even if all you need is a place to vent know we are here.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
12/23/08 7:57 P

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The heartbreaker is that I have a disabled son (mild CP but mentally functions as a 6 year old for most things) who also has behavioral problems. With my husband also disabled(an amputee) we had to put Jordan in a group home because we could not keep him busy enough to prevent his violent outbursts and could not physically defend ourselves. And I was not going to let the cops take him to jail to become a victim.

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LMANNE's Photo LMANNE Posts: 502
12/23/08 3:27 P

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I truly wish I could have gone without my surgeries, but I had no choice. What is really sucky about that is it is all my body. No accident, no injury. I just hope that I never have to have another one. That's why we (ha, ha) moved away from the snow belt. We have almost two feet on the ground now, and I can't afford to slip or fall.

Leila

Have a happy, and excuse me while I be strange!


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LARAE329's Photo LARAE329 Posts: 2,908
12/23/08 12:52 P

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Wow! I thought my back pain was bad. I haven't had any surgeries for my back pain and hope I never have to. There must be something they can do for the pain. I am so sorry for what you must be going through.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
12/22/08 11:55 P

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I would put it back on now if I could but in 2005 I had lost all that weight and had the brace made smaller. Now I'm bigger again and it won't fit. The insurance company won't pay for another one. I can't afford it on my own, so no brace for now.

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LMANNE's Photo LMANNE Posts: 502
12/22/08 11:39 P

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Shhhhhhhhhhhhh. Don't tell. I hated that brace but it gave me relief too.

Leila

Have a happy, and excuse me while I be strange!


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CANDYSMOM1 Posts: 1,053
12/22/08 11:38 P

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I actually had so much pain a year and a half after my surgery that I put the brace back on on my own. It does give relieve. It helped the pain more than it was uncomfortable

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LMANNE's Photo LMANNE Posts: 502
12/22/08 11:28 P

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OMG you had a turtle shell brace????!!! Gawd I feel for you. I was in one twice, once during the summer! I HATE that thing!!!!!!!!!!

Leila

Have a happy, and excuse me while I be strange!


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CANDYSMOM1 Posts: 1,053
12/22/08 11:08 P

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I'm on soooo many meds. Methadone every 6 hours (it was invented as a pain med, not as a get off other drugs med) Percocet PRN: Ativan prn anxiety; Neurontin for nerve pain(I'm up to 700mg at night) Topamax for nerve pain and migraine prevention; Robaxin muscle relaxant; Ambien for sleep; Amitriptyline-antidepressant; Remeron-antidepressant; one question I had was whether I had overdone the calcium. I lived on liquid yogurt right after the surgery. I didn't eat much else. I lost my appetite in the turtleshell brace. But I drank alot of yogurt. Is it possible to overdo a good thing?

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LMANNE's Photo LMANNE Posts: 502
12/22/08 10:39 P

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Yikes! Isn't there anything they can do??? I really feel for you! I've had two fusions, and although pain is always there, it has become manageable most of the time. Right now is tough, since we have been pretty cold, and the arthritis in my back is really painful. I can't take anti-inflammitories because of my gut. We all need to find ways to get rid of our pain. Withe everything out there, you would think they would find something that would work!!

Leila

Have a happy, and excuse me while I be strange!


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CANDYSMOM1 Posts: 1,053
12/22/08 10:23 P

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I originally fell on ice and blew out a disc. Then alternative therapy blew out a second disc. I finally had a spinal fusion done. Things were better for awhile but the pain started coming back and when they tried to do a myelogram to see why, they couldn't get a needle in. When they did other testing they found out that I had grown bone completely across and up and down the entire lumbar section of my back. All the nerves that control feeling, pain and movement of the lower part of my body are trapped in that mass of solid bone. There are times that I fall because all of a sudden the message doesn't get through from my brain to my legs. I not only have back pain but pain and neuralgia in my legs, especially the right side.

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LARAE329's Photo LARAE329 Posts: 2,908
12/22/08 9:18 P

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Candysmom, what is the cause of your back pain? Have you seen a pain management doctor? I can stand and walk for a max of 5 minutes before the pain kicks in and if I dont sit I will eventually pass out from the pain. My doctor and I have been going through trial and error to find the best pain medication for my back to I can have some sort of life and work.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
12/22/08 8:18 P

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I tried going to Courage Center both with a physical therapist and on my own but any amount of exercise create extreme pain. I mean to the point of tears. All I can do now is get what I can done each morning(that has to be done for the house and family) and then lay back down.

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LMANNE's Photo LMANNE Posts: 502
12/22/08 3:09 P

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Do you have a pool you can get to? When I was unable to do anything, and I do mean anything, without extreme pain, I was able to do a few things in a pool. The water takes the weight.

Unfortunately, I now live in an area where I don't have that option. We have one pool here that is shared by the school and the athletic club. I can't afford a membership, so I can't use it. We don't have a therapy pool here either.

If you have a pool anywhere, see if you can use it.

Leila

Have a happy, and excuse me while I be strange!


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CANDYSMOM1 Posts: 1,053
12/22/08 2:18 P

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Even the slightest exercise causes extreme pain but I am trying. My husband bought me some free standing pedals that you can use sitting anywhere. I can do a few minutes at a time. The problem is that sitting on the end of my spine is like a knife has been jammed up there. The pain is intense. The nerves are over stimulated being trapped in all that bone. and sometimes it causes the message from my brain to not get thru to my feet and I end up flat on the floor. My legs just collapse under me. Less weight would help limit the falling, I guess.

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LMANNE's Photo LMANNE Posts: 502
12/22/08 1:54 A

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I gained over 100 lbs spending 5 years in a wheelchair being told I'd never walk again. I've lost 66 pounds just by limiting my portions and eating smarter. I still eat what I want, just not as much. As I lose the weight, I find I get full faster, with less food. I am able to walk now, and that helps. I don't walk far, but I walk what I can. Good luck to you all!

Leila

Have a happy, and excuse me while I be strange!


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LARAE329's Photo LARAE329 Posts: 2,908
12/21/08 9:51 P

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I now have 2 herniated discs in my lumbar spine which has caused me to put on more weight because exercising is a pain. I have been going to a physical therapist and they have me doing modified exercises for my back, abs, and thighs. The key is to strengthen the muscles surrounding the back to support it. There should be exercises on SP for people with back problems and other disabilities.

Know God Know Peace; No God No Peace


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CANDYSMOM1 Posts: 1,053
12/21/08 7:25 P

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My back has been bad either way but I know it can't be doing it any good for my joints to be carrying the weight. And what gets me is that some of my meds cause weight gain. I'm afraid to give them up because there has been some improvement in the nerve pain. Michelle

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SWTQPIEMARION's Photo SWTQPIEMARION Posts: 75
12/21/08 6:33 P

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As of right now I am at the heaviest I've ever been and it's really taking a toll on my back. I have never really been in so much back pain until I gained the weight and now I'm trying to figure out how can I excerise and get rid of it if I'm hurting too bad to begin with?

I've always had a problem doing anything that involves my back, I can hardly sleep on my back let alone do crunches because it requires laying on your back. Any modification exercises I can do to strengthen my back and get rid of this gut???

Thanks in advance.
-Marion

-ATTITUDE- Author Unknown

The remarkable thing is we have a choice every day, regarding the attitude we will embrace for that day.

We cannot change our past,
We cannot change the fact that people will act in a certain way.

We cannot change the inevitable.

The only thing we can do is play on the one strength we have-and that is our attitude. I am convinced that life is 10 percent what happens to me and 90 percent how I react to it. And so it is with you.


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