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MADDY1961's Photo MADDY1961 Posts: 56
8/4/10 12:42 P

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Comfort and prosperity have never enriched the world as much as adversity has. Out of pain and problems have come the sweetest songs, and the most gripping stories. You're in my prayers.

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PINKPRINCESSE's Photo PINKPRINCESSE Posts: 6
5/30/10 6:58 P

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Hi everyone,
I'm new on this page - and reading everyone's ordeal, I feel hope, but also fear to see so many people struggle with their pain for so long!!

I got injured not long before my 24th birthday, when I was healthy, happy, sociable, positive and always resourceful. My friends and my job kept me driven, as well as my part-time law studies. Being busy drove me to succeed.
My injury was misdiagnosed for over a year during which it got worse and worse.
Now, 3 years later, I have had some improvements from my worse point. I have some reflexes in my left leg now and my leg strength has improved. But I am now recluse, weak, sad, and still in constant pain - even with all the Hydromorphone and Lyrica since there is no balance. Either I am in pain, either I am drugged out in the clouds.

But what hurts the most is what I have lost: the gift of being active and healthy!! I can sometimes take 1 km walks with my dog, and can fake I'm ok in most situations, but I can always feel the dread of being now 27 in the body of a 87 y/o lady.
So just over a year ago I started sinking. I have been off work for a year and a half with no concrete improvements and barely left the house in 2009; even barely left my room.

In the last few months, I've had someone standing beside me whom I respect and am now feeling somewhat ready to fight - all I need now is a battle and patience. A plan. How did you do it without injuring yourself more? How did you drag yourself up when your body but especially your mind's given up on fighting?

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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
5/25/10 1:49 A

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Needing a little push tonight myself. I've worked a little too much and put my T spine out. I don't need this, but once in a while, it takes the brunt of my lumbar.

PLEASE send me some energy guys, I need it.

Tx HUGS
Ember - pain level 9

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
EMBERSIDHE's Photo EMBERSIDHE Posts: 383
5/14/10 1:20 A

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Hi Salvarad

This sounds wonderful for you. I've heard of the mackenzie method, in fact, I know someone who uses this and has what I have, CES (cauda equina syndrome) he himself is a PT. It sounds like you've found your solution and how to deal with your particular pain, awesome ).

It doesn't work for everyone sure, but it's great to hear very positive feedback on it. I know it's not new, but it isn't used in many cases I was told as it doens't always fit the patient. It's wonderful that this fits for you. Anything for relief right, and you've found it. YAY

Anyhow, my pain meds and very gentle excercise is what i do, and sometimes it works, sometimes not.

Great to meet you and thanks for the mail too.
Hope to get to know you better
HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
SALVARAD1's Photo SALVARAD1 Posts: 220
3/31/10 4:32 A

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I have been dealing with foot and leg pain on my right side since 1994 when I incurred a philosophy injury. Yes. I just said “philosophy injury.” My professor was trying to make a point about fairness and equality by having each student get an eraser from a ledge above the black board. Being the competitive person that I am, I over did my jump and injured my foot on the way down☹

I should note that I have had numerous x-rays and MRI's and that I have seen all kinds of doctors: they all say the same thing: there is nothing anatomically wrong with me:). After a 15-year cycle of feeling fine, starting to get fit and ripped, and then stopping whatever flow I had to deal with knee pain, or foot pain, or back pain (and after having seen so many different kinds of doctors and specialists and even a an operation to remove a piece of meniscus that had broken off and formed scar tissue in my right foot), I have finally found out how to handle whatever it is exactly that I am dealing with.

My discovery of what I needed to do to break the cycle of progress and disappointment came to me when I had severe back pain last summer: I couldn’t even walk and NOTHING made me feel better. My doctor sent me to an interdisciplinary spine and back center. The doctor there had me work with a TEAM that included a chiropractor, a massage therapist, and a physical therapist. They used the McKenzie method to engage me in the process of healing:

The McKenzie Method is not merely extension exercises. In its truest sense, McKenzie is a comprehensive approach to the spine based on sound principles and fundamentals that when understood and followed accordingly are very successful. In fact, most remarkable, but least appreciated, is the McKenzie assessment process.

To get more information go to: http://www.mckenziemdt.org/approach.cfm?se
ction=int

“My team” asked me lots of questions and used my feed back and my own personal body knowledge to leverage their own knowledge and skills in an interactive and holistic way to help me deal with the back pain. Our conclusion thus far, and the one that seems to make the most sense given my medical history, is that back pain was an effect of compensating for the foot pain. What I have also concluded given this information is that my supposed knee pain was also an effect of compensating for foot pain. What I was doing for 15 years was using all of the muscles on my right side, from my knee to my waist, to keep the wait off of my foot (the one with the bone that had broken in two and formed scar tissue). Each year I did this I got worse and even began to feel pain in my upper back (right side) as well as the muscles in the right side of my face!

I now use the techniques I was taught by my team (after 4 months of therapy) to counteract any unconscious compensation my body might engage in.

I don’t think my right foot will ever feel completely normal so I don’t think I will ever get rid of the pain I sometimes feel in my knee, ilitibial band, and back. I can, however, use all of the techniques I was given to deal with all of the pain I have described.

For so m any years I was sure there was something anatomically wrong with my back or knee and losing hope that I would never reach my personal best. Now I am successfully using the techniques to work through the pain.

I cannot choose to not have the pain but I can choose to work through the pain by listening to my body and my team.

The pain of not being active is greater than the physical pain I can manage naturally (without drugs).


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LUNADRAGON's Photo LUNADRAGON SparkPoints: (65,683)
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3/7/10 10:36 P

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It's been a bad pain day for me. Nerve pain from cervical spine in my left arm, starting to get it in the right! and sciatica in my right leg from low back.
The meds just don't seem to be helping today. Heat packs help.

Today, I brought a picture of my brand new grandson with me to church (his 2 month pic, he is now 3 mos.) and I shared it. It helped me to take the focus off me, and to be thankful about my grandson because he was really sick just after birth.

"Pain is temporary. It may last a minute, or an hour, or a day, or a year, but eventually it will subside and something else will take its place. If I quit, however, it lasts forever." -Lance Armstrong
~~~~~~~~~
"One tiny little thing can spark an idea. Inspiration can come from anywhere." from a magazine.


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JESSBLUE22 Posts: 22
1/30/10 9:17 P

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A tip if deep tissue massage helps your pain: Get a long sock, fill it with 2-3 tennis balls. Holding the top of the sock, lean against a wall and roll the balls on the area or pressure point in need.

I learned this from the exercise physiologist I saw for PT. It works surprisingly well.

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ANNANN10 Posts: 68
1/3/10 3:30 P

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BLESS YOU I CAN'T EVEN GUESS HOW YOU FEEL, I'VE HAD I BACK FUSION AND IN PAIN ALL THE TIME JUST THINKING OF TIMES IT BY 3 AND I GOT A SHIVER, SHIVER OF BEING SCARED BECAUSE I WAS TOLD I COULD EXPECT TO HAVE TO HAVE MORE, IT'LL HAVE TO BE HELL BEFORE I AGREE TO THAT, WHEN I CAN'T LEAVE MY BED I'LL CONSIDER IT,MAYBE. I HOPE YOU HAVE SOMEONE THAT CARES ENOUGH TO HELP YOU ALOT, I'M LUCKY MY HUSBAND JUST DOES WHAT I CAN'T.I'VE LEARNED TO PLAN EVERYTHING AROUND PAIN, IF I HAVE TO GO GROCERY SHOPPING 30 MINUTES BEFORE I TAKE A PAIN PILL AND MAKE SURE I DON'T DO MUCH BEFORE BECAUSE I'M USUALLY IN SO MUCH PAIN I GET TE FROZEN AND DIARY THINGS OUT OF THE CAR AND PUT THEM AWAY AND MY HUSBAND BRINGS IN THE REST AND PUTS IT AWAY WWHEN HE GETS HOME, THANK GUD I HAVE HIM.WILL SSAY A PRAYER THAT YOU GET SOME COMFORT TODAY AND WHILE YOU HEAL. emoticon

EMBERSIDHE's Photo EMBERSIDHE Posts: 383
10/24/09 1:12 A

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Hi Joco
I've tried a lot of things. Meditation is something I have tried, but I was on lorazopam at the time, and since I've not. Maybe I should. YA THINK.
LOL I am in agony again tonight, I do waaaaay to much and then I pay for it.
I've had a super busy week, so now, I need to deflate. I do use druid balls, I am not sure you know what they are, but they are very similar to Chinese medicine, they're metals from the earth, and I swear, they work the minute I hold them. The energy that comes from them, is simply amazing.

I'm so glad that meditation is working for you, thats great YEAH

Hey, Joco, I think I will send you an email here, is that ok.
HUGS Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
JOCKO56BEER Posts: 2,093
8/15/09 8:46 P

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I wasn't sleeping well at all this week,until I began to meditate at bed time. I slept like a log
last night too,straight through too! The pain didn't wake me up at all either.
I did the mindfulness meditation,it worked great.
All you have to do is breath in slowly and steady until you can't anymore,hold it then let it out slowly while thinking of a pleasant place you visited or have visioned,then go there in your mind,while still breathing mindfully of your breathing.

Take care and be well. John/New York


 
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JOCKO56BEER Posts: 2,093
8/3/09 11:02 P

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Good evening Embersidhe,
Have you tried Meditation yet? My brother "turned me onto Buddhism" when I was in high school,about an eon ago or just, 40 years,I was just 13 at the time.
It's helped me to calm the nerve pain down tremendously. The bone pain can be dealt with too this way.I meditate whenever the"break through pain comes. I hope it could help you too.
John

Edited by: JOCKO56BEER at: 8/5/2009 (11:50)
Take care and be well. John/New York


 
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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
8/3/09 6:42 P

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Oh boy, do I need some inspiration today. I am in absolute agony here. I have a tripple fusion, many of you may know, but on days I feel like I have been sliced in half.
Its the bone graft that hurts more on days. I had bone taken from My T spine, 12 and L1 and L2 and placed in L3/4, L4/5 and L5/S1.
i've had this fusion now going on 2 1/2 years but I have read much info on the bone graft and it takes anywhere from 2 - 4 years to heal. So, no doubt me trying to be busy with my shops in this weather is killing me.

Hope everyone is ok
HUGS Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
JOCO112 Posts: 208
6/19/09 3:11 P

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I am mountain biking to get ready for my trip to Ireland. My brothers & their wives will be joining us.
Although I have serious pain problems my twice a week physical therapy sessions and my daily riding on a mountain bike(trying to get used to the gears),
I've managed to lose 5 pounds the first time out.
I rode it in low gear for an hour.
After that day, I rode it in the proper gear when needed. I lost 2 pounds the second day, and a pound each on the coming days. Though I did have severe pain issues, after resting and making sure I took the proper amount of pain medications, I found that this new pain was 'break through pain'. I used a lidocaine patch over the painful area,with medical tape securing the patch otherwise it would have just slid off.
John Joco112

Edited by: JOCO112 at: 6/19/2009 (15:12)
CMD9603's Photo CMD9603 SparkPoints: (0)
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5/18/09 7:29 A

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I am getting ready to have the perm SCS implanted...had the trial back in March and could not believe the difference!!

Pain free, or pain lessened days are out there!


Christie
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The key to unlock the door to dieting success is portion control!


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RTLIFESTYLE's Photo RTLIFESTYLE Posts: 7,880
5/17/09 6:55 P

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You will have better pain free days. I have suffered from chronic low back pain for 9 years. I just had surgery May 14th for permanent spinal cord impant stimulator. I didn't think it was possible for me not to be in so much pain. It can happen for you too. Just keep on persevering.
rolenia

rtlifestyle
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Don't get discouraged. Look at today only. We can't change yesterday.

Coming together is a beginning; keeping together is progress; working together is success. SP quote


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CMD9603's Photo CMD9603 SparkPoints: (0)
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5/16/09 2:54 P

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You are not alone...it happens to a LOT of people with chronic pain/arthritis. It's the increase in barometric pressure that causes pain levels to go up. My pain has been 10x worse the last few weeks with all the rain and storms. Last night, we had tornadoes and severe thunderstorms/flooding...I was miserable!

Once the pressure levels out, things will get better... :)


Christie
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The key to unlock the door to dieting success is portion control!


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JOCO112 Posts: 208
5/16/09 11:10 A

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Is it just me or does this occur to everyone?
I am in terrible pain just before a storm,then , when that storm arrives, I awaken with nearly "0" pain
My neck is just hurting now, but it's at a level that I can deal with(6), I'll just put on a patch and forget about it altogether.
Joco112/John

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5/10/09 7:32 P

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Whenever I think this will never end, the day comes when I realize that I don't have anymore pain and I can't pin-point when exactly the pain left!

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5/9/09 9:37 P

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A quitter never wins.
A winner never quits.

Same goes with pain....though it seems to get the best of us at times, we can overcome it with the power of positive thinking!

I have been down a rough road my entire life...though I push on. Life is only as bad as you make it...keep a positive attitude and you will go far!

I wrote the following quote after my last spinal fusions...

"When life gets you down, grab a cloud and examine the silver lining" ~~Christie

emoticon


Christie
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The key to unlock the door to dieting success is portion control!


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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
4/6/09 3:07 A

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Not feeling inspired yet? Come on everyone....
Today can be a better day. I tell myself that all the time. Sometimes it even works

LOL
HUGS EMber

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
KMCDOWELL12's Photo KMCDOWELL12 Posts: 4,184
11/27/08 8:08 P

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Always a good idea

Kaye


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CANDYSMOM1 Posts: 1,053
11/14/08 8:30 P

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My mother in law just had a mastectomy and she's doing great but she came home from the hospital today and still required some more care than I am physically able to be doing. I had a spinal fusion in 2004 that didn't heal right. Doctors never saw anything like it before. My pain may be nothing like anyone else is ever going to experience but I am in too much pain to give inspiration right now. Michelle

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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
11/14/08 4:13 A

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Inspire someone today.
Give someone with pain hope that tomorrow will be a better day.


~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
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