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MISTY09045's Photo MISTY09045 Posts: 89
1/10/11 2:17 P

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Hi all. I am a 3rd generation bc survivor. My mom was 27, her dad was diagnosed 6 yrs later, and I got my first diagnosis in 2009, but after the surgery (on christmas eve) we found out it had spread. Everyone reacts differently to chemo, even if your on the same drugs. That's important to remember! Do what your body tells you! If you wanna go walking, go walking, if you wanna sleep, sleep! As for food, it's kind of a trial and error! My mom basically lived on tab (the soda), my papa could only eat coke and apple pie. I had certain things I couldn't stomach. It varies with everyone. Alot of the folks in my center liked to spice everything up and make it hot, I didn't. I was on the sweet end of the spectrum. It's a trial and error.
Just remember you are not alone!

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain.


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EZBREEZY08's Photo EZBREEZY08 Posts: 286
4/25/10 10:32 P

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I just started chemo a couple days ago but was told by my mom (also b/c) that butterscotch pudding helps with the metallic taste and also about the claritin helping with the neulasta but she said to take it the day before and 2 days after. I am curious if the compazine makes it hard for anyone else to sleep??

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DAMISA's Photo DAMISA SparkPoints: (0)
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10/9/09 2:39 P

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I forgot to take my Compazine first thing this morning and, boy am I paying for it! Thank goodness for ginger tea, saltines, and rice!

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8/11/09 5:56 P

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I can't take naproxen (Aleve), but I might be able to do the Claritin. I'll ask about that when I go to get my blood work tomorrow.

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BTRX71's Photo BTRX71 SparkPoints: (32,207)
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8/11/09 5:51 P

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Chemo #2 this week. Just wanted to share a little info. I talked tomy DR about the neulasta injection making me feel worse than the treatment. She told me that is a common cmplaint and that for some there is a way to help this. I was told to try taking one ALEVE and one CLARITAN (both sold over the counter) 1/2 hr to 1hr before the injection. Doing this will lessen the aches. Gonna try it this week. My neulasta is on friday.



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7/16/09 12:19 P

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Went to the Dr today. It's official now. I get my port put in on Monday and chemo starts Friday.



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7/12/09 1:54 A

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Oh Sweetie! I most certainly know how that feels! Sending you pozzie vibes and healing thoughts!

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7/11/09 6:50 P

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Just found out on friday that i will need another round of chemo.



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SARAHA71 Posts: 62
5/10/09 10:26 A

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You don't!
Only do what feels right. Your body is being attacked so much when you take chemo. Really tune in to your body. If it means staying in bed, stay in bed. If it means you feel energised enough to walk, walk. But don't push yourself if you feel sick.
I had cancer 10 years ago when I was 27.
I worked out through my second phase of chemo - I don't remember what it was, but I was OK most of the time with it. My first combo pre-surgery was Adramycin and Taxatere, a really brutal combo that had me hospitalized twice with infections. But the 2nd bout was something with the "C" chemo was not an issue and I was able to run a day camp and start exercising. I worked out every day I had radiation, too: I went to the gym, went to radiation, came home and fell asleep... that was pretty much my schedule.
So only do what feels right. You have the rest of your life to exercise!

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5/8/09 4:06 P

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I've been kind of lucky in two ways -- when I was doing most of my chemo, it was too cold to go outside or go down to the basement to exercise. Unfortunately, most of my exercise consisted of walking up and down the stairs in my brother's house of stairs!

Neither the neupogen nor the neulasta made me achy enough to spend days in bed. My new chemo regimen does that all by itself...

I'm hoping to get started walking again now that the weather is reasonably nice. Again, unfortunately, my work from home schedule has been so packed with meetings and conference calls that I haven't found a good time to do it -- or when I do, it rains like crazy!

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SAJA713 Posts: 1
5/8/09 12:39 P

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I'm half way through my chemo. I just finished the A/C regimen and start Taxatere in two weeks. The nausea has been the worse for me. The Nuelasta shots put in bed from the pain, too, which I get my Nuelasta shot today. My kids are old enough to help out and make their own meals if needed, thank god for small miracles. How do you exercise when you are so fatigued?

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4/10/09 6:53 P

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My chemo was not a terrible experience, except for having to take the shot nuelasta. I actually had to plan that I would be spending the weekend in bed because of the pain, so during the week I made my meals for the weekend so it would be easy heat up in the microwave if my husband wasn't home to do it for me.

"I can love what God loves. I don't love everything I do, but I accept myself, because God accepts me. I know I need to change, and I want to change. In fact, I believe God is changing me daily, but in the meanwhile, I will not reject what God accepts. I will accept myself as I am right now, knowing that I will not always remain this way."

"Life may change us, but we start and end with family"

Steal 5 minutes for yourself today!


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4/9/09 5:20 P

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Hmmm... I haven't had the metallic taste thing, but I do have times when food just doesn't taste like anything... Maybe the plasticware would help with that as well...



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4/9/09 12:40 P

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When I was going through chemo, I used plastic forks & spoons. That was a big one for me it helped with nausea and the awful metal taste in my mouth.



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4/8/09 11:29 P

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Chemo puts a cramp in your lifestyle - big time. Let's make lemonade, so to speak, and share some of our tips and tricks to living well while having chemo.

Since chemo dries my skin out (a lot), I splurge on 100% shea butter for my skin. The one I buy is organic and has very little scent. It does wonders!

What are your tips? Questions are welcome, too!

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