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CHASEKJ's Photo CHASEKJ SparkPoints: (185)
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5/13/14 9:47 P

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It took me years to finally get a doctor to run any tests at all and diagnose me. I started having symptoms in high school to include a missing menstrual cycle which was the most obvious issue at the time. I went to a lot of different doctors, was tested for pregnancy, told I was not pregnant, and sent home. Now that I am married and trying to conceive my mom, a nurse, was always bugging me to see my doctor about possible pcos. I finally went and asked my doctor directly about pcos and gave her a full list of my symptoms. She said that my symptoms matched those of the condition and ordered blood tests to have my hormone levels and all that good stuff tested. My test results were enough to convince my doctor that I do indeed have pcos, and the results also showed signs of having a thyroid disorder. I never even had to go back to the office, my doctor sent a prescription for metformin straight to my preferred pharmacy. I have recently relocated and will be going to see my new doctor for my first check in since starting the medication and I hope my new doc will agree with the previous diagnosis and keep me on the met!

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MRLDCTYGRL's Photo MRLDCTYGRL SparkPoints: (9,964)
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12/12/12 10:26 P

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I was Dx'd while trying to conceive in the early 90's. Diagnoses now are still similar to back then, as my daughter has it too. Mostly according to symptoms. There aren't a lot of GOOD bloodtests available to diagnose PCOS, mainly because the "normal" range is artificially wide.

There are a few key components that are generally more common than not... irregular periods (whether they're heavy or not, or regular ones that are too heavy or last too long/not long enough, or just don't fit the profile); abnormal facial/body hair, typically on the chin and neck, around the nipples and in a line from your belly button to your pubic hair; "acanthus nigricans" which is a general thickening/darkening of the skin on the back of your neck, sometimes extending up to your ears and often including the tops/backs of shoulders and backs of upper arms; if you have cysts, that's an "inclusive indicator" which means they feel secure about telling you that you have PCOS, but you can definitely have PCOS WITHOUT any cysts at all. Insulin resistance is a factor that can be included, or not. Depression is a HUGE factor for some people, not at all for many. Intense cravings for sugar and starchy products are very common. A significant weight issue primarily in the "center mass" with a close to 1:1 hip to waist ratio.

Note to self: Please be patient with me, God isn't finished with me yet.


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BOOKWORM_2013's Photo BOOKWORM_2013 SparkPoints: (462)
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12/1/12 12:05 P

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I have known there was something wrong with me for the past 7 years after my husband and I got married. My menstrual cycles had stopped and we were TTC and were having no success. I had no idea what the problem was. I saw two different doctors, had some tests done but they never would tell me what was wrong with me. After 7 years of not knowing I finally found a doctor who wanted to help me. With the results of a blood test I was diagnosed last month with PCOS. The day I found out the results I was put on Metformin.

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MPETERSON2311's Photo MPETERSON2311 Posts: 5,079
11/20/12 10:40 A

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Thanks for all the replies. This was helpful.


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JULMUT's Photo JULMUT SparkPoints: (20,952)
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11/20/12 10:04 A

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i had previously been diagnosed with type 2 diabetes. that plus the other symptoms were enough to be diagnosed. i've never had an ultrasound. my hormones have always tested normal. it was the ob/gyn who diagnosed me, but i see an endocrinologist to treat it now.

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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (93,317)
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11/19/12 6:51 A

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They ran a lot of blood tests on me, and they did an ultrasound to look at my ovaries.
I was diagnosed when my hormone levels came back the way they did and there was more than 10 cysts on each of my ovaries.


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MPETERSON2311's Photo MPETERSON2311 Posts: 5,079
11/17/12 8:38 A

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Interesting. Maybe that is what my doctor is trying to do, rule out other possibilities.

Thanks for the insight.


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FIT_ARTIST's Photo FIT_ARTIST SparkPoints: (110,576)
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11/16/12 9:21 P

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I have almost all the symptoms. But all my tests are OK. My Doc said that fasting glucose doesn't tell you if you are a little bit insulin resistant. It only tells you when there is a bigger problem. I also don't have cysts. And my periods are regular. I have the rest of the symptoms. After ruling out all other problems such as thyroid... Doc said (after I suggested that I think I had PCOS), she said that she agreed. That it was a possibility. She also said the best way to treat was with diet.
I haven't changed my diet (what I eat or how much I eat), I have only changed WHEN I eat. I eat lunch and dinner. I stopped eating 5-6 small meals a day, and the weight is coming off beautifully.

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MPETERSON2311's Photo MPETERSON2311 Posts: 5,079
11/16/12 8:58 P

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Thanks for the help.


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VICTUS_GIRLANYA's Photo VICTUS_GIRLANYA SparkPoints: (34,647)
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11/16/12 3:56 P

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I went to visit my ob/gyn. Getting it twice a month. "Exploding" at times. She sent me in for a 4D ultrasound. Went over that and did a few more tests and lots of question asking. She stated this was it. I am on Metformin now for this and also for insulin resistance. She is considering a hysto for me tho.

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NEWSGIRL2177's Photo NEWSGIRL2177 SparkPoints: (43,209)
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11/16/12 2:38 P

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That's pretty frustrating. I went through something similar and I researched it quite a bit, and then I asked for a referral to an endocrinologist. She did an ultrasound of my ovaries, which revealed several cysts, and officially diagnosed me with PCOS. I found it helpful to see an endo, so I'd check that out if you're seeking more answers.

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MPETERSON2311's Photo MPETERSON2311 Posts: 5,079
11/16/12 2:01 P

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I have seen an OB/GYN who said "I fit the profile" for PCOS. I also saw a midwife who said "I fit the profile." I finally asked my Primary Care Physician (when I was seeing him for something else) What the heck does that mean?? That is not a diagnosis!!

He ordered some tests. None of which sounded like they would give me a positive diagnosis or not. Course, I'm not a doctor, so maybe he did order the right ones. He said he would check my estrogen.

How did you get your official diagnosis?


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