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KACEYSW's Photo KACEYSW Posts: 2,201
11/22/12 6:35 P

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I didn't start having periods until I was 18 and have never had a regular cycle. I wasn't diagnosed with PCOS until I was 51 (I am now 54), so I have been down that whackadoodle road for quite some time. I now have an IUD that releases a low dose of hormones that has helped me greatly and have not had to have Metformin yet, so I am grateful for that. My PCOS is atypical (or so says the doc) in part because I have no symptoms of diabetes or prediabetes, which runs in my family (as does PCOS). I also have normal-to-low-normal blood pressure, but my cholesterol is still very high (despite being on a very low fat diet and having lost 48 pounds).

Now that you have a diagnosis. Move forward and forget the guilt. THis is the first day of the rest of your life; your new dawn, so to speak. I will pray for you on your journey.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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JULMUT's Photo JULMUT SparkPoints: (20,958)
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10/29/12 1:17 P

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Many people ignore the problem, don't seek help, and continue to live their life as an unhealthy person. You should be commended for confronting the issue and dealing with it. Forgive yourself so that you can move forward. Beating yourself up over your missteps only sends you backwards. Whatever happened in the past happened. Let it go and move on. And its really hard to turn a deaf ear to people when they are being negative, especially if those people are friends and family. But look at it this way, most people could stand to lose a few pounds and could stand to eat more veggies and exercise more or whatever, so take what they say with a grain of salt. Let he who is sinless cast the first stone, right? Even if you did get pcos because of your own choices and behaviors, who cares? What really matters is how you react. The journey to health is certainly not quick or easy, so I hope you will take it one step at a time and celebrate every one of those steps. We are all human. We all misstep sometimes. Just get going in the right direction again. I'm glad you're here. Not only does this group possess a wealth of information, but these folks are very supportive. I know I have found a lot of comfort and encouragement here. Best of luck and feel free to contact me if I can help in any way!

Dream as if you'll live forever. Live as if you'll die today.
-James Dean

If you have to tell someone how bad you want it, then you haven't shown them how hard you already work for it.
-John Mayer

Whether you get what you want isn't what defines you. It's how you go about your business.
-Scott Jurek






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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (96,145)
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10/26/12 6:52 A
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Good to have a diagnosis. I hope now, like the rest of us you can figure out what works for you and get healthy :)

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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BOOKLUVR_1987 SparkPoints: (711)
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10/25/12 10:36 P

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I have not had a menstrual cycle in 3-4 years and had no clue what the problem was. I was finally diagnosed with PCOS yesterday and now that I know what is wrong I am relieved and excited that I now know what the problem is. I am in the process of taking it in that I do have PCOS and am learning everything I can about it.

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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (96,145)
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8/3/12 10:52 A
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We are glad to have you as part of the team! We are here to help each other and understand what we are going through with others going through same thing.

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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SPARKLGRRRL Posts: 129
8/1/12 9:32 P

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Thank you all so very much!! I was feeling pretty "alone" in this w/ no one understanding until I joined here. I think I am just going to not say anything more about it to friends & family..until at least I have processed it and educated myself. Thanks again so much. I can't tell you what a difference your replies made. {{{ }}}

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KATIBUGG's Photo KATIBUGG SparkPoints: (2,682)
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8/1/12 10:14 A

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By educating yourself, you'll not only learn that it's NOT your weight and it is NOT NOT NOT your fault! But you will also be able to educate others to help them understand what this really is. For the most part, we all look normal on the outside {except for some extra love handles here and there - on me anyways!}. I knew I had PCOS when I was 14 and no doctor would do anything with me until I was 18. Then I was told that PCOS didn't really exist by both my regular doctor and an OB/GYN!! So I wasn't actually diagnosed until about 8 years ago and I was amazed at what all is involved with PCOS. Your doctor will probably be a broken record saying "lose weight, lose weight, lose weight!" at each appointment, but that's not the only way to control it either.

You've found a great group of people, though! I love reading all the encouragement and helpful suggestions!! No matter what you are going through, odds are there is someone {or 2 or 3 or 4} who have experienced the exact same thing. You are not alone!! :)

Today you are you. That is truer than true. There is no one alive who is youer than you. ~Dr. Suess


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (96,145)
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8/1/12 9:29 A
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PCOS is not necessarily anything to do with weight. My sister also has PCOS...and the extreme kind where she has 20+ cysts on each ovary, does not ovulate at all and has to take multiple types of medications to even have a period. She is 5'7 and 129lbs, has never been over weight in her life, and has been trying to have a baby with her husband for 3 years now. She isn't giving up.
Weight can come on because of PCOS because of insulin resistance, but getting weight down and healthy will help symptoms of it, but because of one's weight doesn't always cause PCOS. I have friends who are larger than I am who have never had problems and have 3 kids now...so just listen to what your doctor tells you, not what others tell you. Get healthy for you, because it will help you in the long run, not because someone made you feel bad for it.

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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HEALTHYDAISY's Photo HEALTHYDAISY Posts: 94
7/31/12 11:09 P

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It is sort of a chicken & an egg thing. Not everyone with PCOS is overweight so it isn't necessarily caused by weight, but it can make it harder to lose weight, but does it make you gain? Sleep apnea (a symptom of PCOS- who knew when I was diagnosed w/ OSA six years ago that I would eventually also eventually be diagnosed w/ PCOS.) is the same. It can be brought on by weight gain, but it can also cause weight gain.

Do a little more research (I looked at a lot of different sources online including Mayo Clinic & NIH). Putting it all together it seems to have connected a bunch of seemingly unrelated issues I have been dealing with for many years.

Do not worry about the reaction that you get from others. I do not think this is easy for people to understand - I am not sure even my primary care physician gets it.

Edited by: HEALTHYDAISY at: 7/31/2012 (23:11)
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SPARKLGRRRL Posts: 129
7/31/12 10:47 P

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I was just diagnosed last week. I have told 2 friends and have been so upset. While I do realize that I CAN lose weight (seeing all your results! :) and it will help, I am basically being shamed for "bringing this on myself." The basic reaction has been "that's what you get for not watching what you eat, just lose weight." And while I am very new to this, from my understanding and the limited info I got from the endo, it is not simply caused by "being fat" or having a poor diet. Nor will it "go away" with weight loss but just be better managed.

Have you experience this reaction from friends or family? If so, how did you deal with it? My first thought was to educate them (tho I hardly am myself on this syndrome) but really found very little to support that it is not caused by weight.

Thanks!




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