Don't give up on the doctors, give up on the nurses! Unfortunately, they're the first hurdle you have to leap to talk to a doctor, so even if the doctor would understand, you have to reach him first! ANY time I've EVER spoken to a nurse they've told me to go to the ER; they don't take chances, they don't want any liability, & sometimes, you need to just get tough with them & say "Listen, I've lived like this for over a year; if I haven't bled to death by now, I won't before you can get me an appointment. Now if you don't understand PCOS, fine, let me talk to a doctor or another nurse that does." If you get attitude, go elsewhere. Making the calls is time consuming, but free. You don't have to put up with stupid. There are still a LOT of nurses & even some doctors that still do not thoroughly understand PCOS & all the happy little problems that come with it. Another poster mentioned an endocrinologist; sometimes they are the best place to start.
I went from having NO period unless forced to having one whenever, sometimes for months straight, and heavy. The OB I went to at that time told me you can bleed, and bleed, & bleed some more b/c you might not be shedding all the layers. I don't know if that's the full deal or not, but he put me on Progesterone, & it really helped. I am still getting a period (on it's own schedule) but it's more manageable now, & if it goes wonky they stick me back on Progesterone.
Like a previous poster answered, a hysterectomy will take care of the bleeding, but not the weight, hair, other PCOS issues. I had a friend who had just her uterus removed, & the bleeding stopped, but she also immediately put on 20 lbs.
Not having insurance sucks, but I would talk to them about cost or see if you can get on some kind of temporary state aid until you find another job. They say Laparoscopy, but many times when they get in there, they also wind up doing more (but you can also talk that over before) & sometimes drilling, or a partial oopherectomy can all help & will be done during the procedure. However, you're right that it could be a temporary fix. Everyone's body and hormones are different. You could be more regulated permanently, or you could be back to the same issues within a year. Or it could fall anywhere between.
If you're really to the point that nothing else matters than stopping the bleeding, I would talk to various women in the neighborhood or that might use the practice and then ask them if they know of a doctor that they'd recommend, & straight out tell them that you're looking for a doctor to perform a hysterectomy. You're not interested in any other procedure, b/c none of them have 100% success rate like a hysterectomy would for stopping the bleeding (other PCOS issues, no, but the bleeding, yes).
Best of luck. It's hard when you have limited options & the people you're dealing with are not all that helpful.
| current weight: 180.0